-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
7-8 hrs.
12 PM - 8 AM usually. No amount of sleep provides any refreshment and i use a CPAP machine. Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
Now - 9 hours. 12am - 9 am.
During most of my treatment, I could not function with less than 11 hours, and often needed naps as well.
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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posted
with sleep meds, 6-8 hours, most days a nap, too.
-------------------- dx: MS in 1998 2007 - Lyme suspected 2009 - Positive Lyme, MS worse. Now: Copaxone shots for MS gall bladder out 7/09 Ceftin, Zith, Septra LDN Acyclovir Monolaurin, DHEA, Pregnonelon, Curcumin Posts: 243 | From New Mexico | Registered: Feb 2007
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canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
Holy crap Randi.
That's crazy. I would die with 4 hours of sleep every day haha.
I've just found that sleep is so crucial in my recovery.
When I have a good week of sleep I absolutely have a good week free of symptoms.
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
I usually go to bed around midnight and sleep in until 10:30 a.m. or even longer.
I've come to the conclusion that I usually need more than 9 hours of sleep to function at all.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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I get to bed anywhere from 12 midnight to 1AM then sleep till 9 or 10 in the morning.
Posts: 88 | From DC Metro area | Registered: Sep 2009
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Lauralyme
Frequent Contributor (1K+ posts)
Member # 15021
posted
I need 8 hours at least
Thanks canefan for starting this interesting thread
-------------------- Fall down seven times, get up eight ~Japanese proverb Posts: 1146 | From west coast | Registered: Mar 2008
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posted
4 - 7 hrs. most often 4 - 5. I often use 1/2 10 mg.Elavil which usually helps, but not always. Sleep is a problem for me.
What meds are good besides Elavil, Anyone use yoga, meditation, etc., before bed?
Posts: 97 | From Great Lakes state | Registered: Jul 2008
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posted
I get about 7-9 hours per night. Usually closer to 9. I've always needed this to function properly, even before lyme.
I head to bed between 8:30-10:00, give or take, and wake up between 5:00-6:30(ish). Occasionally I'll stay up later, or I'll sleep till 7:00, or I'll wake up at some God awful hour for no apparent reason. Not very often though.
When lyme symptoms first hit, my ability to stay asleep was not there. I'd awake in pain every hour or two. I haven't used any sleep meds, but boy if I did, that would have been the time.
Now with treatment, I'm mostly sleeping through the night again. What a difference this makes for me.
This morning I actually feel rested and refreshed. This is a new(and pleasant) feeling.
Posts: 423 | From Upstate NY | Registered: May 2009
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Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512
posted
No more than 4 to 4.5 hours at night.
Roughly 11:00 p.m. to 3:30 a.m.
Because of back problems, I can only sleep on my back (which I hate). And more than about 4.5 hours in that position gets painful. I'm usually awakened by the need to pee anyway, and then I can't get comfortable again. *sigh* So, I absolutely have to take naps most days but it never makes up for what I miss at night.
I do sleep well when I sleep, but it just isn't enough. And I REFUSE to resort to medications. Those inevitably cause constipation issues for me. No easy answers.
Studies have shown that even healthy college students will get `Fibro-like' symptoms if they don't get proper sleep for as little as 2 weeks.
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
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richedie
Frequent Contributor (1K+ posts)
Member # 14689
posted
11 pm to 7 am. 8 hours.
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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I go to bed usually around 1030-1130 and take a very long time to fall asleep and always wake up much earlier than I need too. Almost impossible to sleep if I do not go somewhere around my normal time. I have completely inability to sleep during the daytime or the very early morning hours despite trying over and over again.
Then I have the days where my mind just won't shut down despite not really thinking about anything. Usually klonopin helps to get me asleep on those days, but it doesn't make me fall asleep that much faster or sleep longer as far as I can tell. It just helps me go from not able to sleep at all to being able to sleep some.
Posts: 526 | From NJ | Registered: May 2007
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joalo
Frequent Contributor (1K+ posts)
Member # 12752
posted
Usually 9 hours with sleep meds.
9PM - 6AM
Without sleep meds - 0
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
12 a.m.- 2:00am sleep well
2:00a.m - 5:00 a.m. toss and turn some twilight sleep
5:30am-10:15 a.m. light to medium sleep Rarely feel refreshed. Have about 1-2 days per month when I can say I slept very well.
No meds because of breathing problems. Sleep meds affect breathing.
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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-------------------- dx in Dec 2003 tested 2x positive for bart Lightly Chelating 3 weeks off abx and 1 week on:
10 day course a month: Plaq/Ceftin/Rifampin/Biaxin with Tindamax on last two days Posts: 187 | From PA | Registered: Apr 2008
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canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
Wow. Interesting stuff.
I go to bed the latest 3am
Most people here aren't getting close to 8 hours. Very intriguing.
I would love to see a poll done with patients who are in remission vs patients who are sick.
I'm willing to bet the latter aren't getting close to the amount of sleep the remission patients get.
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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lightparfait
Frequent Contributor (1K+ posts)
Member # 22022
posted
I'm in remission: and now sleep from 11-3: as my body clock wakes to pee now... Then go back to sleep until 6:30 am.
I feel refreshed finally with sleep.
I remember not beign refreshed. Hang in there group..there is hope.
Allergie Immune therapy helped me with the sleep after my co-infections were gone with treatment.
Posts: 1009 | From NJ | Registered: Aug 2009
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posted
Sleep from 10:00PM to 8:30AM when naturally wake up. Needing a lot of sleep now. 10 1/2 hours
Posts: 515 | From In His Loving Care | Registered: Apr 2009
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posted
With any less than half a dozen sleeping pills: 3-4 hours
With half a dozen sleeping pills: 7-8 hours
Every single day regardless of sleeping pills I am suffering from terribly unrefreshing sleep and such terrible fatigue that I spend most of my day on a sofa or a bed TRYING to fall asleep or take a nap. I haven't successfully had a nap in months even though I am desperately and chronically tired all day long.
Before the insomnia pattern arose about 2 years ago, I would nap for hours every day and had 8-9 hours of sleep on weekdays and 12-13 hours a night on weekends.
Now, every morning that my alarm clock wakes me up (three days a week) I find myself wanting to throw a thousand ton train at it, but I don't even have the strength to throw a pillow anymore.
Crossing my fingers that Babesia treatment will help with my debilitating fatigue, weakness, and insomnia combo.
Posts: 121 | From Silver Spring, Maryland | Registered: Oct 2009
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posted
I need 8-10 hours of sleep. Because I take several meds in order to sleep, I am not able to drag myself out of bed until about the 10th hour.
I go to bed around 11:00 - 11:30 and get out of bed until 9 or 10.
I do believe sleep is essential to recovery and thankfully, my doctor is of the same opinion!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
Geez, I slept for 12 hours last night/today, straight.
I thought there would be more people like that. Sometimes I just sleep forever. And even when I do wake up, I'm very tired and have to drag myself out of bed. What is causing that? Lyme? babesia?
Posts: 4590 | From Midwest | Registered: Jun 2008
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posted
Currently 8-10 hours/night, I usually am in bed by 9-10 and up around 6-7.
I sleep through the entire night sometimes now, but didn't for a long time.
I also just recently resumed full time work, and for the first few weeks that really exhausted me and required extra sleep. Thankfully I'm adjusting and continue to improve and it's getting easier.
I'm much, much improved at nearly 11 months of treatment. At worse times, I often slept or was bed bound for most of the day. But I couldn't sleep continuously (woke up every hour or 2) and the sleep wasn't restorative.
It's nice to wake up and actually feel rested again, though not every day it's becoming more regular!
Posts: 455 | From Was in PA, then MD, now in the Midwest | Registered: Nov 2008
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posted
7-9 hours with one pee break and then right back to sleep. No sleep meds.
I just finished my 4th month of treatment. Prior to treatment sleep was a big problem for me.
Posts: 671 | From Fort Myers, Florida | Registered: Jun 2009
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
Okay, I'm so jealous! For me Insomnia came with LD.
Without sleep aids I sleep 3 hours a night. With sleep aids about 5 or 6 hours. 11:00pm to 5:00am. I get up once to pee, so sometimes it takes me an hour or so to go back to sleep.
I would give a million dollars for 8 straight hours of sleep.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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posted
I usually go to bed around 10pm or so and am up for the day around 7am. So, that's 9 hours but it is never straight thru.
It can vary greatly. Some nights I will sleep for 4-5 hours straight and others I'm waking every 2 hours.
My sleep record is 7 hours straight.
And when my kids are sick? All bets are off.
I do believe sleep is important. When I am sleep deprived, my symptoms intensify.
Posts: 581 | From CT | Registered: May 2008
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
I agree opus, that sleep is important. Dr B mentions sleep deprivation as one reason for treatment failure. I really think I would improve if I could only sleep.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
sutherngrl,
But what if you get 8 straight hours of sleep, and you wake up more tired than when you went to bed?
That is my problem. Sleep just doesn't help me at all, even when I get more than 12 straight hours of it.
I mean, I guess theoretically I'd prefer to be getting more, just because supposedly it is healthy for you....but I just have to wonder if the quantity of hours is even helping me, since I still feel so crummy when I get up.
So I guess my point is, don't be too jealous! Posts: 4590 | From Midwest | Registered: Jun 2008
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posted
I sleep 7-9 hours a night with meds. Sleep does not help any of my symptoms. If I slept all day I'd still feel like crap. But I do need around 8 hours sleep a day.
Kathy
-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 807 | From South Dakota | Registered: Jul 2005
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
I usually need 9-10hrs of sleep, it was much less when I was healthy.
I'm a light sleeper and never remember any dreams. Some nights I have trouble falling asleep. Other nights I wake up like every hour.
Lunesta helps but it doesn't make me sleep like when I was well. No matter when I go to bed or what I take to help me sleep I still wake between 2-4am sweaty and or sick feeling. It's very annoying.
Posts: 5237 | From here | Registered: Nov 2007
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