LymeNet Flash: Incredible obsticles - I'm amazed by everyone here

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Incredible obsticles - I'm amazed by everyone here

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Topic: Incredible obsticles - I'm amazed by everyone here

Shadow01
Junior Member
Member # 23131

posted

How do you all do it?

I've been reading more and more about lyme and co-infections and what you all are dealing with is downright scary. 2 years of abx alone would be enough to send me over the edge, but add into that doctors, staff, insurance companies, the gov't and families that don't even believe it exists and it's a recipe for anyone with this disease to go ballistic.

I'm still not sure if I have been living with Lyme for decades, but the more I read, the more I'm sure I want NOT to have it.

I still have a lot more reading to do, many of the threads and articles I'm finding are far too complex to grasp beyond the first paragraph or so. I'm a software developer, not a nurse, so reading much of the medical terminology is like pushing me off a cliff while holding needle & thread, material and a book on how to sew a parachute.
[bonk]

Any simple suggestions on how to get through the info without the confusion would be appreciated.

You all amaze me in how much you know and your determination. Keep up the fight!

Shadow

[ 11-30-2009, 01:55 AM: Message edited by: Shadow01 ]

Posts: 8 | From SE Mass | Registered: Nov 2009 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

Thanks, Shadow! I hope you don't have it either...but you CAN come out the other side. I did!

Here is a good website, which is very well organized. Maybe that will help.

www.wildcondor.com/lymelinks

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96223 | From Texas | Registered: Feb 2001 | IP: Logged |

sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270

posted

My suggestion is that you can't learn it all in a week a month or even a year. You kind of just learn as you go. I have been in treatment for a year and a half and still have a lot to learn.

Finding a good Lyme doc that you trust is a good start.

Posts: 4035 | From Mississippi | Registered: Jul 2008 | IP: Logged |

joalo
Frequent Contributor (1K+ posts)
Member # 12752

posted

I do it one day at a time. [hi]

Just read what you can, when you can.

Lyme definitely isn't for wimps!!! [Big Grin]

--------------------
Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006.

Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007 | IP: Logged |

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