posted
Detoxamin is something my LLMD has asked me to research as she is thinking of having me use this in the near future. Since she knows I prefer to understand the whys of my treatment I would love to hear from anyone out there who has used or has experience with this.
My current situation--several years of lyme treatment with abx and a few more years combining/alternating with alternatives. Doing very well without any abx but using samento and a few other supplements per ART testing.
Can't wait to hear anyone's experiences.
Posts: 132 | From SE Pa | Registered: May 2006
| IP: Logged |
Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
What is the brand on the Detoxamin, and how is it taken (pills, suppositories, etc)? I think I might have taken that a long time ago.
Are you using the Nutramedix brand Samento? Just curious because I am thinking of starting it.
Posts: 4590 | From Midwest | Registered: Jun 2008
| IP: Logged |
I am using the Nutramedix as has my daughter. Mine was started by an ART practioner while my daughter's was prescribed by the LLMD.
Posts: 132 | From SE Pa | Registered: May 2006
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- There have been threads about this is the past, you might use the search feature to read those.
-- Note: the ND who suggested this did not suggest anything else to go along with this. He had other patients do very well with this. Not for me, though.
I had a horrible time with the Detoxamin suppositories. Horrible. I deal with lots of inner ear stuff and sensory triggered seizures anyway, however, I had many more seizures, far more intense and damaging and triggered by even much slighter sounds than usual.
I think this does not capture the metals adequately. - or something was VERY wrong with how it worked with my body/brain.
I tired this a couple of different times - months apart. The very first day after using this, I did have better brain clarity. But it went down hill fast on the 2nd and 3rd day. I stopped. Tried a few months later and once again - always the same horrible dizziness and fried brain effect.
The EDTA in this - I believe- MUST be accompanied by other things that will also capture the circulation heavy metals. Or . . . . I'm not sure.
I do also have porphyria, so my liver simply does not help me very much in getting rid of toxins. So, my experience may have been different than others. However, many lyme patients do also have an problem with the liver not working as it should.
Be sure you at least have excellent liver support - I don't mean doing "cleanses" or "detox" - but the ongoing, everyday supportive supplements. Milk Thistle is just one. NAC another.
I do know that others out there have not had the same experience as I have, but I do caution highly about this.
I almost went through the plate glass window of a store from a startle the day after trying this for the last time.
I don't know if the product has been changed - I used this at least 5 years ago - and it may have been 6 years ago or a little more. -
[ 10-07-2009, 02:24 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
Actually, that link does not take me where I wanted to go - but I'm too tired to figure it out now. Be sure that you get a comprehensive plan in place before you do anything to upset the metals. Klinghardt has a full protocol at one of his links. His work is EXCELLENT to consider as you and your doctor design your individualized plan. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I found this in my file - a recent thread:
I am also very fond of all the chinese teapills that are so inexpensive and I have a selection from which to choose/tensor and most of them work like a charm, especially for keeping liver/kidney open when detox is pushing things.
Some of the binders that were mentioned are actually mobilizers, not binders, and one has to be very careful using any of them, as you mentioned.
The actual binders do not mobilize or stir up metals. They are taken, to form bulk, to be waiting downline to wrap up eventual metal molecules and carry them out in the stool in order to avoid reabsorption and redistribution.
I will mark what I consider binders only:
Activated Charcoal (Binder)
Algas Metal Detox Liquid Extract, NutraMedix
Alpha Lipoic Acid
CheleX by Xymogen
Chemet Prescription (Lead)= DMSA
Chlorella (Partially binder, mobilizes some metals from extracellular spaces)
Cilantro (tincture is serious brain detox, when rubbed into skin especially - has to be taken very late in metal detox phase and very carefully - is not a binder - )
DMSA
Detoxamin
EDTA
Jarrow's Heavy Metal Detox
NAC
Modified Fruit Pectin (binder)
Metal Magnet By Enzymatic Therapy
Modifilan - Pure Brown Seaweed Extract
Natural Cellular Defense by Waiora
Nutramedix Zeolite - detox lead and nickel
Nurtramedix Zeolite HP
Parsley Tincture
Phospholipid Exchange (carrier, containing EDTA)
Vitamin C Found to Lower Levels of Lead in Blood
Unless I commented on these as binders, I would consider all the others as mobilizers to be used with great caution and with guidance from someone who knows.
Never detox metals from the brain until after the gut and other parts have been worked on.
If you use cilantro for the brain while the rest of the body is still heavy metal toxic, it can cause real problems when the metals are forced down from the brain and move into the other still loaded body compartments. You will have major collisions.
Binders are:
Chlorella, Pectin, chitosan, betasitosterol, charcoal, potatoes, clay, and some of the mixed fibers that are available.
--- Sorry I mislead you: The walnuts of course have a lot of fiber, but they avoid for me ever being constipated when taking binders.
Cholestyramine for instance can be very constipating and may need something alongside to avoid that.
To make my favorite candied walnuts: Put a bit of butter in a pan, add some organic cane sugar, about 1/3 cup, add a couple cups of walnuts, a little cinnamon, stir all together until the sugar is melted and starts to stick to the alnuts. It only takes 3-4 minutes. Be careful to have heat not too high.
Pour the sugared nuts on a cool surface (a bit parchment paper) to let them cool off. Mine never have much of a chance to cool off .......
If it weren't so late right now, I would end up in the kitchen doing just that.
Take care.
P.S. Metals are minerals and minerals are metals. So whatever binds metals also binds your good minerals. Yes, as Terry said, take them away from each other.
Binders should be taken 30 minutes before meals, or at bedtime. I found a very reasonable chitosan at Swanson Vitamins which can be taken with the meal.
(GiGi) -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
Topic: How many of you have nickel allergy? (ie: earrings, etc)
GiGi writes in one reply:
It has been my experience (and that of Dr. K.), that NAET does not seem to be permanent. I was "fortunate" to having been treated with NAET by Devi N. in Long Beach herself for many weeks. She is a wonderful person. But......
I never really knew what a brain fog felt like. I used to watch people sitting in line waiting for their treatment and heard them talking about brain fog - always wondering what they were talking about. It didn't take long for me to find out myself.
The longer I was treated there, the more the brain fog moved in. And it was something I would not want to repeat ever again.
Today I know with absolute certainty that activating all meridians, which is part of NAET treatment, helped recirculate all the metals and chemicals, all neurotoxins, and instead of eliminating the toxins, they moved into the brain and central nervous system.
I am still having to detox heavy metals to this very day. They are much more difficult to eliminate once they have entered the brain and Central Nervous System.
If you suffer from one or a multitude of silent or noticable dysregulations = allergies, go to www.allergie-immun.de/Englisch and/or follow the thread that has been moving here on Lymenet for many months,
That therapy works and starts to turn your immun system around to recognize the toxins which it has not been able to do, probably for a long time.
Take care
(GiGi) -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
I use Detoxamin and more and more practitioners seem to be starting to as well. The EDTA may help not only with heavy metals but even with biofilms to some extent. The come only in suppository form. It probably is a good idea to have some heavy metal binding products on board as well like chlorella, zeolite, pectasol, etc.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
| IP: Logged |
posted
Thanks for all the replies. I did try a search but I got many that were not specific. To search on subject only would have been better.
Sounds like I need to do more research and education. My LLMD would be "supervising" the use of the detoxamin but she knows that I need to know the whys to get the results. Ever since being misdiagosed with this disease I NEVER just take the word of a doctor without understanding(at least to the best of my limited medical ability) what the goal of the treatment is.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic