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» LymeNet Flash » Questions and Discussion » Medical Questions » LLMD appt. I'm starting ceftriaxone injections..any advice?

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Author Topic: LLMD appt. I'm starting ceftriaxone injections..any advice?
IckyTicky
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After 18 months on orals I am starting on Rocephin (ceftriaxone) itramuscular injections. My tummy needs a break and he refuses to rx Bicillin.

Starting out this month at only 1 gram a week. (I'm a chronic neuro lyme with lots of CNS symptoms... I've had LD for at least 21 years)

It is mixed with lidocaine and given as two injections, one in each cheek.

Had my first injections yesterday. I guess the lidocaine makes the huge difference because those are looong needles and I didn't feel any pain really at all. So that's good.

Anyways, I can't give myself the injections. My 16 yr old and husband were given lessons on how to do it for me and so my daughter gives me the injections. (She is an aspiring LLMD [Smile]

So my LLMD told me that an allergic reaction can occur later on... usually after the first few times, sometimes it can be months of no problems and then a sudden allergic reaction. So I have benedryl to take at the first sign (itching I guess)

I am also going to start on Samento a couple days after injections. My little ones have been taken off of abx for now and put on Samento. Except for my oldest daughter who definately needs long term abx treatment.

Is there anything else I should know about IM ceftriaxone? Like is there anything that absolutely should not be taken with it?
Has anyone had good results with IM? I know IV would be better but we just can't afford IV.

Does starting out at 1 gm a week sound okay? I'm already starting to herx some... headache started last night and fatigue today. I'm about to go take a nap. But otherwise I actually am feeling pretty good!

Any advice or insite would be appreciated.

--------------------
IGM: 18+, 23+, 30+, 31+++, 34+, 39IND, 41++, 58+++, 66+, 83-93IND
IGG: 31+, 39IND, 41+
Also positive for Mycoplasma Pneumoniae and RMSF.
Whole family of 5 dx with Lyme.

Posts: 1014 | From Texas | Registered: Jul 2009  |  IP: Logged | Report this post to a Moderator
coltman
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Hmm imho frankly bicillin is much superior option to IM ceftriaxone . IM ceftriaxone has poor bioavailabilty and short half life ( 5-7 hours).

So to maintain constant concentration you would have to do it twice a day. If you doing it only it once a week... its worse than placebo. Because broad spectrum cephalosporins (such as ceftriaxone) are one of the worst offenders when it comes to breeding c.difficile. And by doing it once a week you make perfect breeding ground for them.

So really I am at loss why would anyone presribe it like this. If I were you I would just buy bicillin yourself -it is cheap (depending on your dose $50-$100/ month) and it much better than ceftriaxone - you can make shots only twice a week (2.4 miu) , it doesnt breed c. difficile and it doesnt make gallbladder stones.

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Haley
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Don't take any calcium containing products while this is being absorbed into your system. I'm sure a small amount would not do anything but don't drink tons of milk of magnesia or anything like that.
Posts: 2232 | From USA | Registered: Aug 2009  |  IP: Logged | Report this post to a Moderator
METALLlC BLUE
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Very odd that he's going with IM C instead of IM B. *shrug*. Watch the gallbladder, might consider Actigal to keep it from causing problems in the future. Lower doses of IM C shouldn't be a problem, but you never know -- just in case.

--------------------
I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.

E-mail: [email protected]

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IckyTicky
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The reason he does not rx IM Bicillin is because it stays in your system too long and people can develop severe allergic reactions after awhile of using it.

So can Rocephin, but with Bicillin it stays in your system for ..what a week? And if you develop an allergic reaction then it takes a week to get out of your system, right? Verses Rocephin because it doesn't take as long to get out of your system.

Oh, and I forgot to mention that he was going to take me off abx completely for awhile but I was afraid to because every time I've tried to take a short break my symptoms come back at breakneck speed. He says the abx is causing my bacteria killers to be too low and my viral killers are too high (and I've been coming down with viruses this past month.. cold sore and shingles) so he put me on an antiviral. That may be the reason he only has me on IM only once a week right now.

I don't even know what C. Diff is really. Is there something I can take to prevent that?

Where do you buy Bicillin without an rx?

--------------------
IGM: 18+, 23+, 30+, 31+++, 34+, 39IND, 41++, 58+++, 66+, 83-93IND
IGG: 31+, 39IND, 41+
Also positive for Mycoplasma Pneumoniae and RMSF.
Whole family of 5 dx with Lyme.

Posts: 1014 | From Texas | Registered: Jul 2009  |  IP: Logged | Report this post to a Moderator
coltman
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quote:
Originally posted by IckyTicky:
The reason he does not rx IM Bicillin is because it stays in your system too long and people can develop severe allergic reactions after awhile of using it.

I haven't ever heard that you suddenly become allergic to bicillin if you were never before .

quote:

So can Rocephin, but with Bicillin it stays in your system for ..what a week?

Long acting form actually stays for a month (at lower concentrations but nevertheless).

quote:

And if you develop an allergic reaction then it
takes a week to get out of your system, right?

Umm test first with low dose short acting penicillin under Dr supervision? If you allergic you cant take it all. But you either allergic either not .


quote:

That may be the reason he only has me on IM only once a week right now.

Like I said I wouldnt do this personally . I stated reasons why above. You can find more information on pubmed on those issues (thats where I found it)

quote:

I don't even know what C. Diff is really. Is there something I can take to prevent that?

Overgrowth of resistant strains of bad bacteria . Probiotics help with this , but you still not guaranteed to avoid it. Broad spectrum cell wall abx are generally worst offenders (and ceftriaxon is exactly that).Bicillin is narrow spectrum and it causes less problems

Here is a list (and there are papers on pubmed if you search ):
http://www.cdiffsupport.com/phpBB/viewtopic.php?t=636&postdays=0&postorder=asc&start=0&sid=d98193b873a1a1d9d89bae7905779321

And on top of using worst offender drug you also using it at worst regimen possible (low dose with long intervals)- thats perfect recipe for resistance build up .


quote:

Where do you buy Bicillin without an rx?

goldpharma.com , pharmacy101.com .I hear people buy them in mexico for cheap (since you are in TX its pretty close for you)
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abigail
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I did IM Claforan shots. I got "sterile" cysts. Might want to do some research. Sorry I'm not much help right now. Drank some wine. Big headache now. Waiting for the Treximet to kick in. Won't do that again.

--------------------
Dying is easy. Living is harder.

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IckyTicky
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Yes, it's pretty well known that you can develop severe allergic reactions to penicillin. I'm not allergic to it, I've had it orally before and have to every time I have dental work due to a heart murmer. Even my dentist has told me that it's not uncommon to develop an allergy after you've been fine with it your whole life.

I dont know how long each stays in your system..I only know that my LLMD says Bicillin stays much longer so that if you have an allergic reaction suddenly show up then you are worse off for it than if you are on Rocephin.

Again, the reason for the 1 a week right now is because I insisted I need to stay on abx instead of taking a break and my tummy needs a rest. But my bacteria killers are very low (something about neutrophils and some other "phils") and virus are high. Hence the reason for only 1 a week this month. Then I guess will start upping it to more times a week.
Thanks for the info on C.diff I'll be sure to take even more probiotics. From what I understand, the Rocephin is the worse culprit but any abx can cause the C.diff.. right?

Okay, thanks anyways guys

--------------------
IGM: 18+, 23+, 30+, 31+++, 34+, 39IND, 41++, 58+++, 66+, 83-93IND
IGG: 31+, 39IND, 41+
Also positive for Mycoplasma Pneumoniae and RMSF.
Whole family of 5 dx with Lyme.

Posts: 1014 | From Texas | Registered: Jul 2009  |  IP: Logged | Report this post to a Moderator
   

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