posted
How bad is coffee for you if your under treatment?
I know in Burrascano's guidelines he mentions NO COFFEE.....well my LLMD said that is prohibited because people lack the rest or sleep they can get without having to drink it.
Is coffee actually bad for you or lyme?
I love coffee and i miss it.....i couldnt spend a day at work without it and now i smell it everywhere but force myself not to drink.
Thanks!
-------------------- May God Bless you, answer your prayers, relieve you of your pain and make you stronger than what you are today. Ameen. Posts: 341 | From Columbia, MD | Registered: Jan 2009
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glm1111
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When I drank coffee, I used to sprinkle cinnamon and cloves in it. Both good antiparasitics,
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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I have been doing the Salt/C.....i am not sure if its the meds, or the mastic gum or salt/c but my stomach is allowing me to eat a bit more now. I am not dying hunry. I just hope it wont backfire on me now again.
Did you drink coffee with milk or just alone with cinnamon and cloves?
-------------------- May God Bless you, answer your prayers, relieve you of your pain and make you stronger than what you are today. Ameen. Posts: 341 | From Columbia, MD | Registered: Jan 2009
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AZURE WISH
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posted
Do you miss coffee or the caffine? Did your dr say no coffee or no caffine?
I do drink decaf coffee once and awhile. But mostly i drink decaf green tea these days.
I want the one with regular coffee with some milk and a bit of sugar in it.
I do not drink the whole cup ever or ever did. I always had just about a quarter cup of coffee with milk and a bit of sugar.
I stopped that since i started treatment, but since you cannot sleep all night i am sooooo dreading at work without it!
-------------------- May God Bless you, answer your prayers, relieve you of your pain and make you stronger than what you are today. Ameen. Posts: 341 | From Columbia, MD | Registered: Jan 2009
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glm1111
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Hi sonee123...
.I drank it black and added the cinnamon and cloves. Glad your stomach is calming down.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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steve1906
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posted
Hi Sonee123,
I drink coffee everyday (Black) only.
I gave it up some time ago to see if it would help my symptoms.
It didn't make any different to me so I started drinking it again.
O-well, everything is bad for all of us!!!
Roy
-------------------- Everything I say is just my opinion! Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008
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Abxnomore
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posted
Your LLMD probably told you not to have coffee because of the caffeine.
If you go to a good coffee shop and buy water processed quality coffee beans and have them grind them you will not taste any difference and you could then enjoy a cup.
When I entertain I never tell my guests I am giving them decaf and they all rave about my coffee. They cannot tell the difference. I personally have not consumed coffee in years, but my die hard friends who would never drink decaf love it.
What makes the difference is quality FRESH beans that have been decaffeinated by the water process, as opposed to chemicals. Whole foods has decaf in the loose bins where you grind the beans and it's very good. Store it in the freezer to keep in fresh.
Of find a gourmet coffee shop in your area that has high turnover.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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mojo
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posted
I went without it early in my treatment because I had a lot of nausea.
I love my coffee and drink it every morning. I cold brew organic coffee. Coffee is a "dirty" product - lots of pestisides - so "organic" or "fair trade" is the best.
Cold brewing removes most of the acid (acid is bad for us) and it tastes SO good.
Posts: 1761 | From USA | Registered: May 2006
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Abxnomore
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Agreed, I forgot to mention that it should be organic.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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posted
Where can i buy some organic coffee? from a local health store?
-------------------- May God Bless you, answer your prayers, relieve you of your pain and make you stronger than what you are today. Ameen. Posts: 341 | From Columbia, MD | Registered: Jan 2009
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steve1906
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Hi Sonya,
You can find it in a Whole foods store or a good coffee shop.
How are you tonight?
Roy
-------------------- Everything I say is just my opinion! Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008
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Keebler
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posted
-
I knoooow. I love coffee, too. And I've had to give it up several times in my life. But it's worth it. So worth it.
If the guidelines explicitly says" NO COFFEE" in all caps like that, he is trying to tell us how important this is to avoid. He is on our side and I'm sure he has reasons for his advice.
Just one of those is that caffeine is very hard on the adrenals and the adrenals/endocrine system can be so damaged from lyme.
Caffeine also can stimulate the nervous system and NMDA receptors and thereby affect the GABA receptors - that can really mess up a body struggling to get well.
You can find some wonderful water-processed decaf, organic coffees. They may still have a trace of caffeine but, a cup or two may be okay.
Remember that the guidelines are there to guide us back to health. You'll have your whole life to drink real coffee but, for now, avoiding caffeine is really important to the success of treatment.
It's not just about killing the spirochetes, it's about healing the body from the damage. Nerve tissue and adrenals just can't take caffeine.
Are you willing to trade the chance of succeeding over lyme for a cup of regular coffee? That's usually the question I ask myself when I want stuff that I know my body can't handle.
'Kete-tracker
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posted
I brewed up a 1/2 cup of organic Green Mountain "B.lend" every now & then. Never had an issue. The key is to ONLY drink some in the morning so as to not screw up your sleep cycle.
If you tend to nap in the afternoon (I never could- cortisol too high), I suspect it's best not to have coffee after, say, 10AM.
And sweeten it w/ Stevia, not sugar or erithritol(sp?)/Stevia.. the good-Q, zero-calorie stuff, like SweetLeaf.
If you find it's affecting your rest, skip it.
Posts: 1233 | From Dover, NH | Registered: Sep 2008
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'Kete-tracker
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sonee123- I get the 10oz sealed, vacuum-pack bags of organic coffee at Hannaford's supermarket here in NH. In the organic aisles, not the coffee section!
Posts: 1233 | From Dover, NH | Registered: Sep 2008
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posted
Thank you so much guys! I think i will go with organic decaf coffee.....i need to find some good one.
I always add half and half and sugar...but now i will change the sugar as well.
-------------------- May God Bless you, answer your prayers, relieve you of your pain and make you stronger than what you are today. Ameen. Posts: 341 | From Columbia, MD | Registered: Jan 2009
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mojo
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posted
Costco has great "Fair Trade" coffee at a great price. Both Regular and Decaf. I use about 2/3 decaf and 1/3 caf.
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lymeHerx001
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posted
caffeine causes cortisol to rise and throws off the hypothalamus.
Caffeine also purges the liver of glycogen (sugar) thereby making you hypoglycemic and furthur throwing off your system.
Its also an acid.
Despite all this I still drink coffee.
Posts: 2905 | From New England | Registered: Sep 2004
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posted
Mojo- How do you "cold brew" coffee? I loooove coffee. I have cut back but i have no energy. I will certainly switch to organic. I never thought about that before. Trace
Posts: 65 | From massachussettes | Registered: Mar 2009
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posted
So does anyone agree that ORGANIC DECAF coffee with some milk wouldnt hurt me as much as regular coffee?
-------------------- May God Bless you, answer your prayers, relieve you of your pain and make you stronger than what you are today. Ameen. Posts: 341 | From Columbia, MD | Registered: Jan 2009
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Keebler
Honored Contributor (25K+ posts)
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posted
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sonee,
You asked: "So does anyone agree that ORGANIC DECAF coffee with some milk wouldnt hurt me as much as regular coffee?"
I agree that organic decaf coffee (if water processed but most organic ones are) would be okay but it might be best to stay to one or two cups before 2 pm. and not after that - because Even decaf has a trace of caffeine and that can really mess with your cortisol levels and other adrenal functions.
You may do okay with some milk, but milk often will cause phlegm in the back of the throat or ears for some folks - and dairy can interfere with absorption of doxycycline. Just a little bit may be fine, but some (like me) would prefer more milk than coffee in their cup.
You can also use rice milk or even almond milk. Some use soy milk but there is some controversy over that regarding thyroid interference.
Still, I think you have a good plan for now with the coffee and I'd also ask your doctor at the next visit - or call his office manager. There may be some other reasons to consider, aside from the caffeine and acid.
=========
Now, after all that, if you have been drinking regular coffee, I would not stop cold turkey. I'd taper off over a week's time and be sure to add adrenal support (such as suggested in Singleton's book) to help your body go through the process.
richedie
Frequent Contributor (1K+ posts)
Member # 14689
posted
My coffee is naturally sweet so I rarely have to add anything.
Having my morning cup is one of the few pleasures I have left in life but I switched to decaf and will have aregular maybe on the weekend and am trying to make that it!
I roast my own beans so they are ultra fresh, and I always grind immediately before brew (Dean's Beans Organic).
Whole Foods also sells Sanctuary Coffee which is the BEST they carry and they have the roast date on the package! That is key.
The biggest thing with coffee is the effect on the adrenals but I think that is decaf as well...not just caffeine! Right?
anyway, my doctor who talks to Dr. B all the time said much of the guidelines are on the extreme for people who just can't stop, like the people who drink it all day long.
For me, one or two in the mornig she said is fine. Although recently I heard that only decaf is OK so I am confused. If the problem is adrenal glands, why ANY coffee?
Dr. S says in his book a few cups of organic coffee is fine.
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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richedie
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posted
Nobody seems to know...but what is the problem with decaf? Is it the acidity?
If not, is it caffeine that is the problem or coffee? Dr. B's guidelines are unclear on this!
He says -
NO COFFEE" in all caps like that...but why? Caffeine? He doesnt say.
Dr. Singleton's book he says 1-2 cups in the morning is fine! Confused yet????
Is it the problem with adrenals that make it hard to get well if you drink coffee? How? Why?
Sorry, it just bugs me.
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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glm1111
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posted
I drank/drink it and enjoy it. I take pantothentic acid (b-5) for adrenals if I need it. I do salt/c which really supports the adrenals.
Dr. B. might be concerned that the caffeine stimulates the nervous system. Sorry, but Dr. B. doesn't have all the answers. He doesn't treat for parasites which is a big concern with Dr. K.
I think some things are just good for the soul and if you enjoy it and it gives you the little pleasure we have so few of, I say do it.
Don't feel guilty while doing it either. If I do something or eat something I don't think I should, I try and balance it.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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Vermont_Lymie
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posted
I got better and still drink coffee with caffeine -- can't live without it.
Maybe this slowed down my progress, but I do not think so.
Posts: 2557 | From home | Registered: Aug 2006
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richedie
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posted
quote:Originally posted by Vermont_Lymie: I got better and still drink coffee with caffeine -- can't live without it.
Maybe this slowed down my progress, but I do not think so.
How much did you drink during treatment? Was it regular? How long did it take to get you better?
How about treating for parasites as others say, did you do that.
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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gwb
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posted
I stopped drinking coffee about a month ago due to getting sick and having nausea every morning.
I've been drinking organic green tea and I noticed it helps settle my stomach down in the morning.
I also have adrenal gland problems. I only have one gland due to the other one being removed in 1994 due to it being incased in a tumor (benign).
Sadly, I have a 6 mm tumor on my other adrenal gland but it's been tested and it appears it's not cancerous or creating additional cortisol or anything else.
I am sure my gland is very unhealthy due to lyme, antibiotics, not to mention my poor eating lifestyle (past),
Anyway, if I understand what I'm reading here, I'm best off not having any caffeine at all, but green tea has caffeine in it.
I guess I could get the decaf green tea but I don't know if they use the water process or how they go about removing the caffeine from it. Anyone know?
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Cindy Ss
Unregistered
posted
I miss red wine:( and coffee:(
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Vermont_Lymie
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posted
I drink a couple of cups of coffee in the morning, and one in the afternoon, daily.
I am an addict, and though willing and able to completely change my diet, give up sugar and alcohol, and take daily antibiotics to recover from TBDs, I am unwilling to give up my coffee!
I did take one course of Humaworm, and thought it was a good treatment. Have been on abx for over two years, and have gone from disabled to functioning and living well.
Posts: 2557 | From home | Registered: Aug 2006
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richedie
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posted
I love coffee, roast my own coffee and would love to open a nice espresso bar. However, I now only have caffeine once a week, weekend. During the week i have 1-2 cups of organic decaf, thats it. Takes every bit as good as regular and I don't miss the caffeine if I roast fresh and brew correctly or make nice espresso.
Plus, Dr. B now says coffee is OK if decaf.
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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Pinelady
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posted
Mojo I agree with the organic tastes better. I get mine at walmt. I lived on coffee to keep me going the past few years so it has been hard, but I got it down to 2 cups a day.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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WildCondor
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posted
It is both the caffeine AND the coffee itself that need to be avoided if you have Lyme and co-infections.
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richedie
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posted
quote:Originally posted by WildCondor: It is both the caffeine AND the coffee itself that need to be avoided if you have Lyme and co-infections.
Becasue of the acid, is what I thought. However, Dr. B says only to avoid caffeine, decaf is fine. Also, Dr. S in Maryland also says it is fine.
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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quote:Originally posted by sonee123: I dont like decaf,
I want the one with regular coffee with some milk and a bit of sugar in it.
I do not drink the whole cup ever or ever did. I always had just about a quarter cup of coffee with milk and a bit of sugar.
I stopped that since i started treatment, but since you cannot sleep all night i am sooooo dreading at work without it!
I personally don't think that amount of coffee in the morning is going to cause insomnia at night.
Posts: 365 | From Sylvania | Registered: Aug 2008
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posted
I LOVE COFFEE. just try to have organic for over all reasons. Ive been sick for 11 years and done every health plan under sun , guess what they all say no coffee!!!!!!!!!!! **** it SEriously unless you get serious anxiety or ulcers. Even then ive found get rid of stress and making and try to stick to knowing the coffee you drink and your limit and those things are resolved. You got to live too. Haven't we had to give up enough in life already? Its so easy to get freaked out about what is making us sick, but that is the worst guilt stress trap.
COlD BREW!!?? Oh i want to try. how do you do that?
Posts: 92 | From ri | Registered: Aug 2009
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mojo
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posted
Dr. B also says that diet soda is OK.
Diet soda is NOT ok!!! (for anyone)
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