posted
"She said to have mycobactrium, i needed to have a runny nose, and a cold. I dont have a cold, so she said i dont need treatment, i feel like crap!!! "
WHAT??? Mycobacterium avium is MUCH more serious than a runny nose! It is disease of the lungs. Is she confusing this with Mycoplasma, which can have cough/cold symptoms?
The American Thoracic Society (ATS) and Infectious Disease Society of America (IDSA) guidelines recommend the following criteria to establish a diagnosis of NTM lung disease:10 Clinical Pulmonary signs and symptoms such as cough, fatigue, weight loss; less commonly, fever and weight loss; dyspnea Appropriate exclusion of other diseases (eg, carcinoma, tuberculosis) Radiographic Chest radiograph with nodular or cavitary opacities High-resolution computerized tomography (HRCT) scan showing multifocal bronchiectasis and multiple small nodules Bacteriologic (meeting one of the below criteria within one year) At least 2 culture-positive sputum samples At least one culture-positive bronchial washing or lavage Biopsy with histopathologic features consistent with mycobacterial infections (eg, granulomatous inflammation or positive AFB stain) and positive culture result (sputum, endobronchial, or biopsy specimen)
Posts: 819 | From East Coast | Registered: Apr 2009
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posted
Im so sorry you're not feeling better. Im also so glad that you still have your appt with the LLMD...as for me I would go back to her...
We already spend too much money on this "mess".
Save your money...you'll need it for the LLMD but at least you'll be on the right track to getting better rather than spending it on someone who is unwilling, uneducated, and/or uncaring enough to see the "big" picture and help you.
Good luck and Merry Christmas,
God Bless, Karen
Posts: 423 | From Virginia | Registered: Nov 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Kudos to kitty9309 for the links. Yes, mycobactrium can be very serious, especially to immune compromised people.
Your ID doctor did not entertain the idea and won't, probably because you uttered the "Lyme" word. To return to her, to hire her for her "knowledge" would not serve you well at all. Glad to see you have a LLMD appt. soon. Stick to the more educated doctors and drop those who aren't.
Did you give that ID doctor your LLMD's name? It's probably on your lyme test so she'd have that. Often the IDs will report the LLMDs and cause lots of trouble for them.
My guess is that the ID did not even consider other tick-borne infection. Be sure your LLMD does. If you have babesia, that affects the lungs.
If you suspect mycobactrium, first, you'd want to totally avoid all dairy products to help reduce the phlegm stickiness. Even yogurt can contribute to this.
Of note in the news last year: be sure to change all the shower heads in your home. Or stick to baths.
Even the aireators (sp?) on the faucets, too. And cleaning out the drain pipes if you see gunk collecting. Cleaning all exhaust fan units is important, too, but best done professionally or by someone healthy who is still wearing a mask and who will then also clean the whole bathroom. But you'd want to study more on cleaning methods first.
Apparently cleaning shower heads even with bleach did not work and made it worse.
My lungs have been better since I changed my shower head.
I hate the (perhaps unnecessary) consumerism involved with getting new stuff, and would like to explore other cleaning options . . . it may be good to read this and then search further on the topic:
As for what to do in the meantime: A sputum test may be good if you can muster that and find a doctor to do it. But test or not, Allicin capsule(taken in the middle of a meal) may be a good choice- and Lomatium extract. You might run that by your LLMD.
Thanks to daystar1952, for this link below posted on other thread today. Stinging Nettles really help my lungs - a lot. Nettles also help decrease the cytokine storm such as during a herx.
WHAT IT DOES: Stinging nettle leaf is bitter in taste and cooling in action. It cleanses the blood. Nettle seed nourishes and removes toxins from the kidneys.
. . .
* Nettle leaf extracts reduce inflammation, in part, by suppressing the release of inflammatory cytokines. They do this by blocking a chemical inducer known as NF-KappaB, which alters gene expresion. This may be one explanation for the beneficial efffects this herb has exhibited in rheumatoid arthritis (Riehemann et al., 1999).
* One set of in vitro experiments on live blood using extracts of stinging nettle leaf exhibited its ability to slow down the inflammatory cytokine response caused by endotoxins.
In the same experiments, when there was no endotoxin present, the nettle leaf actually stimulated an immune response. Researchers believed these results could explain the positive effects of this extract in the treatment of rheumatic diseases (Obertreis B et al., 1996).
- Full chapter at link above.
From ``The One Earth Herbal Sourcebook'' (Tillotson, et.al.)
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Regarding your weight loss and weakness:
Root vegetables may be an excellent help for the concentration of vitamins an minerals and to build strength. Beets, particularly.
The leafy greens and above ground veggies and fruits help with more instant energy requirements. All the colors help as antioxidants.
Good fats can also help you feel better. But many of us don't get enough protein.
Protein helps our bodies make glutathione and that helps the liver detox . . . protein's amino acids help our brain, our hearts, our muscles, etc., etc., etc.,
Taurine (found mostly in muscle meats) is vital, too. Vegetarians and vegans should consider supplementing taurine, as well as B-12 and L-Carnitine.
THE REQUIREMENTS OF PROTEIN & AMINO ACID DURING ACUTE & CHRONIC INFECTION . . .
Anura V. Kurpad - Institute of Population Health & Clinical Research, Bangalore, India 129. Indian J Med Res 124, August 2006, pp 129-148.
Excerpt:
" . . . In general, the amount of EXTRA protein that would appear to be needed is of the order of 20-25 per cent of the recommended intake, for most infections. . . ."
- Full article at link (or google the title if it does not go through).
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