Topic: if you are depressed-even suicidal about chronic illness, read this:
lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
I CUT AND PASTED THE FOLLOWING FROM PAM WEINTRAUB'S NEWEST ARTICLE IN PSYCHOLOGY TODAY
WHETHER YOU HAVE CHRONIC FATIGUE OR LYME OR ANY OTHER OF THE BUGS...THIS SHOULD GIVE YOU HOPE TO HANG ON.
Hillary Johnson, the author of Osler's Web: Inside the Labyrinth of the Chronic Fatigue Sydrome Epidemic, has said it best in her blog:
"A nova has appeared in the constellation. We knew it would appear some day-but in our lifetimes? Many of us, having given up on recovery, had merely hoped we might live long enough to understand the scientific basis of our suffering. Thousands, perhaps hundreds of thousands, of us didn't make it, or simply gave up. Between the time Dr. Judy Mikovits of the Whittemore Peterson Institute and her collaborators at the National Cancer Institute and the Cleveland Clinic submitted their paper to Science and today, we know at least one woman, the British citizen Pamela Weston, chose assisted suicide rather than go on; in the note she left behind she wrote that she hoped her choice would, in some part, move the UK medical research forward. Might Weston have hung on had she known about XMRV? We grieve for those who couldn't wait, couldn't hang on, and acknowledge their bravery. For the rest of us, this is a day to celebrate.
I urge everyone to read this as well as Johnson's prior post, a copy of a speech she recently gave in London in May 2009.
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
I dunno it just yet another infection associated with disease with unknown etiology. Nothing came out of those associations so far (and there been plenty more with more "popular" disease such as MS/ALS/Alzheimers)
Posts: 856 | From MA | Registered: Jul 2009
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bettyg
Unregistered
posted
in activism, i broke up the above so we neuros could read it; any chance you could copy that here? thx
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