posted
It's been seven weeks since I started on IV Rocephin. There has really been no improvement except I have noticed that the sensitivity to cold that I've had for years is gone.
Pretty thankful for that since Winter is here!
Has this gone away for anyone else?
-------------------- ---------- Danni Posts: 311 | From Glen Mills, PA | Registered: Jan 2009
| IP: Logged |
julielynne4
Unregistered
posted
That is awesome news! It may seem minimal, but that sensitivity to cold is harsh! Have you been keeping track of your symptoms with a journal?
I have been really bad at journaling anything AT ALL for months and months. I read your post and wondered if I would even notice some progress without journaling.
Although this hasn't gone away totally for me, I have to say that it isn't horrible all the time...and my mom has improved in this area as well (also treating lyme and coinfections).
On another note - do you have a picc line or a port? I am just curious how others do it. And does your insurance cover it?
posted
I did track my symptoms for a while and some do shift in frequency & intensity but for the past 7-8 months, there have been the same ten notable symptoms.
A couple of them have become slightly worse and only the sensitivity to cold has improved. It's definitely a start because I was always cold and it was actually painful.
It's a PICC line. Since it is out-of-network, my insurance company covered only 70% of a fee they think is appropriate. Unfortunately, my doctor's office doesn't write off the difference so I'm responsible for what's left. It's still quite a chunk of money though.
What treatment plan are you & your mom on? Do you have any other symptoms that have improved?
-------------------- ---------- Danni Posts: 311 | From Glen Mills, PA | Registered: Jan 2009
| IP: Logged |
Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic