13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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posted
Go. - better safe than sorry especially with your symptoms
Posts: 856 | From MA | Registered: Jul 2009
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
"My last CRP was 11.62, 3 times the highest risk for heart attack, sed rate high also. I am worried based on this they will admit me."
With that & symptoms of a heart attack, you're still here typing????
I don't care if you want to go or not, get your behind over there young lady!!!!
You can tell us how much it s*cked & what a waste of time it was later. Better safe than sorry.
How long have you had the PICC in?NO DON'T ANSWER THAT - JUST GO!!!!
Better they should irritate, annoy & belittle you, than take a chance. I say go rule it out!
[ 10-02-2009, 06:22 PM: Message edited by: AliG ]
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
What is your temperature?
Measure your heart rate for 60 seconds.
Blood pressure?
Is your color good? Lips blue?
Are you sweating? Getting enough fluids?
Carol
Posts: 6947 | From Lancaster, PA | Registered: Feb 2004
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Temp is 99.5, Color a little pale, heart rate 120, didn't check bp, no blue lips, some sweating off and on.
Tightness across chest, short of breath, Blake just got home, leaving now.
BTW that was the "High Sensitivity CRP" test, not the general one, that measures cardiac/stroke risk.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
Cough a lot, I've heard that coughing your way to the ER can save you if you're having a heart attack.
I'm glad you're going. Let us know how you make out!
I hope it's nothing & I'm saying a prayer that I've yelled at you for no reason.
hugs & prayers, Ali
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
Can you take an aspirin?
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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posted
I know that the ER is a hassle (and that's understatement) but it's best to be sorry or a little embarrassed if something really is wrong with you.
I would go, just to make sure. And Good Lord, we knows what a hassle that is. Will anyone come with you??????????
Oh yeah, take an aspirin and coughing the whole weigh there helps I read.
-------------------- ---Beautiful Disaster--- IgeneX WB: IgM: 18+, 31+, 41+, 58+, IgG: 31++, 39 IND, 41++, 31kda Epitope Test: Positive Labcorp: IgM: 23+, 41+ No LLMD due to money since Sept 2008. Was on Doxy, I.V. Rocephin (30 days), Flagyl. Also dx with Bartonella. Posts: 139 | From United States, East Coast-ish | Registered: Aug 2009
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bettyg
Unregistered
posted
our paramedics have said take an aspirin as soon as this happens and immediately upon getting to ER/hospital.
tracy, praying for you; please have blake check in later with us. hugs/kisses
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gwb
Frequent Contributor (1K+ posts)
Member # 7273
posted
Please go to ER. Better safe than sorry. You are in our prayers.
Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Home from the ER, all is well. I had a chest xray, EKG, spiral CT scan of my chest (D-Dimer was high, which can be indicative of a pulmonary embolism), lots of bloodwork, IV fluids, IV morphine, IV anti nausea meds.....ended up in anaphylaxis from the morphine, so then IV Benadryl.
Finally home. It's just the Lyme.....but you never know unless you get it checked!
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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posted
Glad you went and got it checked...........SO much better safe than sorry.
-------------------- TL Posts: 365 | From OK | Registered: Jul 2007
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Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
Wow, Tracy you really freaked me out with that post. I've been saying prayers for you. I'm glad everything checked out ok.
Posts: 2232 | From USA | Registered: Aug 2009
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bettyg
Unregistered
posted
tracy, thx for checking in and glad all those things were done; better safe than sorry. hugs
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posted
"..but you never know unless you get it checked!"
So the moral of the story is...follow your own advice!
Posts: 365 | From Sylvania | Registered: Aug 2008
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
Hey, a pulmonary embolism's nothing to sneeze at either.
I'm glad you survived the ER, sorry you had to go through so much torture & glad that you came back & posted quickly so we didn't have to keep worrying about you.
Are you feeling any better after all that? Did the pain & dizziness subside?
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Wow Tracy, it sounds like there is never a dull day in your household. Anaphylaxis for you, your kid, and more. I really hope in the long run your treatment pays off and you restore your health. Glad you're OK.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Sorry this happed Tracy. I am allergic to Morphine and demerol and derivatives. So I know how you feel. Did you get the hives too? I once got a bp of 60/40 before they realized what was going on. They was running all over the place. From then on I knew.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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posted
You just started claforan, known to cause major herx. I think this may be the cause of your symptoms.
I had a "heart herx" on another drug and went to the ER, where of course they thought I was nuts and couldn't find anything, never heard of a herx.
Posts: 8430 | From Not available | Registered: Oct 2000
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WildCondor
Unregistered
posted
Tracy you need a break, wow. What does your LLMD have to say about the PICC line in and the blood clotting issue? Anytime you get a fever with a PICC line too, get it checked out and have cultures drawn from the PICC line and from the other arm to test for sepsis. It's worth the precaution, it may or not be, but you can never be too sure.
posted
Missed all the excitement! Glad you are OK!
Take care and keep that advice in mind for the future.
"You never know unless you get it checked!"
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
I am exhausted today, but no chest pain, no shortness of breath, still a little cough and junky in my chest from the anaphylaxis.
I did not get hives, what I got was a bright red sunburn like rash all over my chest and face, my nose swelled up like I had a cold and couldn't breathe through it, my chest felt tight like I imagine it feels to have asthma, hard to get air in, I was coughing like I suddenly had bronchitis, and my voice suddenly became extremely hoarse.
I didn't say anything for over an hour because I had no idea what was causing it.....I thought, I just had a chest xray and CT scan, what could possibly be wrong with my chest? Then as it got harder and harder to breathe I suddenly remembered Cody's words when he had the anaphylactic shock a couple of months ago, that he was having trouble getting air in...and I knew what was happening.
Turns out, after a little googling, Morphine is one of the most common drugs that cause this.
I am supposed to start 1 mg of Coumadin a day to avoid clots, due to the clotting history and clotting disorder, just waiting to get blood drawn to start that.
No major herx as of yet! My main concern last night in going to the ER was just as the home nurse had said, that perhaps the PICC had migrated a bit into my heart and needed to be pulled back a little, but it was fine.
I am exhausted today and in bed, a little achey, kind of my usual bad day....probably the herx is starting....don't know yet. About to infuse.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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Anaphylaxis for you, your kid, and more. I really hope in the long run your treatment pays off and you restore your health. Glad you're OK.
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