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» LymeNet Flash » Questions and Discussion » Medical Questions » Prognosis? Any thoughts?

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Author Topic: Prognosis? Any thoughts?
psr1
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I have probably had Lyme for three years - symptomatic for the last three months. Started on doxy for 5 weeks, then Mepron/Zithro for a month, and now Ceftin for 2 weeks. I have seen some (minor) symptoms clear, but have neuralgia in back and shoulders, and fatigue, that are crippling. Have been seeing a LLMD in NY - Dr C - and although I like him personally he seems to have the philsophy that cycling through a bunch of abx will eventually find one that hits. Have had no positive bloodwork except for one band 41+.Can work about half the time. I have an appt with Dr H in NY: any thoughts about what I am facing? Any experiences to share with Dr H? I am very discouraged and depressed, because I have no sense of what my future will entail. Any input or thoughts appreciated
Posts: 360 | From New York | Registered: Oct 2009  |  IP: Logged | Report this post to a Moderator
sixgoofykids
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I have had Lyme most of my life and am in complete remission right now. You CAN beat this. Keep reminding yourself of that. It's a hard, seemingly impossible battle, but one you can win.

It takes time, research (learn what your doctors are prescribing and what measures you can take in addition - exercise, detox, etc.), and patience.

You can win. I was completely disabled and unable to work when I started treatment. My husband had to work out of the home so he could be here to take care of me.

My advice, go with your gut instincts, listen to your body. Don't necessarily jump on every bandwagon, but when you think a treatment sounds like it would be good for you, go with it.

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sixgoofykids.blogspot.com

Posts: 13449 | From Ohio | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
psr1
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Thank you. What treatments worked for you ? Did you do IVs? Alternative treatments? Thanks again for responding: today is an "at home" day and I am not in a good space
Posts: 360 | From New York | Registered: Oct 2009  |  IP: Logged | Report this post to a Moderator
sixgoofykids
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I did abx and herbals with Dr. H in NY. Last year I stopped everything and went to Germany to try an alternative treatment and have been using it since. I knew that if it didn't work, I could go back to Dr. H and what he was doing.

I did not do IV. I did do many alternatives.

Google coffee enema. When I was in a bad place, which was every day, I did them and got substantial relief. Be sure to cool the coffee!

My blog is listed below .... if you go back to last Oct., that is when I left for Germany.

Dr. H is a great doctor. You will be in good hands. I hope you get some relief soon, it's a miserable battle.

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Posts: 13449 | From Ohio | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
   

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