posted
So I have gone to the max with doses of neurontin and elavil (had allergic reaction to tramadol) and I am still in almost intolerable pain. What else do people do? I cannot take codeine- related things: allergic to them as well as Fentanyl patches. Anybody else with this level of pain? What do I do?
Posts: 360 | From New York | Registered: Oct 2009
| IP: Logged |
Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
One thing to do is to try to reduce the level of inflammation.
Fish oil Magnesium Systemic enzymes Antioxidants
Sublingual B vitamins reduced nerve pain for me.
Carol
Posts: 6947 | From Lancaster, PA | Registered: Feb 2004
| IP: Logged |
posted
The use of antidepressants, like Ativan, in combination with pain meds, has been shown to increase the effectiveness of the pain medication in some patients.
Posts: 212 | From Pennsylvania, USA | Registered: Jul 2009
| IP: Logged |
Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
Okay, perhaps you need to increase the dosages?
Also, I've read that neurotoxins from the dead Lyme bacteria can cause symptoms. The liver needs the building blocks for glutathione production, in order to detox neurotoxins.
Dr. Jacob Teitelbaum has many suggestions to relieve pain in his book, Pain Free 1-2-3.
posted
Clarification. I am taking anti oxidants, fish oil, NAC, ALA, Milk Thistle, sublingual B, Don't know why my post went up twice. I am at the maximum dose of Neurontin (3600 mg/day) and am taking Elavil (antidepressant) to enhance the Neurontin. It is all still not working. I will check out the pain links. My LLMD feels that this is a die-off that was triggered by an IV Glutathione injection 2 weeks ago. I keep hoping it will end soon, but in the meantime...
Posts: 360 | From New York | Registered: Oct 2009
| IP: Logged |
Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
Ohh....IV glutathione.
I'm not sure how that could trigger a die-off. The suppositories are on my list of things to try.
Carol
Posts: 6947 | From Lancaster, PA | Registered: Feb 2004
| IP: Logged |
cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
What type of pain is it?
I, too, am allergic to all codeine-related meds, even synthetic codeine, as well as morphine and dilaudid.
Makes pain management a challenge.
My pain was mostly nerve-related, and I tried both elavil and neurontin with no luck.
Actually felt better once I got off of both of those meds.
There are a few other meds like those you could try - I can't think of the names at the moment. I tried a few with no luck.
What did seem to help to a degree was Cymbalta.
Also, b-12 injections, over times, seemed to help.
Darvocet, ultracet... while not necessarily for nerve pain, were in my arsenal against pain (I had some specific pain that was not nerve-related, and these meds helped take the edge off of that).
Maybe if you say what type of pain it is, it will jog my memory as to what I've used in the past, since we have similar allergies.
Hoping you find relief soon.
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
| IP: Logged |
posted
Find a pain-relief specialist. They will help you find something that works for you. There are other opiates available that most people who have a bad reaction to codeine seem to tolorate well, high end NSAIDs, muscle relaxants and others.
Posts: 690 | From East coast, USA | Registered: Jun 2006
| IP: Logged |
~ ~ Hope is a powerful medicine. ~ ~ Posts: 2775 | From MN | Registered: Apr 2001
| IP: Logged |
merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
I take oxycodone 3 times a day with fentanyl patches... I know you said you were allergic to the fentanyl. B12 shots help and so do hot baths
Posts: 3905 | From USA | Registered: May 2007
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/