posted
I have that, i wear baggy t shirts and only put on regular cloths when i need to go out. I thought this was because of my lesions though.
hopefully someone will post it is a common problem even without lesions.
regards
-------------------- 1999 CFS, 2002 CMV Myco pneumonia 1 year antibiotics on and off 2002 EBV, 2009 Positive Igenex Borellia and Babesia, Brain mri severe white matter disease Monoclonal Gammopathy. On and off antibiotics since sept. March 9 started iv antibiotics Posts: 328 | From somewhereelse | Registered: Apr 2009
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posted
My daughter had this. Socks literally hurt her. It's resolved with treatment.
Posts: 524 | From Hudson Valley, NY | Registered: Jul 2007
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tick battler
Frequent Contributor (1K+ posts)
Member # 21113
posted
Yes, my 5 year old son had this prior to treatment. He would only wear certain shirts and all tags had to be removed. It was always an ordeal to get him to wear new clothes as he outgrew his old ones.
He also would say, "Don't touch me" if I put my hand on his shoulder. He definitely had sensory issues.
He has been in treatment for over a year and is significantly improved.
Hope this helps,
tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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joalo
Frequent Contributor (1K+ posts)
Member # 12752
posted
I could barely stand to be touched at all before lyme treatment. It has completely gone away now.
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
I found that I really had to stick with cotton & silk. Any unnatural fibers would make me nuts.
I can remember, a long LONG time ago, taking off various articles of clothing while driving home from work because I just had to get them OFF me. It was a feeling like my skin couldn't breathe.
Thank God I never got into an accident or got caught. I used to make sure there were no cars/trucks anywhere near me though.
It's really hard to take pantyhose off while driving a stick shift (and that was BEFORE they invented cruise control). I really did some stupid things in my younger years.
I've gotten so used to checking labels to avoid man-made materials and my wardrobe has been converted. I don't know if I'd still have the problem with pantyhose now. I've managed to avoid wearing them.
You might find natural fibers helpful, if clothing's getting on your nerves.
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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posted
Wearing a bra is unbearable! I wear my husbands XXL shirts for the loose comfort. Socks can only be tolerated for a few hours, then I can't wait to get them off. My skin is so sensitive I can't even stand to have my cat on my lap - his feet feel like spikes digging into my thighs.
Posts: 69 | From So Cal | Registered: Jun 2007
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posted
Yes, I wore sweats and camis instead of bras. Seldom wore socks. Only put on "real" clothes when I had to.
I couldn't wear my watch that I had worn for 30 years day and night.
The good news is, that goes away when you get better.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Sheets, too, they have to be total cotton - and high thread count as the lower thread counts are irritating to my skin (who would've ever thought? I am not a thread count snob but my body sure requires at least 300, it seems.)
I can only wear the softest, and best cotton knit. Even then, it has to be tagless and turned inside out.
If it has even 1% of a synthetic fiber in it, I can't wear it for 2 minutes.
Land's End and LLBean both make good knit shirts for women and for men (and kids). I got a bunch from JCP half the price, but I can't wear them. Something about the quality of the cotton (or the nature of the chemical dye) is very irritating not so much to skin but to my nervous system.
I think this has much more to do with the nervous system than with the skin. But, of course, the skin has lots of nerve endings.
Gotu Kota helps with this, to a degree. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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IckyTicky
Frequent Contributor (1K+ posts)
Member # 21466
posted
I don't know how common it is, but it's a major symptom of mine. I can't fold laundry, especially warm laundry. It makes me "irk". And I can't crochet anymore because the yarn irritates the nerves in my fingers too much. I can't let my feet or hands rub on carpet or jeans. I've been this way since I was a teenager. I'm 32 now.
-------------------- IGM: 18+, 23+, 30+, 31+++, 34+, 39IND, 41++, 58+++, 66+, 83-93IND IGG: 31+, 39IND, 41+ Also positive for Mycoplasma Pneumoniae and RMSF. Whole family of 5 dx with Lyme. Posts: 1014 | From Texas | Registered: Jul 2009
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