LymeNet Flash: TELL ME WHAT TO DO

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»	LymeNet Flash » Questions and Discussion » Medical Questions » TELL ME WHAT TO DO

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Topic: TELL ME WHAT TO DO

louis2
Member
Member # 9238

posted

I am so sick constant headache right between eyes
neck cracking feel miserable just fiished 5 days of factive saturday i need help my ears are buzzing my head feels full what does these symptoms sound like i have been sick on and off 20yrs . have had positives for lyme , mycoplasma , bart, hemobart,babs but i just cant get better . doctor wants me to start low dose naltraxone , and then maybe riamet. does anyone else have these type headaches, neck cracking and pain etc and how did you make it go away.

Posts: 39 | From white plains, newyork | Registered: May 2006 | IP: Logged |

Keebler
Honored Contributor (25K+ posts)
Member # 12673

posted

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Do you have an ILADS-educated or ILADS-member LLMD (lyme literate medical doctor)?

You said you had positives for various TBD (tick-borne diseases) . . . have you had any treatment?

Yes, many lyme/TBD patients have the symptoms you describe. Treating infection and supporting the body are key.

Are you supplementing with magnesium and fish oil? Those can help but follow the time table your doctor (hopefully) outlined. Magnesium and calcium need to be take several hours apart for any abx (antibiotic).

Are you getting enough rest, lying down as soon as you feel the headache or neck cracking flare up? Rest is vital for our bodies to be able to handle the task at hand.

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Posts: 48021 | From Tree House | Registered: Jul 2007 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

Sounds like you are herxing bigtime.

I do hope you have a good LLMD. Does he/she recommend that you back off the meds when herxing?

It will take quite awhile to get you well. Try to be patient!

[group hug]

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001 | IP: Logged |

dguy
LymeNet Contributor
Member # 8979

posted

As you probably know, headaches have many different causes, which is why finding the right treatment can be so tough.

I had near daily headaches around my eyes for almost 10 years. By experimentation with vitamin D, I learned they were related to high vitamin 1,25D levels. My 25D (the commonly tested kind) was low because it was being excessively converted to 1,25D. Many lymies experience similar.

By restricting my dietary vitamin D intake and limiting light exposure, the chronic headache I had for most of a decade virtually disappeared within about a month.

To see if this might fit for you, have BOTH your 25D and 1,25D levels tested.

Posts: 727 | From USA | Registered: Mar 2006 | IP: Logged |

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