tick battler
Frequent Contributor (1K+ posts)
Member # 21113
posted
You can contact your local PBS station to request an airing...I just did! Here is the e-mail from Under Our Skin:
Dear UNDER OUR SKIN Supporter,
Just a quick update to let you know that starting next month the multi award-winning UNDER OUR SKIN will be airing on many PBS stations across the country, and every day more and more stations are programming the film.
We're asking you to check to see if the film is scheduled to show in your area. If your local PBS station has not scheduled the film, please contact them and ask them to show it. Many of the stations that are broadscasting UNDER OUR SKIN agreed to schedule it after receiving a handful of calls from viewers in the community. And if you are willing to help spread the word in your area about an upcoming broadcast, please be sure to mention that to your PBS affiliate so they will know there is local support for the film.
posted
I just requested from my two local pbs stations..thanks for the great info!
-------------------- Psalm 119:50 My comfort in my suffering is this: Your promise preserves my life. Posts: 292 | From Heaven | Registered: Jan 2011
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Hambone
Frequent Contributor (1K+ posts)
Member # 29535
posted
I contacted my PBS station and they aren't showing it.
posted
Do you have to contact them to find out their schedule .. or can you find the schedule online? I couldn't find a schedule.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
When you check to see if they are airing it on your local PBS station, check to see what TIME they are airing it. If they aren't scheduling it, or it isn't scheduled for PRIME-TIME, do an emailing campaign with friends, family, support group, etc. to request that they air it on prime-time. In the emails, go into why it's important, a bit about your story maybe, etc.
Posts: 3771 | From around | Registered: Mar 2008
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chiquita incognita
Unregistered
posted
Here are some ideas how to spread word and ask more people to request the film be showed:
A) Post to blogs like here B) Specifically, include a mention that reprint permission is granted, and ask people to seed it widely around the web. They will. C) Ask people who read it to take three minutes and call their local PBS station, as you have done here, thank you!!! D) Send this thread out to as many people as you can by email
FURTHER IDEAS BEYOND UNDER OUR SKIN:
E) Dial in to radio talk shows, ask them to do features and interviews. Ask other friends to do the same. F) Write a well informed letter to the editor about lyme disease, usually less than 250 words, polite and informative. This can help to open up some eyes. G)Ask activist entities to get involved. Write to their higherups and ask them to educate the public and slam through the disinformation campaign. H) Libraries often have speakers. Ask them to host a speaker event about lyme disease. The publicity in the newspaper calendar, alone, will help publicize the cause! I) The Farmers Markets often have no-cost "Free speech zones" where you can come with leaflets and hand them out to the public. Ask your Farmer's Market Director for permission first, set up your (free) shop and go for it! J) Organize an event....leaflets, speakers, music, potluck food, you name it....and spread word about lyme at these events! Perhaps you could piggyback this with some other event (so the funding is already covered) and there you have it!
I hope these ideas help! If you have any others, please add to the list! Thanks!
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posted
This is exciting news thank you for sharing this. It is airing on Long Island on Channel 21 on May 17th at 4:30 a.m. so I am definitely recording it :-) They said on my provider that it is on demand right now too. I havent seen this yet believe it or not so I am definitely excited thanks.
-------------------- When the going gets tough. . . I'll keep fighting! Ms. Geet3721
New LLMD, New abx, New life coming right up!!!! Posts: 714 | From La La Lyme Land | Registered: Jun 2008
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posted
Same here Lymetoo....they aren't showing it in GA. Said they would forward the request to the programming manager. Prob because every doc I've been to here say's GA doesn't have Lyme disease.
-------------------- Psalm 119:50 My comfort in my suffering is this: Your promise preserves my life. Posts: 292 | From Heaven | Registered: Jan 2011
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momintexas
Frequent Contributor (1K+ posts)
Member # 23391
posted
I emailed our local PBS station. No response.
Posts: 1408 | From Tx | Registered: Nov 2009
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posted
Called my local affiliate. They are not going to be showing it.
-------------------- -chaps �Listen to the bell, Borrelia. It tolls for thee!� Posts: 631 | From A little place called, "we'll see." | Registered: Apr 2010
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
It sounds like again the government / IDSA won the battle. They are the ones with power here, not us. The rule the world. Wormser and Steere just need to pound their big fists down and whabammm. Game over pals.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
I wish they would put UOS on Youtube. I understand that the people producing the film wat to make their money back... It's just that having this info out there could possibily prevent so much suffering.
It would also prevent so much misunderstanding. The film has been out for a couple of years now, I believe. I wish the producers would put this up on the internet so people could watch it for free already.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
I'm not necessarily advocating Alex Jones, Jesse Ventura, etc. or some of these other people doing research but at least they put their media out there for free for everyone to watch. Even if they don't do it themselves, other people post the films on Youtube.
I never understood why they would make a film like UOS & then hold it back so they could make their money back...
I've never seen the film. I think the people who need to see it are the ones who haven't been bitten by ticks yet. For me to see it, it's like preaching to the choir...
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
But it's fun to blame them for everything. lol. Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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Hambone
Frequent Contributor (1K+ posts)
Member # 29535
posted
quote:Originally posted by Lymetoo: GRRRR... I just called our local PBS and they are not showing it at all!!
The lady I talked to said she would pass along the request. I need more people over here to call!! Shoot!
Me too! They said no.
I contacted a Lyme association in my area and the president of it said they had been requesting it as well by calling/emailing, and still no dice.
seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Do you REALLY feel this is a coincidence? C'mon people. Lead weights came down from the man behind the curtain. Anytime, anywhere, anyway TBIs can ever be publicized, a stop is put to it. There are some strong influential people in control.
Anyone want to put some $$$$ on a bet with me even if free, this would never make it on Primtime in any decent time slot? I love easy money!!!
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
Just more of the "same old, same old"... Maybe it's a money issue but maybe not...?
I just want to say that not everyone with these symptoms has Lyme. It may be related to other things. The Lyme symptoms are similar to many different illnesses.
It's a very complicated issue.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
Could be alot of things, though... Stomach pains are very general.
You are right about "Lyme colored glasses". I think there's a psycholgical issue that people who are ill start thinking that everyone is ill with the same thing. It seems to be a kind of projection.
It's not always the case.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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I had gone to their website and they had Under Our Skin scheduled to be aired Monday May 9th at 3:00 a.m. EDT. Great news.
My heart started racing. But I wanted more. I looked for phone numbers on the site and decided to speak with someone in Louisville office.
KET is actually ran out of Lexington KY. I will tell you I spoke with a human being who was very interested in what I was telling her.
They have labeled this Under Our Skin: A Health Care Nightmare. Well if it's something important to health care don't we need to show it during prime time hours so as many people as possible can view this?
My heart and mind are racing even faster now as I'm speaking to this lady on the phone. I did my very best of sounding and coming across as rational.
I begged her to pass it along to anyone she needed to in order to get this aired again besides 3 am.
I told her there might be political resistance, but I doubted that in the state of KY. She asked me why there is opposition to this being aired.
Why would there be opposition from docs that don't believe Chronic Lyme exist?
I couldn't answer her question as to why on politics of it. I don't get it myself.
I told her I had treatment and therfore they believe I'm cured. I said many millions have had cancer tx and how million of them are no longer with us.
I've got to calm myself down. I write more later. I'm emotionally spent right now.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
OK. It's all a big coincidence I guess.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Still said.. "It's time to give the movie away..."
Sparky said.. "I never understood why they would make a film like UOS & then hold it back so they could make their money back... I've never seen the film."
Funny, you know... I went to the gas station the other day and told them I needed gas in my car. I told them I had to get to a doctor appointment and that it was important.
They said they realized it was important to ME, but if they gave away all of their gas they would have to close up shop and go bankrupt.
Then they actually had the nerve to make me pay for the gas!
posted
It's a terrible thing, TC .. a terrible thing to expect you to pay for that gas!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
I can't believe it's scheduled in Ky and not some of these other states. That's why I was so freaked when I seen it scheduled.
She was listening and she was a typing on keyboard. I told her May is Lyme awareness month and it would be beneficial to get the sotry out in May.
She did say May schedule had been set but maybe someone would be willing to move around to air it again in May or we could get it on the schedule for June.
I told her I would take June and anything they can give to this cause. I told basics on myself, worked 28 yrs for corp Amer. climbed the ladder and got to my title/job I had dreamed about until I could work no longer ill.
I had done 3 yrs of abx more than enough that should of killed this bacteria but like cancer there is not a cure for a good percentage of chronic and acute cases. People still die from cancer.
Why would some docs think I'm crazy because I'm still dealing with the same illness as in '99. She said you don't sound like a crazy person to me. You sound like someone who wants the message heard.
She told me she has Fibro...labeled with stigma that comes from having something others can't see. I told her a Lyme disease specialist with her sx and medical history and blood tests would actually tell her she has lyme disease.
Fibro is a sx of underlying something. She told me she wouldn't be surprised because she was bitten by deer ticks every summer when she went to my grandparents tobacco farm and worked.
I gave her my email address. I hope that others from KY or surrounding Southern IN can also voice themselves.
The main KET office is in Lexington KY. I spoke with someone in the Louisville office.
You cna go to their website and put in your zip code and it will give you an option to look at the TV line-up. I put lyme disease in search engine and it brought up info on show time date etc.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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posted
Good job, Pam!! I told the lady at the PBS station a little bit. I told her she knows as well as I do that Lyme is rampant in this area. She agreed. I said well this is about Lyme disease. She didn't know that.
Maybe I should just call everyday. I'm also going to try contacting the support group in that city. I found a phone number online. Hope it's good. They may not be aware of this.
---
as for UOS .. I think it will eventually be released. There will come a point in time (and it may be soon) where sales will die off to very little and then he will release it. That would be great!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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tick battler
Frequent Contributor (1K+ posts)
Member # 21113
posted
Glad you all have made contact...sounds like some of you are having an impact! Still no response to the e-mail I sent. I guess I will have to give them a call.
Has anyone made contact with the stations in the Philly or NJ areas?
tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
You all are doing good getting them on board. Thanks for your efforts!
Still, to reply to your comment... "I don't expect Andy to give this away. But it sure would be big of him. At least give it to PBS stations. That would be huge."
I personally think Andy is already BIG... really really BIG. Amazingly BIG.
I believe the film was 5 years in the planning and making. I remember it before the first footage was even shot.
I saw Andy and/or staff and crew at every function we had going on during that time- filming, filming and more filming. CT, NY, NC, Virginia and elsewhere, some places repeatedly... like the hearings, etc.
He has traveled many many miles and for it has miles of film that was not used for this project and a zillion hours working on site in many areas of the country.
I also believe he stopped another project he was working on to do this one for us. Not many people would do that.
Plus there were donations of DVDs for educational purposes. Plus he and staff have gone unpaid to many screenings to answer questions about Lyme disease for the audiences.
He also appeared on various radio, and I believe TV shows too trying to help us.
Not to mention being blasted by the idiots the whole time. You must know they are NOT happy about this.
Then there were the trips to all the film showings (awards) that he had to attend to get the film noticed and on the map.
Bottom line, I believe he has paid his dues and then some. He could have easily walked away before, during or after this project and didn't. Neither did his staff of dedicated people, like Kris.
And one more thing. He not only filmed the story - but unlike most people, he "felt" it. Too many times I looked in his eyes and saw the pain he felt for our suffering.
Yes, in my opinion he deserves not only our cheers, but at the very least, adequate compensation for his work. He dedicated a good chunk of his life to our cause. As has Kris and others involved.
seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Good points TC. Funny at my gas stations, they just say fill her up w/o asking for money. The gas stations are owned by the doctors who don't want me to be late for my appointment you mentioned. They figure paying $40 for my gas is a small price to pay to get their $400 reimbursement from insurance for a 10 min consult in which they say can't be Lyme. Next patient please. Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
So I guess Exxon is making the same profits as the ducks? HA!
That is a might big profit!!!
BTW- Gas prices are nasty now, aren't they? UGGGGGG!!!!
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