SForsgren
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posted
Dr. Oz had a show last night on XMRV. Probably good that it is getting press and hopefully soon $$ for funding treatment research.
The thing that stuck with me was his statement something like "It doesn't just infect you, it becomes who you are" due to the fact that it inserts itself into our own DNA. It will be interesting to see how treatment options in this arena move forward.
I suspect most people with chronic Lyme will test positive for XMRV, but how much it contributes to symptoms and disease remains unclear.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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The thing that stuck with me was his statement something like "It doesn't just infect you, it becomes who you are" due to the fact that it inserts itself into our own DNA. It will be interesting to see how treatment options in this arena move forward.
Thats how all retroviruses work, they actually irreversibly alter DNA of infected cells by inserting their own code there. Many retroviruses are stuck in DNA across generations this way, some even are passed between species.
Posts: 856 | From MA | Registered: Jul 2009
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SForsgren
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True - as I understand, there are only two others that impact humans - HIV and HTLV.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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TerryK
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quote: it inserts itself into our own DNA
I've heard the same thing postulated about borrelia. This may be how autoimmune problems come about in lyme patients.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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posted
I thought it was inserted into the RNA.
Posts: 47 | From nj | Registered: May 2004
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lymie_in_md
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When we think of DNA and RNA you go back to watson and crick's double helix model. A very physically oriented model. But in the body I doubt it is rigid all the time, I'll bet it is more like little broken sticks then links together to a rigid structure and then turns back to little sticks again (especially during cell death). Each iteration has a chance to be modified.
The modification could go back to Dr. Bruce Lipton's biology of belief. How intention can affect biology.
if the sticks could be influenced by intention. The intention could pattern the DNA from prior memory, which I believe is stored. Our conscious mind, as limited as it is, may just vale how powerful our memory might be.
Besides, I'd rather hope a virus can't make a DNA change permanent. Permanence hasn't been proven yet and shouldn't be assumed.
Scott I'll bet you'll remember this:
Dr. K quoted microbiologist Gitte Jensen, Ph.D. who said that ``the older we get, the more foreign DNA is attached to our own DNA.'' Somewhere along the line, said Dr. K, pathogenic microbes invade the hosts' DNA and become a permanent part of it. ``Since we use only 2% of our DNA, it may not be a problem,'' commented Dr. K. In fact, it may make us who we finally become. It may also cause a number of symptoms and chronic illness
-------------------- Bob Posts: 2150 | From Maryland | Registered: Dec 2007
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SForsgren
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posted
Yes, I think it becomes twice as long as what it was a birth if I am rembering right - so we are half us and half them....
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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sparkle7
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You may want to look at Dr. Foster's theories about HIV. Since they are both retroviruses... it may work for both.
There are tons of studies bout it.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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Pinelady
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posted
Interesting stuff. Up for more.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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posted
Since it seems that one of the main symptoms of XMRV is fatigue, I'm wondering if those of us (not all but some or possibly most) who's main symptom is fatigue who can't seem to get over it is infected with XMRV. I've been to Germany, that didn't work, and I've tried every other treatment under the sun without much successful. I wonder if those in my boat actually are dealing more with this, a retrovirus, which is why it's so hard to get rid of.
I won't get tested, at least not now. I want to see more data and solid ways of treating it first become available.
Posts: 215 | From Phoenix, AZ | Registered: Jul 2008
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D Bergy
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The lingering symptom when my wife had a bout of Shingles, probably brought on by treating XMRV with frequencies, was fatigue and some Stomach problems.
However, Shingles involved Herpes Zoster virus, and when I treated for that virus the sores started fading 24 hours later. The fatigue and some Stomach problems remained, and later treatment eliminated the rest of the symptoms over night.
So now I am thinking that both XMRV and Herpes Zoster could cause fatigue, if activated. Possibly other retroviruses as well.
Since Shingles are known to be caused by Herpes Zoster, and you can have symptoms without the outward sign of Shingles. Maybe we should also consider Herpes Zoster as another possible virus that can cause fatigue. Also a virus that most everyone has.
My experience in treating viruses with frequencies so far indicates they are easily disabled using this method. Bacteria are much harder.
The viruses I have treated so far are XMRV, which judging by my response to treatment, I believe I did have. I also believe my son had it, as his response was similar to mine. I have done five treatments on myself and each treatment brings less response than the last. My last treatment produced almost no reaction.
I do not believe my wife had it, as she did not respond to it at all, and she is the one with Lyme Disease. In her case, it was the activated Herpes Zoster virus that caused fatigue, and a lesser amount of stomach problems.
I have also treated Colds and Flu viruses with good results, shortening the duration of illness.
Not double blind, placebo controlled studies by any means, but it is all I have at this time.
Dan
Posts: 2919 | From Minnesota | Registered: Aug 2006
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sparkle7
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The fatigue that one experiences with CFS is different than fatigue that one may get from a flu or other illnesses. I had CFS about 20 years ago. When I had CFS - the fatigue was relentless. I needed to sleep for 20 hours a day - when I could.
It was unending until I gradually started feeling better through diet & taking supplements. It took me 3-4 years to get over it. Some people aren't as fortunate as I was.
My unsubstantiated theory is that XMRV is from getting vaccines. I believe that the retroviruses are harbored in the body until one gets a virus or flu or has a stressful event. This triggers the retrovirus. It probably depends of the individual's genetics or whether one may have gotten a tainted vaccine sometime during one's life...
This is my personal theory. I don't know if other non-retrorviruses have anything to do with it. I was tested for many other viruses/pathogens such as EBV, herpes, mycoplasmas, etc. and none were evident - yet, I was given a CFS diagnosis.
Xenotransplantation is any procedure that involves the transplantation, implantation or infusion into a human recipient of either (a) live cells, tissues, or organs from a nonhuman animal source, or (b) human body fluids, cells, tissues or organs that have had ex vivo contact with live nonhuman animal cells, tissues or organs.
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Although the potential benefits are considerable, the use of xenotransplantation raises concerns regarding the potential infection of recipients with both recognized and unrecognized infectious agents and the possible subsequent transmission to their close contacts and into the general human population.
Of public health concern is the potential for cross-species infection by retroviruses, which may be latent and lead to disease years after infection.
Moreover, new infectious agents may not be readily identifiable with current techniques.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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posted
Also. check out CCSVI (google it)I bet some of you have this too, but the difference is that it is treatable.
Posts: 366 | From Europe | Registered: Nov 2008
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sparkle7
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re: Thats how all retroviruses work, they actually irreversibly alter DNA of infected cells by inserting their own code there.
There was a news story on Bloomberg news about how a German doctor was able to cure someone of AIDS & Leukemia using stem cell therapy. He has been in remission from both for over 3 years. I believe that some people are immune from HIV. One of these people donated stem cells that were used in the process.
I don't think retroviruses are incurable or irreversible - especially after what was done with stem cell therapy, recently.
This may be a way to go for people who may have XMRV. Time will tell... There are ways to boost our own stem cells but I don't know if it will help.
Hoosiers51
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posted
D Bergy,
Did your wife try the high lysine/low arginine diet for the shingles? If you do some googling, you will find the charts with the lysine to arginine ratio of foods. Just an idea, if she hasn't done this already. Hope it gets better.
Posts: 4590 | From Midwest | Registered: Jun 2008
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D Bergy
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posted
It was rather easily eliminated with frequency treatments for Herpes Zoster, once it was diagnosed. Nothing else was required.
The doctor that diagnosed it correctly, had no treatment for it.
Dan
Posts: 2919 | From Minnesota | Registered: Aug 2006
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quote: I don't think retroviruses are incurable or irreversible - especially after what was done with stem cell therapy, recently.
As of today they are. I mean once they infect the cell -thats it, until that cell dies its a factory for viruses. Once it infects many cells in your body - you have it forever. They never go away immune system might keep them from rampant spreading , but can not eradicate them completely
quote: This may be a way to go for people who may have XMRV. Time will tell... There are ways to boost our own stem cells but I don't know if it will help.
Stem cells have many promisting uses there are incredibly reports of it helping people with treatment resistant lyme and paraplegics
Treatments are very expensive though and you have to go overseas to get them. Plus there is very little data on how they actually work and they been in use only for a few years (no long term side effect research ).So I wouldn't call it available - it may take decades before you see any stem cell treatment available in US
Posts: 856 | From MA | Registered: Jul 2009
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posted
[QUOTE]Originally posted by sparkle7: [QB] The fatigue that one experiences with CFS is different than fatigue that one may get from a flu or other illnesses. I had CFS about 20 years ago. When I had CFS - the fatigue was relentless. I needed to sleep for 20 hours a day - when I could.
The fatigue I have doesn't have anything to do with sleep. I only sleep 8-9 hours a day, and that's with meds. It' more of a really profound weakness. I was diagnosed with CFS back in 1988.
Kathy
-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 807 | From South Dakota | Registered: Jul 2005
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posted
I wouldn't get excited about XMRV yet. Word is that the first few bunch of lyme and CFS patient samples are "inconclusive" and perhaps negative. Sounds like they still have some work to do on perfecting the test.
Posts: 770 | From USA | Registered: Jul 2006
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sparkle7
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posted
coltman- I don't disagree... It's just important to know that there are ways to beat an illness & that it is not hopeless...
The info about Dr. Foster's protocol I posted & the news about the man who was cured of AIDS & Leukemia with stem cells are important. Dr. Foster was able to help people in Africa with AIDS with a few simple supplements.
There are about 30 or so real studies about what was done. He didn't "cure" the HIV but the people were able to function & go back to living their lives after taking the selenium & the 3 amino acids.
The Chinese gov't also used a similar treatment of adding selenium to people's diet to prevent illness in areas that were low in selenium.
Kathy - what I'm saying is that fatigue with CFS is different than "regular" fatigue. Without going into alot of details, it may be that CFS can present with different symptoms...? It still may be XMRV whether the symptoms are fatigue or pain like in Fibromyalgia.
I guess we won't know until more studies are done.
Time will tell about XMRV. The CDC was very resistant to having CFS being a physical illness. They went out of their way to classify it as psychological. Not that emotional issues can't cause physical symptoms... It's just that having an actual pathogen really helps the cause.
So many times I had people say I was a malingerer, drug addict looking for painkillers, I was just depressed (all of which I'm not), etc. It's insulting to have people or doctors thinking that I have a mental problem when I have very evident physical symptoms.
I was denied disability since there is no test that offers "proof" that I am ill. My doctor said I was too ill to work & I should be getting some support but I was denied disability (to make a long story short).
I had a good job & I made a descent living. Why would I want to lay around all day & collect the pittance that they offer people who are ill or disabled?
I guess time will tell if this is going to pan out. Sorry if I sound angry. It just makes me mad about what they make ill people go through...
Stem cell therapy should be available to people here. They can collect stem cells from various parts of the body. It's not all from embryos... That's a whole other rant.
All the best to you!
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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posted
I am on full SS disability for Chronic Fatigue Syndrome, since 1988.
I woke up one day with what I first thought was the worst flu I'd ever had. They thought I had viral menengitis at first. I even went to th Mayo Clinic who said I either had some unknown virus, or a virus had damaged my immune systom.
I have been some what lucky in doctors, I have had alot of REALLY bad ones too. But I didn't have to go through with it's all in your head crap that most do.
Kathy
-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 807 | From South Dakota | Registered: Jul 2005
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