LymeNet Flash: Vague Symptoms

LymeNet on Facebook

LymeNet on Twitter

Follow @LymeDiseaseNet

The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive

The Lyme Disease Network is a non-profit organization funded by individual donations.

»	LymeNet Flash » Questions and Discussion » Medical Questions » Vague Symptoms - Is it Lyme's?

UBBFriend: Email this page to someone!

Author

Topic: Vague Symptoms - Is it Lyme's?

jmagalen
Junior Member
Member # 23221

posted

Hello! I've been struggling with the same symptoms for the past 2 years with no diagnosis. I have bad days and days that aren't as bad. The bad days will come in waves and last for 3-4 days before subsiding slightly.

Basically, when things are bad, I am extremely exhausted, fatigued, nausea, foggy head, dizzy, back muscle and spine pain (T-9 to T-12 area). I wask up unrefreshed, and get more tired as the day goes on. I sleep 7-8 hours every night.

I've been tested for thyroid problems, sleep apnea, Echo-cardio, chest CTScan, MRI of back, multiple blood tests for everything imaginable (including borrealis). Everything has come back normal, with some minor blood tests being on the fringe of lab ranges.

What I'm wondering is if this could be Lyme disease? I used to live in a region of the country that contained ticks and lyme disesase. I never noticed a bite, but I did have ticks on my body from time to time. I've had the Borrelia burgdorferi Total Antibody test. Is the Western Blot a better test and is it any more reliable?

Thanks!

Posts: 1 | From Portland, OR | Registered: Nov 2009 | IP: Logged |

massman
Unregistered

posted

Have you checked out any Naturopathic Docs in the area ?

I have a very soft spot for Portland, went to WSCC there in the mid + late 1980's.

IP: Logged |

Keebler
Honored Contributor (25K+ posts)
Member # 12673

posted

-
First, be sure to avoid even a trace of aspartame (Nutrasweet/Equal). Even a trace can create very damaging symptoms.

Also avoid MSG. You'll have to google for all the names of that. Check all your labels, gums, mints, even toothpaste..

-------------------

Yes, with your history and symptoms, sounds like you really should be assessed for lyme and other TBD (tick-borne disease) and, possibly, for other chronic stealth infections.

Sadly, there is not one LLMD in Oregon. The IDSA members and insurance companies here are very forceful in their campaign to misinform doctors about lyme. And the doctors misinform patients.

Yes, a Western Blot is better but not all labs do it correctly. It is best to have a LL (lyme literate) doctor order your tests. You will need more than just tests for lyme, too.

Most of the lyme patients in Oregon go to Washington State or California for treatment. However, I will PM you the contact for the Oregon Lyme Disease Network and one excellent LL ND. The Lyme support group here is very active.

Although good with their limited scope, I would not waste your time with most of the NDs here - they simply don't have the knowledge base with lyme. Stick with one who is an ILADS member or go out of state.

----
PM sent
-

Posts: 48021 | From Tree House | Registered: Jul 2007 | IP: Logged |

bettyg
Unregistered

posted

welcome

my welcome letter is below in my signature line. look over the SYMPTOMS lists good and you'll see your symptoms in there ... hugs [Smile]

keebler has excellent advise for you since she has 1st hand knowledge of your state.

IP: Logged |

Keebler
Honored Contributor (25K+ posts)
Member # 12673

posted

-
Testing:

www.igenex.com

IGENEX

============

Dr C's Western Blot explanation is discussed here:

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/42077?

Be sure to read the full post - it's very long and a great help.

=============

http://cassia.org/essay.htm

When to Suspect Lyme - by John D. Bleiweiss, M.D.

=====================

www.lymeinfo.net/medical/LDSymptoms.pdf

Lyme Disease Symptoms

======================

This explains WHY you need a LL MD or LL ND - an "ILADS-educated" doctor:

www.clinicaladvisor.com/Controversy-continues-to-fuel-the-Lyme-War/article/117160/

From the May 2007 issue of Clinical Advisor

CONTROVERSY CONTINUES TO FUEL THE "LYME WAR"

====================

www.ilads.org

ILADS

The International Lyme and Associated Diseases Society (ILADS) provides a forum for health science professionals to share their wealth of knowledge regarding the management of Lyme and associated diseases.

links to treatment:

http://www.ilads.org/lyme_disease/treatment_guidelines.html

ILADS Treatment Guidelines

2009 ILADS Lyme Disease Conference CD-ROM

and

http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf

Dr. Burrascano's Treatment Guidelines (2008) - 37 pages

Sections regarding self-care:

Go to page 27 for SUPPORTIVE THERAPY & the CERTAIN ABSOLUTE RULES

and also pages 31-32 for advice on a safe, non-aerobic exercise plan and physical rehabilitation.

----

http://www.lymepa.org/html/dr__j__burrascano_september_20_15.html

Burrascano's Powerpoint presentation 9-20-08

-------

This is included in Burrascano's Guidelines, but you may want to be able to refer to it separately, too:

http://www.lymepa.org/Nutritional_Supplements.pdf

Nutritional Supplements in Disseminated Lyme Disease

J.J. Burrascano, Jr., MD (2008)

===========================

http://www.prohealth.com//library/showArticle.cfm?libid=8026

Diagnosis and Therapy of Chronic Systemic Co-Infections in Lyme Disease and other Tick-Borne Infectious Diseases

by Prof. Garth L. Nicolson, Ph.D. -- October 24, 2001

=============================

http://www.klinghardtneurobiology.com/LymeProtocolOct09.pdf

A Treatment Guide: Lyme and other Chronic Infections

by Dietrich Klinghardt, MD, PhD

October 2009 - 87 pages

---------

http://www.klinghardtneurobiology.com/library.htm

Klinghardt's Neurobiology page

=======================

This book, by an ILADS member LLMD, holds great information about treatments options and support measures:

http://tinyurl.com/6lq3pb (through Amazon)

THE LYME DISEASE SOLUTION (2008)

- by Kenneth B. Singleton , MD; James A. Duke. Ph.D. (Foreword)

You can read more about it here and see customer reviews.

Web site: www.lymedoctor.com

========================

In addition to the usual coinfections from ticks (such as babesia, bartonella, ehrlichia, RMSF, etc.), there are some other chronic stealth infections that an excellent LLMD should know about:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=069911#000000

TIMACA #6911 posted 03 August, 2008

I would encourage EVERY person who has received a lyme diagnosis to get the following tests. . . .

- at link.

===================

You can also do a search on a newly discovered retrovirus that seems to have a connection to symptoms such as yours: XMRV.

A good LLMD or LL ND should know about this, too. As with many of these, they rarely travel alone.
-

Posts: 48021 | From Tree House | Registered: Jul 2007 | IP: Logged |

Printer-friendly view of this topic

The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA
http://www.lymenet.org/