LymeNet Flash: Wow, could this be a real sign of improvement ???

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Wow, could this be a real sign of improvement ???

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Author

Topic: Wow, could this be a real sign of improvement ???

Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239

posted

Hi everyone,

I have had lyme and co for 22 years. My most prominent symptom was always "fibromyalgia" pain.

In February 2008 I developed excrutiating neck/head/shoulder pain and stiffness while trying Ambien CR.

It feels like 3 vise grips squeezing my neck/base of skull/top of shoulders that never stops......terrible.

I have been treating for 9 months.

I just switched from Mepron/Zith/Tetracycline to Doxy/Plaquenil 3 days ago.

When I woke up today I realized that the left side of my neck and head had less pain and stiffness....for the first time in 1 year and 9 months.

The right side is still just as painful as ever.

I almost didn't want to mention it, but everyone benefits from hearing about others progress...even if it's just a little.

This is the first good sign I've had in awhile.

It may be gone tomorrow, but it gives me hope that the pain can improve.

So if you are thinking you will never improve...don't give up!

Just when you least expect it, you may get a little sign that gives you hope.

Thank you God.

--------------------
The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.

"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11

Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008 | IP: Logged |

canefan17
Frequent Contributor (5K+ posts)
Member # 22149

posted

Awesome. And i agree... I get excited about the litte improvements

Posts: 5394 | From Houston, Tx | Registered: Aug 2009 | IP: Logged |

springshowers
Frequent Contributor (1K+ posts)
Member # 19863

posted

Nice to hear.. Thats great..
Keep it up and I hope it gets better and better for you.
I just switched to Doxy too.. I have the biggest issue of FM Pain and Fatigue severe..

So I know how it is to have that overall intensive constant pain ...

I think that the doxy is an antiprotozoan and that is a big issue we all have that there are not tests to really show what we are treating but I always keep it in mind. Plaquenil also is an antiparsitic and can also help treat lyme.

So I think Doxy and Plaquenil sound good together.

Good Luck.

Posts: 2747 | From Unites States Of America | Registered: Apr 2009 | IP: Logged |

canefan17
Frequent Contributor (5K+ posts)
Member # 22149

posted

I'm on Doxy/Roceph/Plaquenil as we speak : )

I had a lil flareup start 5 days ago... it's lessened... but i know it's necessary.

Posts: 5394 | From Houston, Tx | Registered: Aug 2009 | IP: Logged |

Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239

posted

canefan and springshowers,

Thanks for your replies and good wishes!!

I was also on doxy/plaquenil for the first 3 months of my treatment but went off for the summer...so now I'm back on.

The first time I developed flu-like fatigue for a couple weeks. Maybe it won't happen this time.

Wishing you both improved health!

--------------------
The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.

"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11

Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008 | IP: Logged |

Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759

posted

Awesome!

Yes, I like to update on little improvements whenever I can, and I mention them in others' posts too.

My theory is that people only update once they've completely recovered (if even then), and by then, they've forgotten all the little details of what helped along the way.

So whenever something helps someone, I think it benefits us all to shout it from the mountain tops!

Wishes for continued improvements!!!!

Posts: 4590 | From Midwest | Registered: Jun 2008 | IP: Logged |

WildCondor
Unregistered

posted

That is good!

Whenever your body starts showing little increments of improvement like that it usually means you are starting to recover. Even if it is for a few hours at a time where you feel no pain or a symptom disappears, it means you can functionally improve. [Smile]

IP: Logged |

txgirl09
LymeNet Contributor
Member # 21612

posted

Good for you! Any improvement is great!

Posts: 490 | From TX- Go Cowboys! | Registered: Aug 2009 | IP: Logged |

sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270

posted

That is awesome!

I like the way WildC puts it.

Posts: 4035 | From Mississippi | Registered: Jul 2008 | IP: Logged |

Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239

posted

Hoosiers,

Thanks!!!

I totally agree! We all need to share our tiny improvements so others will have hope from them.

Wildcondor,

Well said!!! Thank you very much!

txgirl,

Thanks for the good wishes!!!

sutherngrl,

Thanks....it feels awesome!!!

--------------------
The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.

"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11

Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008 | IP: Logged |

bettyg
Unregistered

posted

whoopie time; hip hip hooray; ONE improvement means so much, and glad you noticed it !!

[group hug]

IP: Logged |

Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239

posted

Thanks, bettyg!!!

Whoopie!!!!

--------------------
The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.

"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11

Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008 | IP: Logged |

Haley
Frequent Contributor (1K+ posts)
Member # 22008

posted

Dekrator,

May I ask what dosage of Plaq and what dosage of Doxy. I may be throwing some Doxy back into my plan. I have not taken it with Plaq before. I hear it's a good combination.

Thanks

Posts: 2232 | From USA | Registered: Aug 2009 | IP: Logged |

Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239

posted

Haley,

Plaq 200 mg twice daily, doxy 200 mg twice daily.

--------------------
The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.

"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11

Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008 | IP: Logged |

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