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» LymeNet Flash » Questions and Discussion » Medical Questions » hydrocortisone pills would be a no-no, right?

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Author Topic: hydrocortisone pills would be a no-no, right?
sickpuppy
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One of my docs wants me to take hydrocortisone pills for adrenal insufficiency/fatigue.
This flies in the face of everthing I've been told or read.

Right?

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Lymetoo
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I take them... depends upon your problem and the dosage as to whether they are "OK". What dosage is he suggesting?

--------------------
--Lymetutu--
Opinions, not medical advice!

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sickpuppy
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If I'm reading the script right, 5mg 2xday.

See I had a corticosteroid shot before I knew I had lyme. You can guess what happened. I had a bad vibe about it and I wish I 'd listened to myself. Now I'm scared of cortisoneanything.

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Lymeorsomething
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Cortef at physiologic doses~~>OK
Prednisone~~>Bad

I did 3 mos. of Cortef at 20mgs and it did nothing. It was worth a shot though and I had little to no side effects.

I have a feeling an even higher dose may have helped but I wasn't willing to go there.

Yeah, my doc gave me a course of Prednisone after mono several years ago. That turned out to be a bad idea.

--------------------
"Whatever can go wrong will go wrong."

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Tracy9
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That is fine. Lots of us take it.

I'm in fact on Prednisone right now for severe bronchitis. Sometimes the benefits outweigh the risk. I felt breathing was more important.

Exactly what is is Prednisone is supposed to do to us that is bad, anyway? I had it IV in the ER and am on it for five days. My lyme load is not that high anymore. My CD 57 is up to 120, so I didn't think it would be too harmful, but frankly when you can't breathe and that's your last resort, it trumps all else.

I may need some IV Prednisone to get me through the IVIG though; I've been getting bad anaphylactic like reactions. Since I'm on it now anyway they've been controllable, but I'm worried about next month, so I'm trying to recall why it is so bad with Lyme.

--------------------
NO PM; CONTACT: [email protected]

13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG.

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Keebler
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-
Prednisone is not the same as low-dose hydrocortisone (Cortef). Not at all.

Low dose Hydrocortisone can be instrumental (as PART of a protocol) in successfully helping a lyme patient recover; predisone can bring disaster for a lyme patient (unless just for emergency).


Unless an emergency and under the care of a LLMD, a patient with lyme can be damaged by prednisone. and other steroids.

But, as Tracy points out, if an an emergency and under LLMD care, it can work - for very short periods of time. But, it can also become a disaster if the right care is not taken to control infections.

There are also other ways to address inflammation.

Prednisone, though IS so bad with lyme for these reasons:

--------------

http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf

Dr. Burrascano'sTreatment Guidelines (2008)

Excerpts:

P. 4:

. . . More severe illness also results from other causes of weakened defenses, such as from severe stress, immunosuppressant medications, and severe intercurrent illnesses.


This is why steroids and other immunosuppressive medications are absolutely contraindicated in Lyme. This also includes intraarticular steroids.

. . . .

From page 12:

. . . More evidence has accumulated indicating the severe detrimental effects of the concurrent use of immunosuppressants including steroids in the patient with active B. burgdorferi infection.


Never give steroids or any other immunosuppressant to any patient who may even remotely be suffering from Lyme, or serious, permanent damage may result, especially if given for anything greater than a short course.


If immunosuppressive therapy is absolutely necessary, then potent antibiotic treatment should begin at least 48 hours prior to the immunosuppressants. . . .

Page 20:

. . . and absolutely no immunosuppressants, even local doses of steroids (intra-articular injections, for example). . . .

====================

http://www.lymenet.de/literatur/steroids.htm

Antibiotics and Steroids

by John Drulle, M.

Excerpt:

. . . "Steroid Disaster" is a term coined by the pioneer of Lyme Treatment . . .

Corticosteroids are immune suppressants, the last thing a Lyme patient needs is to lower immunity.


Can you imagine, your body trying hard to fight off the spirochete bacteria and suddenly and immunosuppressants is introduced, "freezing" your immune system, rendering it unable to battle, giving great advantage now to the Lyme bacteria to spread and go wherever it wants .

Corticosteroids can last in the body for months, usually around 6 months. In many bacterial infections such as LD, damage can be done.

Many Lyme patients (such as myself) triggered LD with cortisone shots, pills, inhalers, etc. I can tell you, it is a nightmare I wouldn't wish on my worst enemy.

It is imperative to NEVER take corticosteroid for pain if you know you have a bacterial infection.

Some bacterial infections are so severe that a shot of cortisone could kill you, although that would be unlikely with Lyme, but rule of thumb, bacterial infections and immunosuppressants do not mix!

. . .

Dr. Burrascano makes it clear in his treatment guidelines that steroid treatment is detrimental, these are excerpts from his guidelines:

"More evidence has accumulated indicating the severe detrimental effects of the concurrent use of immunosuppressants including steroids in the patient with active B. burgdorferi infection.


Never give steroids or any other immunosuppressant to any patient who may even remotely be suffering from Lyme, or serious, permanent damage may result, especially if given for anything greater than a short course.


If immunosuppressive therapy is absolutely necessary, then potent antibiotic treatment should begin at least 48 hours prior to the immunosuppressants.


The severity of the clinical illness is directly proportional to the spirochete load, the duration of infection, and the presence of co-infections. These factors also are proportional to the intensity and duration of treatment needed for recovery.


More severe illness also results from other causes of weakened defenses, such as from severe stress, immunosuppressants medications, and severe intercurrent illnesses.


This is why steroids and other immunosuppressants medications are absolutely contraindicated in Lyme. This also includes intra-articular steroids."

An easy explanation. Your immune system are the "soldiers" of your body constantly standing by to attack any foreign invader.


When an immunosuppressant is used, it is like killing off or knocking out most of your "soldiers", now your body is open to all foreign invasion and while your immune system is knocked out, those invaders can go anywhere, your heart, liver, brain - everywhere.


=======================

Back to the ADRENAL question and the matter of HYDROCORTISONE (CORTEF) -


However, temporary (weeks to months) use of very LOW (sub-clinical) dose hydrocortisone (Cortef) has been used as the last resort for lyme patients close to adrenal failure.

The adrenals (and the entire endocrine system) really takes a hit with lyme. Adrenal failure can become fatal so, if nothing else is working, Cortef can be a life-saver - or prevent a patient from reaching a critical stage.

Under the care of a LLMD, this can give the adrenals enough of a rest in order to start healing. However, usually adrenal support measures known as adaptogens are first tried. For most, adaptogen support is enough (along with good self-care).

Those include Eleutherococcus senticosus, Ashwagandha, Cordyceps or Rhodiola (starting slowing with a low dose as that can be too stimulating and too much stimulation is damaging to adrenals).

Vitamin B-5 is also a helpful support for adrenal function as is Fish Oil. Curcumin can help lower stress in the body, thereby being a support to overworked adrenals.


http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf

* Dr. Burrascano's Treatment Guidelines (2008) - 37 pages


Sections regarding how to best take care of your rest/energy requirements:

Go to page 27 for SUPPORTIVE THERAPY & the CERTAIN ABSOLUTE RULES

and also pages 31-32 for advice on a safe, non-aerobic exercise plan and physical rehabilitation.

===================


This book, by an ILADS member LLMD, holds great information about treatments options and support measures that offer solutions for adrenal support and for help reducing inflammation:

http://tinyurl.com/6lq3pb (through Amazon)


THE LYME DISEASE SOLUTION (2008)

- by Kenneth B. Singleton , MD; James A. Duke. Ph.D. (Foreword)

You can read more about it here and see customer reviews.

Web site: www.lymedoctor.com

-

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Lymeorsomething
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Well, Pred post-infection in short courses is OK and for medical emergencies obviously but is probably not advisable as a longterm therapy in the presence of an active infection.

It's an immune suppressor. Plus it may suppress or turn off natural production of cortisol.

--------------------
"Whatever can go wrong will go wrong."

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Keebler
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sickpuppy,

you had asked me this in a PM, sorry, I just didn't have energy to reply. But, seeing the steroid question here, I wanted to share links so be sure to read everything about this.

First, if low-dose your doctor may be giving you good advice. But, even if a higher dose, it depends on what is going on with YOUR body. People can die from adrenal failure so it's nothing to ignore. Is your doctor LL? Hope so as lyme really messes with the adrenal function in ways that are unknown to most doctors.

* Get Singleton's book and study the section on adrenals. It's vital to have that book. Borrow it or whatever but read it.

Then you can move on to other authors' on this issue in general. Singleton's is specifically for lyme patients.

* Sarah Myhill, an MD in the UK also has great detail for "CFS" patients. While for "CFS" patients, and lyme is not detailed, she has fabulous information applicable to lyme patients - and her work helps further understanding. Google her site

* After reading about some of the support methods in Singleton, you may want to go to Amazon and search for books on Adrenal Fatigue and "Adaptogens" - then see if your local bookstores or library can get those for you.

* There have been MANY past threads about adrenal issues. Be sure to read them as many good explantions and links are there:

http://flash.lymenet.org/scripts/ultimatebb.cgi/ubb/search/search_forum/1

Search for in subject line for: Hydrocortisone

Search for: Cortef

Search for: Adrenal / and for "Adrenals"

-

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Tracy9
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Thanks for the great information, Keebler. I get so confused about the immune stuff; maybe you can answer this for me.

I believed I was very immunosuppressed for a long time; example never caught a cold for years, etc...believing my immune system was not working much at all.

Now I'm diagnosed with a rare autoimmune disorder. So my immune system is attacking itself. Hence starting the IVIG.

What is the difference? Am I NOT immunosuppressed, but my immune system is actually working too much? Would that mean steroids would be good?

I have been confused about this ever since I received the diagnosis. Thanks in advance if you can shed any light in layman's terms.

--------------------
NO PM; CONTACT: [email protected]

13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG.

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Lymeorsomething
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Trace, yeah...cortisol can help out with autoimmune diseases at times, which is why it is often employed in the treatment of arthritis...

--------------------
"Whatever can go wrong will go wrong."

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Lymetoo
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Maybe Keebler can explain this way better than me, tracy.. but I do know that our immune systems have two parts.

One is in overdrive and the other is not working hard enough.

So you are both.

puppy.. I'm on 10 per day. I wouldn't want to be on anymore than 20.

The cortisone shots are TERRIBLE for Lyme patients. It's a very high dosage of prednisone.

--------------------
--Lymetutu--
Opinions, not medical advice!

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Keebler
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Tracy,

If you have a good LLMD working with you every step of the way, you should be fine as they will be considering all this.

Some with lyme get the wrong dx of autoimmune disorders as the body is actually TRYING to hunt down the lyme in hiding. And doctors who don't know about lyme get in a lot of trouble making assumptions with this.

But for those lyme patients with a specific autoimmune conditions that the LLMD is certain is not an overactive system in the presence of infection, it can all be sorted out.

Lyme messes with all body systems in ways that non LLMDs just can't fathom. But there are times when lyme is not responsible for all symptoms - or lyme has so beaten down certain systems. So, the LLMD should be on board with other specialists to be sure all the bases are covered.

IVIG has helped many lyme patients recover. It may just be the ticket in your case.

-

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Tracy9
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I have a very brilliant LLD who is a neurologist,and my autoimmune disease was diagnosed by biopsy, so it is definitive.

Getting this diagnosis in conjunction with my CD 57 going from 32 last year to 120 this year, and all of my symptoms fitting into the autoimmune diagnosis, was a real eye opener. Well, most of them; clearly still beating down SOME lyme. So I'm treating both.

But I have hope now, at long last, and finally understand why despite extremely aggressive Lyme protocols over the last couple of years I have done nothing but get worse and worse; compared to how I was the first three years I had Lyme.

This autoimmune disease, BTW, is also CAUSED by Lyme.

I feel good about it, and can't wait to be better.

Thanks so much to both of you for clearing up the immune system question.

I have my first "cold" now in years and the damned thing won't quit. Two full weeks and stil in full blown severe bronchitis and a resolving sinus infection. Bless that recovering immune system.

--------------------
NO PM; CONTACT: [email protected]

13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG.

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Lymeorsomething
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Tracy9, can you pm your LLMD's name to me? Thanks...

--------------------
"Whatever can go wrong will go wrong."

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Keebler
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After seeing this article in 2004, I explored ways that I might get IVIG but that was just not an option due to the state in which I lived and other practical matters.

The Last 3 paragraphs here highlight one young girl's success with IVIG treatment:


http://www.newsweek.com/id/54939

A Disease In Disguise

-

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sickpuppy
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Wow, what a great bunch of info!

Dying from adrenal fatigue--that's scary.
Over the summer, when I was trying to figure out what was wrong with me, I bought a book about adrenal fatigue. I'll look at it again.

KEEBLER, thanks for your in depth response. Are all the adaptogens herbal/natural organic things? I know cordyceps are mushroom derived--scared of that because of problems with some.

On the COrtisone, seems like 5mg 2 times a day is low dose enough.
It's just that reading about hydrocortisone on www makes it sound like cortisone. The doc who recommended them IS LL but I have trouble trusting doctors.

What a giant thing lyme is to navigate through. I'M SO GLAD all the good people at lymenet are so willing to explain, and then explain again to all us newbies!

THANK YOU!!!!!

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Keebler
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-
Cordyceps IS a fungus but one that is a fabulous gift. Not all fungi are bad, some are superb, indeed. The study of "Medical mushrooms" is a fabulous journey, full of wonder (and no, I don't smoke any "special" mushrooms).

Do not fear mushrooms. Get to know the good ones. Embrace them. Love them. Honor them.

Even eating a large portabella mushroom four or five times a week is an excellent way to feel better. Lots of good protein in one of those things - and that's just the beginning.

I will say that I ignore the gourmet chefs who just brush their mushrooms. I want my washed. With the second to last rinse, I add a drop of iodine, let it set a minute and then rinse.

If I'm out of iodine, I use a few drops of grapefruit seed extract in the 2nd to last rinse.

I cannot master the gourmet delights due to soggy mushrooms but they still taste fabulous and I feel nourished by them.

But, back to CORDYCEPS. It can literally be a cornerstone to saving your life. It not only helps the adrenals, it also helps the lungs. It does not push, boost or wire . . . nor sedate, clobber or make you feel hung over. It is a superb FOOD that gives your organs specific and concentrated nourishment (can't call it an herb as medical mushrooms are in a class of their own).

----------

No, not all adrenal supplements are organically grown. Some are. Some are not. Some cannot be, due to the nature of the way they grown or are harvested but, still, clean practices may be employed.

You'll need to find out with each product, each company.

As for dosage, if you have been Rx to begin 5 mg, twice a day, yes, that certainly seems within the range that the LLMDs are using it and also the range the other doctor/authors discuss as being sub-clinical so that you can come off of it when your adrenals have been rested and repaired.


If you have trouble trusting ANY doctor, you are in big trouble.

There is no way you can learn all you need to on your own in time to save your life. You cannot possibly obtain the experience of a good LL doctor. None of us can.

The key is finding a good doctor. It sounds like you already have one. If not, look elsewhere but if your doctor is good, you hit the lotto and have a priveledge (sp?) that 98% of American lyme patients can only dream of: a good doctor.

So, if you have found a good one, trust both the doctor and the process. Be engaged in communication - dialogue - questions with your doctor and you will learn more as you go. That usually helps with trust.

Read from various sources. And follow the self-care rules explicitly.

This process can be grueling. Once you have a good path planed out, TRUST. Let the process work.

-

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seekhelp
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Keebler, if you're highly allergic to molds, would Cordyceps be a problem since mushrooms are mold?
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Keebler
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Good question and one I asked when first told to take Cordyceps. And, just to further gross me out, when I read that Cordyceps grew out of worms in the damp woods, I was totally out the door.

I read then that cordyceps was the basis for developing - are you ready -the drug ROCEPHIN. Yep. That very drug that helps treat lyme. But - sadly, no - it is not interchangeable. Still, it captured my attention.


So, I kept reading. And I was enthralled. I don't care if it had been the actual worm itself, the good reports from those ingesting cordyceps offered promise. It was so revered in ancient times in China that only the top nobility was allowed to have it. It was their power and strength. And I wanted some of that.

Enthralled, too, when I experienced a kind of strength that was gentle, not like these blast-off energy drinks harming our young people by the droves.


Now, rather than from worms, most Cordyceps is cultured in a lab setting, either on wood or in a base of rice flour. You can ask.

---

Back to your basic question, my first thought is that there are probably billions of species of molds - or beyond - and they vary tremendously.

There is a difference between a fungus that is able to turn into a food and a fungal infection.

Once a food, it has "grown up" so to speak - it is no long JUST a fungus. A mushroom is a complex constellation of many nutrients, greater than the simple mold from which it grows.

That's my take on it and these words just came to me. I'd see what mushroom researchers/ authors had to say.


I tested with blood work from the biotoxin doctor/author in Maryland, Dr. S, as highly reactive to mold - actually - he said that GENETICALLY, I was predetermined to have that as something to fight my whole life - so much so that he strongly suggest I never take an abx unless life threatening.

I can't think of the way he explained it, exactly, but my wording comes close to how I understood it, anyway.


Still - Cordyceps works extremely well for me. I eat all kinds of culinary mushrooms and feel fabulous with them.

Yet, I can nearly go into a seizure if I step into a house with a mold problem. I have passed out from mold exposure.

So, while I am not at all a medical professional, I just offer my experience. All molds - all fungi - are not at all the same and I think some are far distant cousins - far removed.

It's kind of like saying hemp is the same as marijuana. They are in the same family but so very different. One could never get high, no matter how much hemp one would smoke.

Still, of course, allergies can be surprising. With any new food or supplement, do a test run. Wait a day or two. Do another.

But, FIRST - you can do a research hunt for the professional articles that may address this question.

I do know that some have written those with candida should avoid mushrooms but others have also written that there is no connection. You'd want to see many professional's word on this to compare and contrast their views, study their reasoning and then form your opinion.

When I did this, I saved none of the sources. But I'm confident in what I discovered for myself. For someone else, that could be different, even at different times if allergies are involved.

-

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canefan17
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Please watch this.
http://www.youtube.com/watch?v=6HMiGo4Y2g0&feature=related

Read this
http://www.womentowomen.com/adrenalfatigue/adrenalglandnutrition.aspx

Go the natural route. Support the adrenal.

I have a ton of posts on here about your adrenals.

Just supping it with HC isn't always enough. For one... the timing is key. You load the endocrine system up with your dailey regime of HC.... it uses some and dumps the rest.

The endocrine system doesn't work like this. It works at a pulse rate. Every few seconds the endocrine system is adjusting something, or pumping something, secreting hormones, etc etc

Giving it HC at certain times in a day is hardly helping it. In fact, it's just doing it for the adrenals. The adrenals don't necessarily recover this way.


I urge you to support your adrenals naturally with supplements, herbs, vitamins, minerals, etc.

I have a list of supplements I take for my adrenals if you're interested.

Research it more

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Keebler
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As I understand it, the way it is supposed to work is that patients are first advised to these adrenal support / adaptogen herbs and supplements and, if that is not enough, then some LLMDs add a low dose hydrocortisone, as the last resort.

So, canefan17 has an excellent caution. Unless on the edge of emergency status with adrenal failure with one foot in the ambulance . . . it is best to start with the food sources of concentrated nutrition in the adrenal supplements.

Sometimes, that is enough. But, sometimes, the Rx is necessary.


Self-care, of course, is also an essential element. Sometimes, avoiding all TV (or even movies), is necessary. It really makes a difference. Even the commercials can damage adrenal function.

Travel videos or lecture may be okay but there is also just something about the lights/sound/electronics of computers and TVs that are very damaging to those with weak adrenal function.

I'm trying to learn to real read books again. It's really hard. The effects of TV and computer are truly like a drug.

Our actions are equally as important as whatever we ingest. Our actions actually also "ingest" all sort of messages that create chemical reactions inside our bodies. When dealing with adrenal exhaustion, everything matters.

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sickpuppy
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Keeble, my caveat is that I'm allergic to portobellos and ****akes. Scary green around the gills, incapacitated allergic. This has made me shy with mushrooms in general, even though some are ok. I have to be up for and have help for 'experiment days.'

Canefan, I'm starting to loose track. If you haven't told me what you do for adrenal support, I'd love the list.

I read somewhere that vit c and pantothenic acid B5 are winners.
Then adaptogens: eleutherococcus senticosus, ashwagandha, the cordyceps we've been talking about, or rhodiola. This later list is compliments of Keebler, if I'm not mistaken.

Thanks for the doctor trust peptalk Keebler. I know what you're saying.

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Lymeorsomething
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If you're going to run long-term cortisol, a good book is the Safe Uses of Cortisol by William Mck. Jeffries.

--------------------
"Whatever can go wrong will go wrong."

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Keebler
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-
sickpuppy,
Well, I wish I had know you were "scared" of mushrooms because of an allergy but you did say :

" . . . scared of that because of problems with some." end quote

--

I had thought you meant problems with the way mushrooms are grown or some references to candida and systemic yeast.

I really need to ask better questions before I reply. I would have saved a lot of time had I asked that first. Of course, an allergy is a far different thing than just "being scared" of something.

In a case like yours with an allergy, of course, consult your doctor.

-

[ 01-14-2010, 08:10 PM: Message edited by: Keebler ]

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sickpuppy
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Keebler, your time was not wasted on the cordyceps riff. I'm glad to know and will keep in mind as I work through all my various quirks and as my treatment unfolds.

BTW, I love the way lymenet bleeped ****ake (mushrooms)! I bet they just did it again. That's the kind of thing that helps depression! HA!

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sickpuppy
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yup, they did it again. Ha!
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canefan17
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Adaptocrine K2
Vit C + Biolfavlanoids
Pantothenic acid B5

Adrenal Stim and Calm Creams

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elley0531
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Keeblrt-thats so funny what you said about TV. I have my worst moments right now watching TV. I have taken to doing almost nothing but netflixing lowkey documentaries because its too muhc.

Can't do much about computer use unfortunately since I work for a publishing house.

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Keebler
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sick puppy,

hmmm. I can't image what mushroom sounds like a swear word. Funny.

Ohhh, shiitake mushroom.

=======
elly,

Yeah, NetFlix saves my sanity. You can also get DVDs of past series without all the commercials. I really like movies from Europe and they are not on torched-out steroids like most of the Hollywood movies.


You can tone down the brightness and change the "refresh" rate on your computer to ease your eyes.

A polarized screen is also a huge help. I had one but lost in from loaning it out for a while - they then got rid of it, Boo, hoo !

I've also experimented with different color gels over my screen and some computers will let you add a soft hue. Mine is a bit apricot.

Were I to use glasses for the computer, they could be tinted.

Total avoidance of all kinds of fluorescent lights is a must to help the adrenals not get juiced up, too.

===========

http://www.nowpublic.com/health/low-energy-bulbs-can-trigger-migraine-seizures-and-pain

Low-energy bulbs can trigger migraine, seizures and pain

canbravelyme posted this link:

Lights can be a significant trigger; check out these lenses which help with photosensitive triggers:

http://www.springerlink.com/content/cduj8xglwanufppj/

Effectiveness of a particular blue lens on photoparoxysmal response in photosensitive epileptic patients.

-

[ 01-14-2010, 08:33 PM: Message edited by: Keebler ]

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Keebler
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After studying Burrascano, Singleton and other LL authors on this subject, I would also look at these.

I've read the top one by Wilson. Excellent.

Many libraries carry this book and you can read 95 customer reviews here (average 4.5 star out of 5) AND see inside the book:


www.amazon.com/Adrenal-Fatigue-Century-Stress-Syndrome/dp/1890572152/ref=sr_1_1?ie=UTF8&s=books&qid=1263516913&sr=8-1

Adrenal Fatigue: The 21st Century Stress Syndrome

~ James L. Wilson, ND, DC, PhD, Johnathan V. Wright, MD

About $10. And qualifies for free shipping with a total $25. Purchase at Amazon

========================

This is the book mentioned above by Lymeorsomething:

www.amazon.com/Safe-Uses-Cortisol-William-Jefferies/dp/0398075018/ref=sr_1_1?ie=UTF8&s=books&qid=1263517907&sr=1-1

Safe Uses of Cortisol

William McK. Jefferies, MD

Yikes! This book sells for $70.00 but you can take a look inside at the link above. I don't know if libraries carry it but you can try that.
-

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seekhelp
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Sickpupply, an ART practicioner I saw said Prime One is the premier adrenal support formula. It was given to Russian Olympians and royalty. Keebler did research it before and the ingredient list and dosage is proprietary unfortunatly.
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NellieK
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I asked my doc about this very thing -- I have low cortisol levels in the morning, and the hydrocortisone (5 mg, just once a day) really wakes me up, although lately I've been waking up naturally at 8am which is something I've NEVER done before! I stopped taking the hydrocortisone for a little while, thinking the same way you did that it was contraindicated for Lymies, but then my sleep patterns got screwed up again despite the sleep meds, so I'm taking it again and am now waking up naturally in the a.m. again. My doc said the dose is so small that it wouldn't hurt despite the Lyme, but that's just one doc's opinion.
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Lymeorsomething
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Nellie...yeah 5 mgs is really nothing (providing we're talking cortef) so if it helps you're one of the lucky ones [Smile]

One LLMD I had recommended that dose too...

--------------------
"Whatever can go wrong will go wrong."

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elley0531
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I am going to buy some of these books (not the $70 one haha). Low on funds but nothing makes me feel more in control of things than researching.
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sickpuppy
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Ok lots of reading to do.

Last night a friend of the fam who went to this same doc (that rec the hydrocort) took it and it made her worse. This is the college age daughter of the fam friend parents--both parents have lyme too. Maybe a fluke.

Keebler and Canefan, Thanks too for the new post on adrenal support and all the YouTube links.

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trigal2
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Keebler; I was reading through this posting topic with great interest as I underwent minor surgery yesterday and needed one dose of pre-surgical IV steriods. My LLMD informed my surgeon to couple it up with the IV version of my lyme antibiotic and felt that it would not be a problem.

Now I am pusling two abx.'s to keep things in check... Like you or someone else said, it can be done under the right and most careful of conditions. Still, even after one IV dose I am worried...

Anyhow...I noticed your post in Cordycep. I found that intersting because I have a mold allergy and when I took this supplement I would get asthsma like symptoms.

Then the real kicker came when I had my first dose of IV Rocephin. Within 2 minutes I had an anaphalactic reaction - lungs closed up.

I never knew there was a connection between Cordy's and Rocephin...Things that make ya go hum.... I knew there was a slight cross reacton between penecillin and rocephin but too small to worry about. Well, nothing is every too small to worry about - especially with lyme patients!

Thanks for the info. on Cordyceps. TG

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Lymeorsomething
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Tracy9, thanks for the info. and your inbox is full just so you know.

--------------------
"Whatever can go wrong will go wrong."

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pas
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Hey guys,

The Jeffries book (Safe Uses of Cortisol) that a few others here have mentioned is really amazing.

I did a lot of searching for cheaper versions, and the best I could do was directly from the publisher. Here's the link: http://www.ccthomas.com/details.cfm?P_ISBN13=9780398075002

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Lymeorsomething
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pas, yes a great book and invaluable to those using longterm cortisol...

--------------------
"Whatever can go wrong will go wrong."

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sickpuppy
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I found this tonight:

http://www.stopthethyroidmadness.com/tims-story-of-lyme-disease/

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