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» LymeNet Flash » Questions and Discussion » Medical Questions » Help me with my list of what to be tested for please!

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Author Topic: Help me with my list of what to be tested for please!
TxLymie
LymeNet Contributor
Member # 20847

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Something I read on several other posts was that when we have Lyme that many of our latent viruses can re-activate? Am I getting that right?

I know for me I have had an active case of EBV (not latent) 3 times this year.I've known I had EBV since i had mono when I was 12..but isn't it rare for that to re-activate? I'm beginning to wonder if this virus might be more of my problem than Lyme.

But this last round of abx (Ceftin for 3 weeks so far) has been HORRIBLE. I want to just stop the meds! I mean is this herxing...for real? How do they really know if Herx really exists..I mean maybe it is just the abx that makes us feel bad. Very few seem to get better with abx, I'm confused!!!! I felt a whole lot better off abx than on.

Also, I'm getting myself very confused and I get so tired I can't follow up on half of what I read here. From what I am reading it looks like I should be tested for:

HHV-6
All the herpes viruses
Anemia
Thyroid
Adrenal disfunction
Hormone levels
Candida
enterovirus
Cpn
Parvovirus
Q fever
Iron deficiency
B12 deficiency
God knows what else.....

I have already been tested for:

EBV (+) for chronic mono
Vit D - deficient
Thyroid (normal but I don't believe it)
Co infections (none according to labs)
ATP levels (very low...taking Glutathione shots)

What else have I missed...I know there are 100s more but my God...I don't have enough blood for them to take to do all these tests. I almost fainted last time I gave 12 vials.

Does anyone ever really get better? Seems once you have Lyme that is just scratching the surface...does Lyme give us all these other problems too? This sucks.

--------------------
TxLymie
IgG-Negative
IgM - Postive bands 23 and 41

Other dx: 2000: Endometriosis 2009: Chronic EBV, Mycoplasma infection, HHV6, H.pylori
Posts: 297 | From Houston | Registered: Jun 2009  |  IP: Logged | Report this post to a Moderator
bettyg
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anyone? on page 2


did you read thru dr. burrascano's 08 lyme guidelines? not sure if he suggests things there or not.
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TxLymie
LymeNet Contributor
Member # 20847

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Thanks Betty. I've read Burrascano's guidelines. Just too tired to thumb thru it again but I guess I need to.

I just can't believe how every day I hear of some new infection/virus/bacteria etc that I need to get tested for. This is all consuming.

I see my Dr. next week so I guess I'll just ask for a lot of these tests to be done and then deal with it if I know I have it.

--------------------
TxLymie
IgG-Negative
IgM - Postive bands 23 and 41

Other dx: 2000: Endometriosis 2009: Chronic EBV, Mycoplasma infection, HHV6, H.pylori
Posts: 297 | From Houston | Registered: Jun 2009  |  IP: Logged | Report this post to a Moderator
terri3boys
LymeNet Contributor
Member # 12993

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It's about 10:30pm on Thursday night............

I'm sending you a PM because I can't find your email address. I hope you are still up and get this message!

terri3boys
Posts: 268 | From Texas | Registered: Aug 2007  |  IP: Logged | Report this post to a Moderator
bettyg
Unregistered


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terri, she's logged off here, but if she's on her pc; she would get your pm directly [Smile]
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