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» LymeNet Flash » Questions and Discussion » Medical Questions » Children with Lyme- Their doctor

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Author Topic: Children with Lyme- Their doctor
Tincup
Honored Contributor (10K+ posts)
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Kris Kraft posted this in Activism.

http://underourskin.com/blog/

Dr. Charles Ray Jones, the 80-year old Connecticut pediatrician featured in UNDER OUR SKIN, has treated more than 10,000 children with Lyme disease over the course of his career.

In addition to seeing patients six days a week, Dr. Jones has spent the last four years and hundreds of thousands of dollars defending himself against state medical board charges of ``inappropriate'' treatment of children with Lyme and other tick-borne diseases.

This is despite the fact that the Connecticut House of Representatives just unanimously passed a bill that reassures doctors that they will not face retaliation if they choose to diagnose chronic Lyme disease and treat it with long-term antibiotics.

[To read details of this legal battle, click here.]

Is this justice, or politics-as-usual in Hartford, CT, the ``Insurance Capital of the World``?

With Connecticut Lyme cases skyrocketing up 118% from 2006 to 2008 and the state desperately needing every Lyme specialist it can get, why is Dr. Charles Ray Jones still being dragged through the courts? Today his defense fund is depleted, and he needs $8,000 immediately, or his attorney will be forced to resign. This will deal a devastating blow to Dr. Jones and all the children he treats, and it will set a dangerous precedent for other Lyme physicians.

You can watch an interview of Dr. Jones here.

To help, please donate whatever you can by clicking below.

http://lymesite.com/Dr_Jones_use_paypal_to_make_donations_to_.htm

Or mail donations to:

Pullman & Comley Trust Account-for Dr. Charles Jones,
Elliott Pollack c/o Pullman & Comley, LLC90 State House Square, Hartford, CT 06103-3702.

Note ``gift'' in the memo field.

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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Lymetoo
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This is horrible. Thanks for posting this.

--------------------
--Lymetutu--
Opinions, not medical advice!

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bettyg
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this got buried on page 2; UP WE GO FOR PARENTS WITH KIDS with lyme.

$8,000 is needed immediately to keep Dr. Jones legal defense/lawyers!!

ask for early xmas gifts of money to go towards this payment, and HOPEFULLY, all these $100,000 per month hearings will END FOR GOOD!!

praying that it does soon!

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Tincup
Honored Contributor (10K+ posts)
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Thanks for bringing this up.

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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Pinelady
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Tincup I'm glad you didn't get admonished for bring this to medical. Very important.

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

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bettyg
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up for sunday members info ....
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seekhelp
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i thought this case was getting thrown out of court due to a technicality? I recall Tracy updated us all on it a few weeks back.
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orrn
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Up to the front page!

orrn

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sizzled
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Sent what I can to Dr. Jones Defense Fund.

Help him help our kids.

Ct. Med. Board should be ....#$$$$**)&*&&^&^$#%@@@!!

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Shosty
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I don't think that Dr. Jones' legal troubles stem merely from treating patients with long-term antibiotics. As I remember, this case was originally about him treating patients over the phone, without first seeing them in person.

There were other irregularities in Dr. Jones' practice, which I have detailed in the past.

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22dreams
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In this case I believe, it was a woman's crazy ex-husband who didn't and doesn't want to pay for 1/2 his children's health care --

despite the great & obvious improvement in his kids' health-- he was the one who created the situation. What a gem.

Lyme isn't the only thing that is epidemic in this country--mental disorders of that caliber are also.

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Shosty
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The husband, I believe, complained that his kids has been treated without being seen. This is reasonable, not pathological. It is against medical ethics to treat by phone.

That is entirely separate from whether or not the kids benefited from the antibiotics, or even whether they should have been treated.

Divorces are causing a lot of these problems, but the divorces themselves were often a result of disagreement over the children's health issues, so it is predictable that post-marital discord might take this form.

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bettyg
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up for dr. jones ...
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Tincup
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S said... "As I remember, this case was originally about him treating patients over the phone, without first seeing them in person."

Actually, Dr. Jones didn't treat a child over the phone for Lyme disease.

He refilled a prescription for a child because the duck seeing him wouldn't help the child because of pressure and threats from the father....

And the school wouldn't let the child back in until the child was treated.

It wasn't for Lyme disease.

Also note- the child had an appointment to see Dr. Jones... and was to be evaluated for tick borne diseases. Dr. J has a long waiting list and this family, like many others, was coming from a LONG way away.

To note-

The father didn't want to pay 1/2 the medical expenses so he went after all of the kids doctors who were treating them for anything.

The mother is a nurse, by the way.

AND.. this case isn't about that specific incident.

Dr. J keeps getting charges against him... one after the other. It is pure insanity this is happening.

The CT DOH will continue to fuel the fire and be behind this nightmare they are causing him till they run Dr. J in the ground.

Dr. J is fighting this battle so ALL kids and all of us will have a chance to be treated.

And because all of our LLMD's need to be able to treat.

Please share this information and do all you can to help him.

And a BIG hug to Siz for once again going the extra mile!

Thanks SIZ!

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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Tincup
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Seek said.. "i thought this case was getting thrown out of court due to a technicality?"

No, this is different. This man has been though more rot than anyone should have to endure....

And the hits just keep on comin'.

*&^$#$&*(*(^%%#%&^*&(*)&&$#%^(*)()(^&*#@ the CT Health Department.

PIGS!

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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WildCondor
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Is there any interest in a fundraiser again for this? I can start up the Lyme awareness bracelets with all the proceeds going to Dr. Jones legal fund like we did last time with Lyme Aid4Kids. Let me know!
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sizzled
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Yes, Wild Condor!!! Yes! Yes! Yes!
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JamesNYC
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WC,

I'd be for that too. Great idea.

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bettyg
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condor, YES! thanks for your offer to proceed on this! we accept.

someone had posted about buying amazon.com lyme books in another post.

i replied amazon is giving either 2 or 4% DIRECTLY TO DR. JONES defense fund too....

so for folks to keep that in mind also when ordering!

dr. jones deserves respect! not the BS the idsa and conn. health dept. keeps charging him for. [toilet] [tsk] [puke]

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bettyg
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up for more readers and donations to one worthy 80 yr. old llmd who came out of RETIREMENT to treat your lyme kids and get them into remission!

hugs/kisses to dr. jones....

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orrn
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Up for Dr Jones!!!! I wish I could afford to get my daughter to his office for treatment! He is the

best and deserves to be left alone! Thank you to this man and his staff who have helped so many!

orrn

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bettyg
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or, i could not agree more! [Smile] thx for your support and prayers for dr. jones ....
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orrn
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Don't know if this still needs immediate attention, but was on page 3, so back to page 1 for Dr Jones!

orrn

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Tincup
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Hey WC...

Nice idea! Thanks so much!

I heard... not officially... that he had donations to help to get past this immediate hump... but more would help.

I also believe the Lyme-Aid-4-kids is low too. At least last time I heard it was.

I will check on your idea and get back to you... and can then let you all know what is most needed.

Thanks again to all for bringing this post up and keeping it going.

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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sizzled
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Dr. Jones, we love you and support you!
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Tincup
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Amen to that Sizzled!

And here is the latest about the funds.

Yes... $$ were raised this time for Dr. Jone's legal defense.

THANKS to all who donated. Bless you!

[Big Grin]

I also asked about the Lyme-Aid-4-Kids fund.

Both the legal defense fund and the LA-4-Kids fund need help.

The LDA right now is totally funding the Lyme-Aid-4-kids program, as the money originally donated is gone.

It is so nice to see the children who have been helped so far.

http://www.lymediseaseassociation.org/GrantsThru2009.pdf

As for Dr. Jones legal defense..

Work is ongoing and we SHOULD see an announcement of some "stuff" that will be going on by the middle of next month or so.

That's what I've heard through the grape vine.

Wish I had more to share.. but that is it for now.

If you can help either of these funds.... please do.

And again.. thanks to those who have already.

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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canbravelyme
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How does / will the CT Lyme bill effect Dr. J.?

Are these ongoing investigations all pre-bill and have to run their course?

If so, after they do, will Dr. J. be protected to practice? Is he currently?

Best wishes,

--------------------
For medical advice related to Lyme disease, please see an ILADS physician.

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Tincup
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Can...

Good to see you asking lots of questions!

Thanks for that.

Unfortunately, I do not have all the answers... but I do know those questions are being asked and addressed as we speak.

I expect to hear more news in a couple of weeks as things progress... and will share as soon as I know more.

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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canbravelyme
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Thanks, T.C.!

--------------------
For medical advice related to Lyme disease, please see an ILADS physician.

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Stacyb
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We just saw Dr J. end of Sept.
I asked him if the new Lyme bill for Conn.
protecting him now? He reported that the bill's
wording can still be twisted in a way that
can harm LLMD's still. He did not go into
great detail but said that his ongoing case
is a bit different then what the new bill protects.

The new bill in his words just gives Dr's. the option to inform patients based on
either ILADS or IDSA guidelines.

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