Topic: Probable Cause for my Electric Headaches/Seizure-like Episodes
lymeladyinNY
Frequent Contributor (1K+ posts)
Member # 10235
posted
Eureka!! I was reading the list of bartonella symptoms in "The Lyme Disease Solution" by Dr. S. and read the following:
"Episodes of confusion and disorientation that are usually transient (and very scary); often can be seizure-like in nature"
Other symptoms on the list fit me perfectly as well.
I knew I had bartonella and have been treating it for 2-3 week periods, followed by 2-3 week periods of treating Lyme, then 2-3 week periods of treating babs.
I was in my Lyme treatment phase when I caught a cold from my kids. It seems the bartonella took advantage of me when I was fighting the cold virus and came raging back.
I started rifampin and I had two hellish nights of hand-flapping, toe-twitching, chest-aching, nerve-shooting, gibberish-speaking, head-banging misery.
I'm now on day 4 of rifampin and I feel a lot better already!! The whole thing was a bartonella flare! I no longer have the electric headache in the back of my head nor the feeling that my head will explode in an electric storm headache.
Wow, sometimes I think the co-infections are much worse than Lyme itself.
Thanks, everybody, for listening.
- Lymelady Julie
-------------------- I want to be free Posts: 1170 | From Endicott, NY | Registered: Sep 2006
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Hey LymeLady,
Glad that you are feeling better and that you seem to have found the culprit! Hope you continue to get better and better.
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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I attribute the majority of hubby's crazy neuro symptoms to bart or BLO or the mystery bug. For him bart and babs have been much worse than Lyme in my opinion.
I remember reading some of your posts before and I am not sure if you have ever treated bart continuously for 4 - 6 months? Of course, that hasn't gotten rid of it for hubby yet, but he does seem to do better on continuous treatment.
Hubby's new treatment was supposed to be pulsing Factive 7 days on and 7 days off. We switched his treatment to 5 days on and 5 days off but still not sure that is going to work.
Hubby says to tell you that someday Dorothy is going to fly. Have you ever seen the movie "Twister" with Helen Hunt? Hubby says that sometime all the pieces are going to come together for him and for you and like in the movie you both will fly.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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lymeladyinNY
Frequent Contributor (1K+ posts)
Member # 10235
posted
Hi Bea, yes, bart and babs have been much worse for me than Lyme, too.
I have treated bart continuously with levaquin in the past. It took me out of a terrible time I was having with full body muscle spasms. They were so bad I looked like the girl from the Exorcist.
I'm going to ask my LLMD on Monday about switching back to Levaquin. Or maybe staying on Rifampin and adding in Factive. I just know that what I'm doing right now isn't working that well.
Yes, I've seen Twister. Tell hubby that I KNOW we can fly one day. I feel I'm almost there and I hope he does, too!
- Lymelady Julie
-------------------- I want to be free Posts: 1170 | From Endicott, NY | Registered: Sep 2006
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