posted
I only took flagyl for 6 days last year whilst on doxy. I got ****ed off and just went straight for 750 mg. I started feeling really lethargic and stoned on it.
Really weird head sensations too. Mentally it chilled me right out to be honest. It was actually nice compared to the anxiety stuff from the doxy. By day 6 I was fairly ropey and had to call it quits.
I didnt have any doc support and I felt I needed to be on a good cell wall drug like bicillin to maximize its effectiveness.
I will go on tini soon.
-------------------- Pos BB and Bart(Q & H IGG pos) Began treat 1 year after start of illness. Diagnosed Feb 2007. Posts: 648 | From Ireland | Registered: Jan 2007
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posted
Dear feelfit, The last time I took Flagyl, I was just plain queasy and had diarrhea. My stomach was extremely unhappy. Someone told me that it was a herx. I have not been diagnosed yet, because I am still waiting for WB results. I had another odd experience with Amoxy.
I developed symptoms I did not have before going on it. The first few days of it, I had a sore throat and stiff neck and shoulders. It was really strange. After that, I got the symptoms with my stomach again. This was quite odd, since I never had that occur while on it before.
feelfit
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posted
Thanks guys. Any other experiences?
Posts: 3975 | From usa | Registered: Aug 2007
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CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
I loved Flagyl actually. I gave me energy, but also did weird things to my CNS. The LLMD said it would, and he was right. Weird numbness and tingling, quivers, etc.
I did 2 3 week pulses of it.
Posts: 3528 | From US | Registered: Apr 2007
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'Kete-tracker
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Member # 17189
posted
It just sank in my stomach like Lead. Blecch!Worst Immediate reaction to ANY pill I've taken for the Lyme. The I started taking 1/2-tabs twice as often. Helped. But, overall, it didn't seem to do much. Then again, I didn't use it long enough (<2 weeks) to really tell. :/
I understand it hits the cyst form of B.B., something I haven't treated properly. I may go back on it for a month- at normal ILADs dosing- & see how I do.
Posts: 1233 | From Dover, NH | Registered: Sep 2008
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posted
I pulsed this drug for 5 days a month - I would feel irritable and unnerved - would get upset at silly things. I had numbness and tingling in legs. Day five I would have pain at night (lying down) so bad couldn't sleep, would have to get up and do something. It would also give me chills and low grade fever.
Posts: 128 | From MICHIGAN | Registered: May 2008
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feelfit
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posted
thank you. I am not tolerating it very well. My heart races. It feels like my hearing comes and goe. I will have to look up the drug and it's potential side effects.
Feelfit
How ya doing Wiggy?
Posts: 3975 | From usa | Registered: Aug 2007
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posted
It was the toughest ABX that I dealt with when I was doing standard lyme treatment.
I had to pulse it at low doses and never felt good while on it and was glad to stop taking it.
Posts: 805 | From Utopia | Registered: Feb 2006
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Are these cyst busters really this necessary? Has anyone beaten Lyme w/o them? I mean late stage lyme.
One thing I never understand is how Dr. B supposedly had Lyme and knocked it into tomorrow with JUST Ceftin. How when he states you need to put out heavy ammunition? It's so contradictory.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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feelfit
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posted
I have had the same questions Seek. I know that there are two schools of thought with LLMDS...
Some say yes, necessary. Others NO. Again, it makes me nuts trying to sort it all out.
I am also starting to feel like a failure because I am having problems with tolerating meds. My head symptoms get totally unbearable.
I'm lost.
Posts: 3975 | From usa | Registered: Aug 2007
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feelfit
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posted
thanks jarjar for sharing Posts: 3975 | From usa | Registered: Aug 2007
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
I understand Feelfit. I hear so many here on 4-5 Abx, anti-malarials and more. Then I hear others who take one thing like Amoxicillin and are in remission after 6-8 months. It really makes you think some people just have so much more than Lyme or maybe not Lyme at all and something different. It's so complex.
The guessing by all the docs drives me absolutely up the wall. I know they do their best. It's hard to pop high-risk drugs on what if scenarios.
I just yet to have seen any Rx where I wake up and say wow, this truly makes me feel better. It's like either I'm in a bad rainstorm or a hurricane. The sun never shows. Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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feelfit
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posted
Same here Seek. And I can't find any umbrellas or storm shutters. Posts: 3975 | From usa | Registered: Aug 2007
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posted
Dear jarjar, That warning sounds like a good idea to me! All I know is, it is odd that I reacted to it the way I did after taking it before for other ailments. Why would I suddenly not tolerate it? I had the same issue with Amoxy. It could just be the yeast, though.
posted
Hi Feelfit, I am doing ok - herxing at the time waiting for it to pass. Mine is always leg related pain from waist down - can't stand up...terrible balance. I can't imagine doing flagyl full time. CPNHELP.ORG uses flagyl or tinidazole in its CAP protocol. We would only pulse as much as we could tolerate and stop. It seemed that most people tolerated tinidazole better than flagyl. More doctors would prescribe flagyl as its an old drug....Hang in there
Posts: 128 | From MICHIGAN | Registered: May 2008
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feelfit
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posted
Thank you Wiggy. I am going to call and ask for tini instead, see if I can handle that better.
Pulsing sounds good too! Hope that your herx ends soon!
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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LisaS
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Member # 10581
posted
I got weird depression feelings on it. My mind was racing and I was having yucky dark thoughts. Of course I never know if it's really caused by the abx I'm on or just happens to be a lyme symptom I'm going through.
Cass A
Frequent Contributor (1K+ posts)
Member # 11134
posted
It gave me transient global amnesia--meaning I didn't know who the f*** I was, what I was doing, or where I was, and had to work it all out based on observation of my environment at the time.
Best,
Cass A
Posts: 1245 | From Thousand Oaks, CA | Registered: Feb 2007
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posted
I didn't do well on Flagyl - tingling in arms and legs plus dizziness. I later tried Tindamax and had no major issues with it.
Posts: 131 | From PA | Registered: Aug 2007
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feelfit
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posted
I switched to tindamax today
Thank you everyone for sharing your experiences.
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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beachcomber
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posted
Ugh. Flagyl was the worst Rx I was ever on. After the first day I was literally on the living room floor 24/7. I started at 1500 mgs and had to cut back to 250 and work back up. I lasted 10 days. Was never happier to get off a med. Lyme seemed like a walk on the beach compared to how Flagyl disabled me.
posted
Sheesh...am I the ONLY one? I have the tingling, numbness, dizziness regardless of what rx I'm on, prior to ever taking rx - that was just some of the many other symptoms that made me aware something was terribly wrong with me - seems to be caused by all the infections. Albeit, maybe some of the rx's increase it...I can't really decipher.
That being said...I have been pulsing flagyl for the past month, 4 days on - 3 off, I haven't noticed anything other than my typical feeling bad, waxing/waning symptoms. TS
Posts: 566 | From West Coast | Registered: May 2008
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feelfit
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posted
Well thanks beachcomber for the shared experience.
TS I always have those sx too but they are exacerbated to my humanly limits with flagyl.
Talk about wired..oooooooooeeeeeeee!!!! No sleep, and when I did serpents with womens heads spewing greeen phlegm....yuck.
Oh and maybe it is the combo of flagyl and rocephin? When I stoped the flagyl for 2 days I slept awesome. Was not ready to run 3 marathons....had to have been the flagyl.
Thanks all, we'll se how the tindamax goes
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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springshowers
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posted
What have people experienced doing IV Flagyl?
Posts: 2747 | From Unites States Of America | Registered: Apr 2009
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Cass A
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posted
From the pills--
Suddenly, I became aware I was sitting. I have no idea how long I didn't even know that!!!
I had no idea who I was, where I was, what I was doing.
I was sorting mail--I had no idea what I was holding in my hand, what I was supposed to do with it......
Later, I found out this state--complete not-knowing about ANYTHING--is called Global Transient Amnesia.
Don't recommend it.
What if I'd been driving??
Best,
Cass A
Posts: 1245 | From Thousand Oaks, CA | Registered: Feb 2007
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