Topic: Medicines you take- not antibiotics? Need list please
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Another fine mess I've got me in. HA!
I need to make a list of prescription medications that folks take for Lyme and tick borne coinfections.
NOT ANTIBIOTICS... but everything else.
If you take any prescription medications for neurological symptoms, gastrointestinal, anxiety, depression, fibromyalgia, anxiety, muscles, pain, steroids,... etc... etc...
Might you help me make a list?
If you could spell the names right too.. that would really help. I will need to research them.
If you know what they are for.... please share that too.
For example..
Neurotin- neurological
Motrin- pain
NOTE- YOU don't have to be the one taking them. It can be a family member, etc.
WHY am I doing this?
I will be making a list of potential side effects of taking meds that will address our symptoms.. but not the source.
Trying to make a point to help a patient with some issues they are having... and hopefully more folks can use it if needed to do the same.
MariaA
Frequent Contributor (1K+ posts)
Member # 9128
posted
I don't take all the below drugs at once, but have in the past few months taken:
welchol- similar to cholestyramine (for binding of Lyme toxins) low dose naltrexone, 3 mg (for immune regulation) diflucan(for candida) methylcobalamine b12 injections (for liver glutathione support) would be taking heparin if it weren't hard to get currently
Mepron and Biaxin
-------------------- Symptom Free!!! Thank you all!!!!
Miralax Constipation Aleve Pain Asprin Pain Advil Pain Benadryl Sleep and Herx Support Zyrtec Herx Support
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merrygirl
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Member # 12041
posted
propranolol - tachycardia and palps trazadone - sleep cymbalta - depression and pain Abilify - mood stabilizer lorazepam - anxiety cortef - adrenals vicodin - pain tramadol - pain
Posts: 3905 | From USA | Registered: May 2007
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Hoosiers51
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Member # 15759
posted
Lamictal--mood stabalizer Xanax--sleep Nystatin--yeast prevention Pindolol--anti-depressive properties and may prevent malaria parasites (and thus babesia?) from entering red blood cells (propranolol does at least)
Posts: 4590 | From Midwest | Registered: Jun 2008
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The above 3 I take what I happen to have on hand...I don't take them all together. Funny thing for all being benzos, they all work differently.
Baclofen - neck pain advil - neck pain
I try to limit what I take...too much "stuff" in my body already.
Posts: 193 | From New Jersey | Registered: Oct 2008
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
B12 injections-I have in the past taken Percocet it has aspein in it instead of acetametaphen.
B12 injections Percocet with asprin
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
posted
On a daily or regular basis: Armour - thyroid Omeprazole - GERD/also helps with nausea from meds Provigil - excessive daytime sleepiness Nystatin - yeast (even though I'm off abx atm) B12 shots (weekly)
-------------------- If you don't know where you are going, any road will take you there. - Lewis Carroll Posts: 356 | From Body-PA, Mind-elsewhere | Registered: Dec 2007
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
Welchol Plaquenil Nizoral
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
Levothyroxine - for thyroid problems caused by Lyme Hydrocortisone - for adrenal insufficiency caused by Lyme Cymbalta - for peripheral neuropathy Trazadone - for insomnia
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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Vicodin - for pain (occassionally as needed) advil - for pain/inflamation (rarely) Ambien - for sleep (when needed) Baby asprin - about every other day
That's it -p
Posts: 641 | From So. CA | Registered: May 2008
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Amantadine -- antiviral -- Borna virus IV Heparin -- hypercoagulation IV Phenergan -- nausea and tremors Alinia -- parasite med -- for Babesia
Hydrocortisone -- brain inflammation and swelling -- helps headaches
Benicar -- blood pressure med which works as vasodilator -- stops dystonia and severe tremors and myoclonus -- causes low blood pressure and many other side effects
Lyrica -- anti-seizure med -- calms nervous system -- works as calcium channel blocker for the brain
Ativan -- tremors IV Vitamin C -- antioxidant IV Magnesium -- muscle spasms IV glutathione -- detox
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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posted
I think it would help Tincup if we didn't repeat ones already listed.
verapamil .. tachycardia and palpitations
and she asked for prescriptions
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
Don't think anyone's said this one yet:
Butalbital - for severe headaches
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
heres what i have taken/take desgined by me and my most recent dr.
its not all being taken now, its a complete history since i began with him.
May 2008-Present
Derek
Current Protocol- (everything started upon first visit May 2008 unless otherwise noted)
Regular text=currently taking Underline=have taken, can take again Bold= need to add
Anti Microbials-
Plaquenil 200mg 2x day (started april 08) Bicillin IM 3x week (started May 16) Rifampin 300 mg 2x day (added 7/8/08 started 300 mg 8/8/08, increased to 600 8/22/08) Biaxin 1000mg 1x day (added 9/15/08 in place of zithromax) Olive leaf/Oil of oregano Tincture 20-40 drops daily (added 9/6/08) HH Capsules 1 3x day (Zhang)(discontinued 8/1/08) Coptis Capsules 2 3x day (Zhang)(discontinued 8/1/08) Circulation Capsules 1 3x day (Zhang)(discontinued 8/1/08) Minocycline 50-200mg day (discontinued may 13 could not tolerate) Zithromax 250 mg 2x day (added 7/8/08, started 250mg 7/10/08, stopped 7/29/08 could not tolerate
Life-Pak by Pharmanex daily Omega fish oil daily Glucosamine & Chondrotin with MSM (3) daily Nattokinase 100 mg (8) daily B-Complex-50 daily Lypo-Spheric Vitamin C 1000 mg occasionally Buffered Vitamin C 1000 mg every other night (added 11/1/08) Vit D3 2400 IU every other day (added 11/1/08) Wobenzym N 5-10 pills daily (added 11/1/08) SN Digestive Enzymes 500mg 2 pills daily (added 11/1/08) Juice Plus 2x daily (added 12/1/08) Lauricidin every other night (added 12/1/08) Co Q 10 400mg (not yet started)
Detox-
Water Consumption 64 oz. minimum daily Advanced Cellular Zeolite Spray 1-3x day (added 11/1/08) Burbur Tincture 10 drops 1x day (Cowden) Parsley Tincture 10 drops 1x day (Cowden) Pinella Tincture 10 drops 1x day (Cowden) Glutathione IV push 2g 1-2x week Milk Thistle 1200mg nightly Oral Glutathione 1000 mg rotate w/ glutamine Oral Glutamine 1000 mg rotate w/ oral glutithione (added 11/1/08) N-Acetyl Cysteine 1200mg 2x daily(added 7/8/08, not yet started)
Heavy Metal Detox-
DMSA- 100 mg every third night (added 8/23/08) Chlorella 20 pills every night (added 8/23/08) Algin drops (nutramedix, 10 drops every third night, added 8/23/08) Allimax (ALA) 400mg 2x daily (ala, added 7/8/08, started 1 pill day 7/24/08, discontinued 11/5/08)
Adjunctive Therapies-
Chiropractic care 1-2x week Walking daily 10- 20 min Massage 1x every other week (started 8/16/08) Methylcobalamin B-12 injection every other day 1ml (stopped due to high mercury levels) Yoga 20 min 2-3x week (started 6/1/08) Swimming laps 20 min 4-5x week (started 6/1/08)
Probiotics- (these are rotated as needed, usually have 2 or more different kinds at a time)
posted
Topamax - migaine headache prevention Relpak - migraine headache treatment
Posts: 797 | From New York | Registered: Feb 2008
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lymednva
Frequent Contributor (1K+ posts)
Member # 9098
posted
I know some of these may have been named. I'm just starting from the top, as best as I can recall.
Fludrocortisone - BID for neurally mediated hypotension Midodrine - same as above propanolol - same as above Tramadol - 4 x daily for pain Neurontin - 2 x daily for pain and at night for pain and sleep Cortef - adrenal support Synthroid - hypothyroidism/multi-nodular goiter Zoloft - depression Flexeril - muscle relaxant/sleep Klonopin - restless legs/sleep Trazodone -sleep
Feels like there are more, but can't figure out what they might be!
-------------------- Lymednva Posts: 2407 | From over the river and through the woods | Registered: Apr 2006
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disturbedme
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Member # 12346
posted
Let's see. I noticed a few of these were already listed.
Synthroid - for hypothyroidism
Armour - for hypothyroidism
Toprol XL (was on 25mg for a year, now on 50mg. It seems my body got used to 25mg after a year and I was having breakthrough tachycardia) - for crazy out of control tachycardia and heart palpitations. Doesn't always do a great job when herxing though.
Mepron - for Babesia. It's not an antibiotic, so I listed it.
Ibuprofen whenever I need it. I usually take it quite a bit at night to help settle my legs - Restless Leg Syndrome. I also take it for headaches and or cramps during that time of the month. I've tried getting something stronger for cramps, but since treating Babesia and/or using the herb Vitex, the cramps have been pretty silent. *knock on wood!*
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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lymie_in_md
Frequent Contributor (1K+ posts)
Member # 14197
posted
I'm not taking any prescriptions meds. So take that big pharma!
-------------------- Bob Posts: 2150 | From Maryland | Registered: Dec 2007
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bettyg
Unregistered
posted
i take the following daily:
asmanex inhaler ... asthma and breathing xopex inhalation aersol ... SAME as above
glyburide micro, diabetes 2 metformin HCL, diabetes and hopefully to LOSE WEIGHT! not so far!
levoxyl .. thryroid
sertraline ... mood swings
baclofine .. muscle relaxer and for PAIN
fenofenadine/HCL allegra .. allergies, nose sneezing, itchy throad
lisinopril oral, kidney problems
bayer aspirin, prevent strokes/heart attack
triamcinolene acteonide cream, skin cream for ITCHY dry skin
formerly ... enablex for incontinence
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-Cortef- to correct low cortisol (adrenal insufficiency) -Oxycodone- take as needed for breakthrough pain -Fentanyl patch- patch worn for 3 days that delivers pain medication for long lasting constant pain -Topamax-migraines/seizures -Fioricet- tension headaches -Lyrica-seizures/neuropathy -Zofran-nausea -Tegretol-taken to prevent seizures -Tramadol- taken for insomnia to help me sleep -neurontin- seizures/neuropathy/sleep aid at night -Klonopin- taken for insomnia -Coumadin- blood thinner; so I don't get blood clot due to inactivity -Ativan- seizures/anxiety/CNS supressant -neurontin- seizures/neuropathy -Xanax-anxiety/vertigo/brainfog... what doesnt it help? :-) -Ortho-tri-cyclin lo- birth control pill used to correct hormone imbalances caused by pituitary/adrenal problems caused by Lyme (so I menstruate) -Potassium Chloride- low potassium caused by adrenal/pituitary insufficiency -Diflucan-antifungal taken for systemic candida
Supplements: -DHEA- hormone regulation -Omega 3 Fatty acids -Probiotics -Multivitamin -Folinic Acid -Digestive enzymes -Methyl B12 injections -Glutathione -NAC -Calcium/Vitamin D supplement- taken to protect bone health because my hormones are messed up from Lyme -Fiber
I am sure I'm forgetting something important...
-------------------- "One day at a time"
Current: -1.2 IM bicillin three times a week -1.25 IV Vancomycin every day -IV glutathione and IM B12 -Byron White since Jan. 2011 -ALA, Yasko protocal, Adapten-All, thyrosol, Pekano, phosphalipid exchange, probiotics, oregano... Posts: 390 | From FLORIDA | Registered: Jun 2007
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
EXCELLENT!!!!
I can't believe you all have taken the time to make these complex lists.
THANK YOU!!!!!
And tutu.. just to note- and thank you for trying to spare me going through these lists- OH MY! And I know that YOU know normally they aren't like this...
And I know my posts are not real clear all the time.. but...
This time I DO need ALL the stuff that folks take.. even if it is a repeat of what someone else is taking. I am trying to find the most commonly taken, too.
Once this list is done we should have some good data to use as a reference... that will hopefully lead to more good data.
So PLEASE do list ALL stuff.. even if it was mentioned before.
A few months ago, I went to buy online through Pharmanex and it was pretty expensive. Anywhere I can get cheaper?
Also how do you schedule the 2 packets/day around all the abx?
Posts: 408 | From California | Registered: Apr 2008
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
generic for restoril...sleep meds.
but still rare I sleep through the night
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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Clarissa
Frequent Contributor (1K+ posts)
Member # 4715
posted
Luvox: antis-depressant aimed at OCD symptoms SSRI group
lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130
posted
WOW Cup... I can't believe all the stuff folks are taking at one time. Especially when they are taking
anti-inflams like ibuprophen with advil and asprin and so on and so forth...hpefully not at the same time!
Oh well....
I'm always looking for something else then the Ibuprophen 800's I take one half at a time
a half hour in between, to prolong it's effect however I think it's causeing my recent decent
or flare-up and need for IV or IM abx of some kind.
Lexapro 10mgs twice daily Flexeril 10mgs as needed
ativan one half to 1 and a half mgs, as needed but not more then 3mgs a day(usually at night to
help aid sleep but not always effective)
or (when I have to fight back the urge to rip off someones head and do do in their necks for being so stupid).
I don't take xanax but someone said that it cures everything....
I don't think it cures "RAGE" especially if you abuse them as my wifey #2 used to do...
Used to take zoloft, xanax and amitryptiline before diagnosis of lyme for "Adlerian inferiority of organ complex"
or hypocondriacal hysterics and hallucinations....It had the effect of making me a "manageable Zombie"....
so let's see...diabetes meds...oral.... which, I'm hoping, they allow adrenaline to pass
into the cells, the abx I may be taking at anytime in particular, as I just finished
Alinia500mgs twice a day for a month(by the way without much noticable effect for whoever wanted
to know out there), will ride along with the metformin100mgs twice a day and glyburide one
half of 5mg tablet twice a day, into every cell I have...crossed fingers....speaking of which am
doing 500mgs clyndamycin and 500mgs metronidazol orals for ten days, started
Saturday night,(got my llmd in training, PA, last week and he's a super DUCK)The MORON sent
me for xrays of my left hip the other night but marked right hip on the authorization...
sooooooo!
Ain't that just dandy...the pharmacist in his office that hands out the scripts already goofed
up twice and I called him on it and now he does'nt treat me so nice, and now I bypass him
and go right for the nurse to get me my controlled substance scripts.
Otherwise it could come to blows....and I have so much frustration in me....
I'd hit him so hard and so fast his freaking dumbass tatoos would fall the hell off!
Anyway back to the P.A.- He does'nt quite believe me when I tell him I've been off IV or
IM abx for a couple, or few years, and I'm sliding back again....also taking metoprolol
50mgs daily for BP which I think is that BP we get from a malfunction in our brains...
forget right now what it's called...
some kinda hypertension that is kinda not from the usual causes. Phentermine37.5mgs
one and a half a day when I'm not manic!!just when I have chronic fatigue or depression side
of my anxiety and depression comming back over me... I also use lightly, Betamethasone Valerate Cream USP, 0.1% three times a day
(it's a topical coticosteroid I believe, and I mix it well with bacitraycin or different
antibacterial creams so it can ride along with the corticosteroid(my concoction)to move the
Bartonella I have around my body whenever it rears it's long red itchy streaks...
I like to chase them around(the boogers!)LOL.....and for a rash I get from my own
persperation between the legs or behind my ears or on my jaw whenever I shave etc....
I also use vinegar/listerine, hot water/ epson salt foot baths, when my ingrown toenails act up
and I have to do minor surgery on them, to keep them from getting infected, because of the
diabetes...ALTHOUGH I have fallen down a lot lately doing stuff and scraped my bod all over
the place. I even got a sliver from "treated garden ties" and my supposed auto immune
deficient system,after soaking in white vinegar/listerine and epson salts,
pushed out the splinter, plus the scrapes and cuts healed nicely, after I cleaned them with
straight white vinegar. Boy that felt freakin wonderful!...LOL
So does the preparation "H" I need to use to push out the dang big ole stools I pass due to
the oxycodone and other meds, not to mention an occasional enima!
Of course I use the usual Dr B's suggestions for supplements, when I can afford them....
the cordycept,B-complex(or sometimes shots IM, CoQ10, garlic capsules,cod liver oil,
acidopholous and live yogurt when on amx's, ginko Baloba,milk thistle,green tea or those
leaf extracts for yeasty gut....occasionally I take prylosec but lots of other times I just use apple cyder vinegar,....
I have been on KETEK in the past and it cleared up my Mitral valve Regurgitation immensely so
much so as I hardly notice any longer when it regurgitates...must have cleared out all those
bacteris that were living on my heart "flaps"...LOL! I try to use the white
vinegar in my ears as I get athletes feet of the ear it seems....that's whatever the ENT duck
calls it and he gives me two scripts of
1. an anti-bacterial and an anti-fugal...speaking of which I have some of that
nystatin around and some "NONI" capsules. Plus cat's claw and wormwood and grapefruitseed
extract..heck I even carved open a live aloe vera plant and shucked down the goo inside of it!
I also employ the use of a "TENS UNIT" to try and successfully aggravate certain nerves so
much that they go numb for awhile and don't bother me so much...like my sciatica whenever my
intestines are clogged up....I did notice that a certain place I put a couple of the "derma-
todes"(pads the electricity flows thru on the skin(derma) get it?! It has an effect on what
must be the VULGAR NERVE, because it helps me have a BM!
NO DO NOT USE IT AROUND THE HEART OR BRAIN...especially if you wear a pacemaker!
I try to drink lots of water and or be-er, uh I mean PONDEROSA LEMONADE!....
Pluck em right off a tree of my neighbors down the street! Thye're as big as the old softballs....
almost the size of a large grapefruit or volley ball!...
Can't remember anything else right now....course if you want to know what ALL I've been on thru
the years since 1997 we would have to include the usual IDSA abx's of choice...
Doxy and Ammoxy, IM Pennicilin, two shots of testosterone which I think kicked off my
diabetes2 or it was my exposure to "AGENT ORANGE" when I served....
Mighta been the whiskey, coulda been the beer, shoulda been the three or four sixpacks I don't know....
NO NO NO......I don't SNIFFFFF "it" no more.... I'm tired a wak'in up on the floor!
My and the abx's above that all of these folks have been taking SHOULD HAVE TOLD THE DUMB
AHOLES IN THE IDSA AND MAINSTREAM MEDICINE THAT
OPEN ENDED AND DIVERSE COMBINATIONS OF ABX'S
DON"T SEEM TO BE AS DANGEROUS AS THEY'RE ALWAYS warning everyone THEY ARE.....
Dr. B's right....the lyme is a lot worse NOT TO TREAT!
Oh yea...throw in some mepron I had awhile back as well as levaquin, Cipro, Geeze.....
I shoulda died by now according to the dang IDSA and the rest of those bumbs!
OOPS forgot about the topiromate, wellbutrin,prozak,statins both lipidor and the
other one....paxil,neurontin, Shakra Healing, white witch spells!...REALLY!
Subliminal message CD's....and a few others I'm too embarassed to tell ya right now....
at least I'm not silver yet!
later tater.... zman
-------------------- I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004
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13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
I'm just listing everything. It's easier.
VSL #3 1 pack bid - Potent Probiotic Formula
NSI ALA 300mg bid - Antioxidant, Glutathione
NSI NAC 600mg x 1 - Antioxidant, Glutathine
Saccharomycin DF bid - Probiotic
Dimension 3 bid - Rebalances estrogen levels
Oncoplex bid - Cancer prevention
Omegapure 600 tid - Fish Oil, Brain Function, Antiinflammatory
Nature's Way ALIVE tid - Potent Whole Food Nutrition
Theralac x 1 Probiotic
Pentasa, 1,000mgs bid - Decreases bowel inflammation. Not steroid.
posted
mine are alot of the same as luluflorida...
is cortef the same as hydrocortisone?? i will list all of them when i have a bit more energy and my hands aren;t killing me.
what is acetsazomide???
-------------------- Sick for 20 yrs+,dx'd 10 yrs ago fibro/cfs & hashimotos.dx 4 yrs ago w/neurolyme,recent adrenal failure, recurrent spinal cord injury,probable ankylosing spondylitis. Unable to get treatment & severe Cognitive, psych & physical symptoms progressing. Posts: 82 | From az but moving to ft lauderdale, florida= plantation. fl | Registered: Aug 2009
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D Bergy
Frequent Contributor (1K+ posts)
Member # 9984
posted
I am wondering how some of you can afford the long list of products you are using?
I thought I was overdoing it a bit with supplements and one prescription for Low Dose Naltrexone which I use for Crohn's.
My wife who has Lyme is taking no supplements, or prescriptions other than digestive enzymes, at this time.
I can see that my supplement and pharma list is not so bad after all. I feel badly for those that have to use all of those products just to get through the day.
Dan
Posts: 2919 | From Minnesota | Registered: Aug 2006
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Synthroid .05mcg thyroid Ambien 2.5mg during my flare week Diflucan 100mg several times a week Klonopin .75mg day for anxiety Xanax .125 haven't used with klonopin but have if needed for anxiety
Most of my meds other than abxs are on the smaller size because the larger doses send me over the edge.
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