posted
Ok so my 10 yr old has had a stomach ache everyday for over a month.
It gets worse at night and he can't sleep. We actually got the insomnia better but now this.
So he was having some heartburn we believe (it's hard to get kids to describe things). So we went to a new LLMD in WI. He gave him Prevacid to take daily. Also gave him Azithromycin instead of Biaxin cause that was causing his insomnia.
Then he started getting stomach aches. So the LLMD said to stop abx for a week to see if it helped. Well it didn't and he couldn't stand how bad he felt so I had to put him back on it.
Oh and he says he feels hungry all the time. He lost weight awhile ago and is either gaining it back or his stomach is swollen!
Could this be yeast??
Anyone know if any of those things could cause this? I don't know what to do? I am going to call the LLMD but he is new to us so not sure he can know what to do? I can't explain it well and we can't go there until October for an appointment.
Any advice? Thanks!! Amy
ps-he starts school tomorrow...I don't think he is well enough but he wants to go...I am worried
-------------------- My lyme disease blog: http://lymetimes3.blogspot.com/ One BIG Lyme family! I tested CDC + 10/08 My mom Igenex + 11/08 & My brother Igenex + 4/09, My 2 boys some + & IND bands, clinical diagnosis 3/09 (youngest has Aspergers too) Posts: 470 | From Painesville, Ohio | Registered: Mar 2009
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Parasites can cause all these symptoms as well as yeast esp. insomnia and swollen abdomen. So I think I would get him checked out with a MD who may want to just go ahead and treat if he rules out any thing else.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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lymewreck36
Frequent Contributor (1K+ posts)
Member # 4395
posted
I have to agree with Pinelady. My youngest lyme infected daughter, I have three by the way, was infected when she was three. Her treatment started when she was 4 1/2, and now she is 10. She still can't drop the anitbiotics without relapse, or anyone else in my family.
All that to say, yes, my daughter had some terrifying stomach issues, and we did all the tests. Had a stool sample, and MRI, urinalysis, blood tests, and the doctor couldn't figure it out.
I then went with my "gut" instinct (excuse the pun). WE put her on massive doses af ascidolpholis (spelling?) and diflucan daily, and after two weeks, the problem was history.
Now she takes her diflucan three days a week, and her probiotics EVERY DAY. We are using theralac.
Does your son have belching with the stomach ache? My daughter did.
IT is harmless to treat for yeast in this way.
I also wanted to point out that I have been treated for lyme by the best for over 7 years now, and halfway through those years, zithromax became impossible for me to take because it caused severe abdominal pain. So I stick to biaxin.
Try going back to biaxin and treating for yeast at the same time. If in a few weeks (zithro stays in the system for 10 days) your son is better, add the zithro, but keep the yeast treatment up, and see if he goes south again. IF he does, most likely is the zithro.
Regardless, remain on overly aggressive probiotics and diflucan.
Hope that helps. Mary
Posts: 1032 | From North Carolina | Registered: Aug 2003
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I forgot to mention he takes Nystatin. We started it around the same time as the other meds above.
He gets constipated too. I am not sure about belching. Have to pay better attention for that.
Does anyone know if constant hunger is yeast?
Yeah I don't want to do a ton of useless tests. Just worried cause my other son, who also has lyme, had an ulcer and a hernia all before age 12.
Do you stop abx while treating for yeast? I want to call his LLMD and mention that I think it could be yeast. Trying that 1st would probably be easiest.
Mary, Do your kids go to school and how does that work out? I am getting them a 504 plan.
thanks!
-------------------- My lyme disease blog: http://lymetimes3.blogspot.com/ One BIG Lyme family! I tested CDC + 10/08 My mom Igenex + 11/08 & My brother Igenex + 4/09, My 2 boys some + & IND bands, clinical diagnosis 3/09 (youngest has Aspergers too) Posts: 470 | From Painesville, Ohio | Registered: Mar 2009
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lymewreck36
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Member # 4395
posted
HI Amy. I need to run to the grocery store and make dinner. My husband is in China! So I am alone this week with the girls. I can get back to you this evening with thorough answers. It is almost 2:30 p.m. where I live. So I must run.
School,.....no problem. It is a way of life for us, like breathing. Hang in there.
Mary
Posts: 1032 | From North Carolina | Registered: Aug 2003
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lymewreck36
Frequent Contributor (1K+ posts)
Member # 4395
posted
p.s. Yeast CAN make you very hungry, and CAN cause constipation. I did not know you could give NYstatin to children?
bye
Posts: 1032 | From North Carolina | Registered: Aug 2003
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tick battler
Frequent Contributor (1K+ posts)
Member # 21113
posted
Amy-
Sorry to hear that your son is hurting. I can relate, as my 3 young children are in treatment. They are much better after a year so far. The insomnia is pretty much gone, but whenever we started new meds, it would come back for awhile.
Two of mine started developing stomach aches from zith. I did a post asking about zith hurting the stomach and several people said that it did. I would go back to the biaxin if you can, even with the insomnia.
In our experience, the insomnia was a herx and is just something you have to get through. It will get better over time. My kids would be up for 2 hours in the middle of the night. I would let them sleep in if they could and then take them to preschool whenever they woke up.
As long as he wants to go to school, that's great, but if he needs to sleep, I would just bring him in late. Have you spoken to his teacher about the lyme? I found it very helpful to do that.
The constant hunger can be the feeling you get when you are on the abx. I always have snacks for my children so that they don't get tummy aches or have that yucky feeling you get from the drugs. It seems that they get hungry soon after taking the meds.
When my daughter developed stomach aches, I stopped the meds and introduced them back one at a time to see which one was the cause. I would guess that zith is the likely problem however, since it appears that he didn't have tummy aches on the biaxin.
Also, I feel it is essential to track the symptoms on a calendar every day. I do it every night before bed for my entire family.
lymemomtooo
Frequent Contributor (1K+ posts)
Member # 5396
posted
Meds, including abx, give my daughter nausea. She had to get a picc line to get enough abx to be helpful. Good luck.lmt
Posts: 2360 | From SE PA | Registered: Mar 2004
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
I agree with pinelady. parasites/worms can cause these symptoms. Please do a search for parasite symptoms. Also check
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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lymewreck36
Frequent Contributor (1K+ posts)
Member # 4395
posted
Hi again Amy. Going to school has not been a problem. They have had energy issues over the years, and we made sure to provide protein snacks to keep their blood sugar even during the day.
I have always reported that my girls have lyme, and noted on permission slips that they are not allowed to go on ANY trip that ventures into tick habitats. For some reason, schools love to take kids into the woods.
With my middle daughter who has always been very neurological, I have had to go to bat for her almost every year when teachers get disgusted with her memory and assume she doesn't care or has an attitude problem.
I used to have this article about a school system that was sued because they did not support a kid with lyme disease issues. Once I showed that to my middle daughter's middle school principal, and boy did that school jump up to the plate.
You will find that you are an advocate for your child more than you would have been. But that has also made me more aware of my child's environment and teachers, which has been very positive.
My oldest daughter just started college. She is in the states, and we are still in Switzerland. It broke my heart in half to board the airplane without her.
But she is "pre-med," and already working on research, as a freshman, for parkinsons disease, funded by the NIH and Michael J. Fox.
Maybe she'll save us all one day.
I digress.
It will be O.K. When I feel sorry for myself and my children, I remember kids I see that are in wheel chairs and don't even know their own names, and I realize that I am still a lucky mommy.
STay in touch.
Mary
Posts: 1032 | From North Carolina | Registered: Aug 2003
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beths
Frequent Contributor (1K+ posts)
Member # 18864
posted
Constant hunger can also be an ulcer. I find my prilosec works much better if I take it on an empty stomach-1/2 hour before I eat breakfast.
Also, I cut back on chocolate, tea and coffee-my stomach almost feels fine.
Posts: 1276 | From maryland | Registered: Jan 2009
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2roads
Frequent Contributor (1K+ posts)
Member # 4409
posted
Amy,
The stomach aches before the meds may be due to Bartonella. Is the pain around the naval, and when it is at its worst your child feels acid reflux and vomitting? My child had these symptoms and a stomach biopsy came back pcr pos for BART.
She also had h-pylori, that's an easy one to check for. Do that check.
Wishing you and yours better days ahead-
2roads
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
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posted
He says the pain is in his upper abdominal area. I wonder if it is the Zith. He takes 1 250mg in the morning after breakfast. Then 1 after dinner. He says the stomach ache is all day but gets worse at night and wakes him. So I wonder if it is that?
He has the worst insomnia ever with Biaxin. It lasted months and just now got better after being off it for a month.
I wonder if he can try a new abx? Anyone know what else is given to kids? He is 10 and about 125 lbs.
Thanks!
-------------------- My lyme disease blog: http://lymetimes3.blogspot.com/ One BIG Lyme family! I tested CDC + 10/08 My mom Igenex + 11/08 & My brother Igenex + 4/09, My 2 boys some + & IND bands, clinical diagnosis 3/09 (youngest has Aspergers too) Posts: 470 | From Painesville, Ohio | Registered: Mar 2009
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I am researching it and it just seems safe. And it seems to make sense.
I want to try it because of my daughter.
I am taking her to her first lyme apt the 31st.
W Dr.S And I am nervous about it. I would love to treat her in a safe way.
So I am going to experiment on myself for us.
It may neutralize things for him to do some salt.
Definatly may make him go to the bathroom at first, but i believe in the long run things will get better.
I always believe that the new dormant bacteria awaken and cause symptoms again
So this is why we continue treatment.
But it is a hope for me that I will loose weight also on this protocol, Hahaaa
I really wish we could get together and talk. U could tell me alot.
-------------------- Let us fight with peace. Posts: 90 | From Niles, Ohio | Registered: Aug 2009
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tick battler
Frequent Contributor (1K+ posts)
Member # 21113
posted
Hi Amy,
The night pain is exactly what happened to my son when taking the zith. He was on it for a month and then was switched to omnicef by Dr. J and that was fine. There are other options for lyme treatment in children as well, such as amoxicillin.
Is your son in treatment for babesia? If so, and your son is taking Mepron, then it is best taken with a macrolide (zith, biaxin or ketek). My son who couldn't tolerate the zith was also taking Mepron and it bothered me that Dr. J put him on omnicef with it. 6 months later his babesia was no better. He had severe night sweats every night.
I pressed Dr. J to switch to biaxin and now he is really making progress with his babesia. His night sweats are almost gone.
Dr. J doesn't normally put really young children on biaxin because of the taste, but I had the pharmacist add raspberry flavoring and now they take it fine. All 3 of my young children are on it (twins age 5 and daughter age 2). All have babesia and bart too.
Why not just ask your LLMD if you can eliminate the zith for several days to see what happens? Seems like it's worth a try.
tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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lightparfait
Frequent Contributor (1K+ posts)
Member # 22022
posted
I would not hesitate now in trying some children's humaworm parasite and colon cleanse for one month.
This cannot hurt, and give you a starting point if you actually see parasites in the stool.
Also, probiotics are always great along with digestive enzymes.
Posts: 1009 | From NJ | Registered: Aug 2009
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
PARASITES and WORMS play a MAJOR role in Lyme Disease. Don't ignore this!!!!
They feed on the yeast and lower the immune system. When you get rid of the parasites the other infections will be easier to treat and you will have healthy children,
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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posted
Sorry I haven't been on for awhile! School started and it's been crazy trying to make sure they follow the 504 plans.
His stomach ache went away after I took him off the zithromax. He is back on Biaxin for now. We have an appointment in 2 weeks with the LLMD in WI.
I might ask him to try something new. Biaxin causes him insomnia.
I also got us all a better probiotic. Thanks for everyone's advice!!
-------------------- My lyme disease blog: http://lymetimes3.blogspot.com/ One BIG Lyme family! I tested CDC + 10/08 My mom Igenex + 11/08 & My brother Igenex + 4/09, My 2 boys some + & IND bands, clinical diagnosis 3/09 (youngest has Aspergers too) Posts: 470 | From Painesville, Ohio | Registered: Mar 2009
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