posted
Before illness, I was one that would sweat heavily (but normal) with exertion or high heat. However, I visited a Korean spa/sauna with 9 saunas, and I didn't really sweat. I sweated a little bit in their hottest room, but just through the face mostly. However, the heat in that room was unbearable so I could only stay a few minutes.
I tried many rooms, both FIR and non FIR at many different temperatures.
Something is wrong with me. I went with my older sister, and she sarcastically said "you are not the brother that I remember" considering how much I used to sweat.
I'm not on treatment right now because I couldn't handle it. I am exercise intolerant. I took a 2 mile walk today and it made me feel awful for several hours. It was going to be 4 miles but I had a family member give me a ride home. I am trying to do things that make me feel better, but they always make me feel worse. I feel best laying on a bed doing nothing, but I don't want to be in bed doing nothing. I've got better at disguising how I feel. My father commented on how well I did the other day. I told him I was pretending and in reality I really felt awful all day. This response made him angry for some reason because I guess he didn't want to hear the truth.
I am trying to be as well as possible before Christmas. I've been taking neurotoxin binders, which help when I take them, but the truth is I feel like crap with or without them.
Sorry for the rant. Family doesn't want to hear it anymore. They support me, and know how sick I am, but they are sick of me talking about it. My sister is training to be a Naturopathic Doctor in Oregon, and she is visiting. She will listen to me much of the time. Everyone else just puts their earplugs in.
Posts: 967 | From A deserted island without internet access | Registered: Sep 2009
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posted
Hey kday, don't think of it as ranting. we all need to let it out. sometimes i think everyone around me must be tired of listening too. mostly i try to look normal but in reality i'm so sickin my head i don't know what to do. as for the no sweat thing i have a fir sauna and i realized that i had stopped sweating a couple of weeks ago. i drink lots of water so whats up. well i think it had something to do with the fact that i have been having diahhrea for weeks now so even tho i was drinking lots i was losing everything and ended up dehydrated. i could barely walk. sent my husband to get some gatorade and drank it slowly. got some energy back but am very careful now to detox more slowly. this morning sat in the sauna for 25 mins and started sweating 10 mins. into it. drink-drink-drink!!!!!!joan
Posts: 146 | From Vancouver, BC | Registered: Dec 2009
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massman
Unregistered
posted
I did not sweat for about 5 years after a stroke.
It took me a couple visits doing FIS before I began to sweat again. Keep the heat low to moderate + try that. When I cranked the heat I sweated less.
sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
kday, you took the words right out of my mouth. Anything I try to do that ought to make me feel better, makes me feel worse. Laying around is the only way I feel physically better; but then that reeks havoc on my mental state.
And for sure my family is sick to death of hearing about it all. My poor husband has learned to tune it out. My mother ignores it, and my father who seems most interested in it, can barely hear.
I am learning to pretend I am a well person when I am around family. It makes them more comfortable.
I do not sweat either. I lay under an electric blanket for hours to try and sweat out some toxins; but no sweat, just the misery of being so hot.
Anyway, you are not alone! And that is the good thing about LN.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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kelmo
Frequent Contributor (1K+ posts)
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posted
It comes and goes. Stimulating the skin by dry brushing can really get things moving.
Posts: 2903 | From AZ | Registered: Feb 2006
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
kday, I too in the early stages of trying to detox, just wouldn't sweat???
It takes a very toxic body that hasn't been releasing/detoxing a long time to figure out how to do things.
I tried saunas many times and didn't work for me and yes they made me feel worse. Gigi would say it because we're toxic from heavy metals and when you get them moving around you know it.
Detox baths 3-4 days a week can go a long way towards getting your body to detox through the skin (the largest organ in the body).
I hope you detoxing properly colon wise also. KEY
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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TerryK
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Member # 8552
posted
I could not sweat for decades. I had a major breakthrough with treatment for babesia.
The autonomic nervous system does not work properly with TBI's. Lyme and babesia seem to be big culprits in causing major dysregulation in our ability to control body temperature/sweating.
Vasodilation and sweating are 2 of the major ways that we control body temperature. Both are messed up with TBI's.
Prior to treatment for babesia and lyme we kept the temperature in our house so low that anyone coming over had to wear a coat in order to be comfortable. I could not sweat so I would heat up and feel like I was going to burn up.
I could not go out after a certain time of the day in the spring and summer because it would make me very sick due to not being able to control body temperature.
You don't say why you can't tolerate treatment but please do what you can to figure it out. Look at biotoxins if you are in a constant herx. Look at drainage remedies. Talk to your sister about detox methods. Better yet, find an LLMD that understands some of the issues around why people have difficulty tolerating treatment. Don't let it go because it will likely only get worse.
Needing to lie down all the time points to autonomic nervous system dysfunction related to blood pressure. This is another common consequence of lyme and co-infections and can render you unable to stand up for more than a few minutes at a time.
Not to scare you but I've been there and don't want to see anyone else go there.
Terry I'm not a doctor
Posts: 6286 | From Oregon | Registered: Jan 2006
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TerryK
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Member # 8552
posted
And the ultimate regulator of the autonomic system is the hypothalamus.
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sparkle7
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posted
I read somewhere that it may be related to the thyroid, too. I'm not sure if it's true. I have always had cold hands & feet. I never sweated alot even prior to being ill.
I love the Korean sauna... I used to go to one when I lived in NJ.
It's really hard for "normals" to understand what we go through. We are ill yet many of us look fine. People just don't believe that we are as ill as we say we are. There's very little support from the media with these types of illnesses so people think we are malingerers & it's all in our minds.
Most people don't want to be around sick people. They just don't want to empathize. I think this may be due to the fact that people are afraid of their own mortality. Kind of philosophical, yes, but it may be something of the truth.
If we had more supportive media, people would be more empathetic. Right now, the media is mostly denying that these illnesses like CFS, Fibromyalgia, Lyme, etc. exist or that they are as bad as they are in terms of disability.
I've experienced it for many years. Luckily, there's message boards where people can relate. I just learned to not expect much from people who haven't been through this sort of thing. Sad but true...
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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posted
Good suggestions, y'all. I can relate. Kday, my circulation has gotten better as I've rid my body of microbial infections.
I try to sauna for detox, whenever I can. I went today, the first time in a while. I always feel so much better.
Kelmo, haven't seen you in a while, I hope you are well! Do you have any tricks for dry brushing? I just use a towel in the sauna, though I do not employ any clever techniques...
-------------------- My biofilm film: www.whyamistillsick.com 2004 Mycoplasma Pneumonia 2006 Positive after 2 years of hell 2006-08 Marshall Protocol. Killed many bug species 2009 - Beating candida, doing better Lahey Clinic in Mass: what a racquet! Posts: 830 | From Mass. | Registered: Aug 2006
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posted
Well, saw my LLMD today, and since most of my complaints lately are autonomic nervous system related, he wants me to see an autonomic nervous system specialist. He thinks my symptoms aren't fitting the clinical picture of Lyme, even though I did test IFA/WB CDC+ through igenex. I told him no more abx for now since I don't want to be in living hell or making E.R. trips during Xmas.
I did give him a bunch of scholarly info on KPU (not just the Klinghardt stuff). He said he'd look over it and get back to me. However I think I fit KPU pretty well since I had an episode of major depression and have ADHD type 2 with OCD tendencies. Major depression followed an liver illness of unknown cause that lasted a year or so after a trip to Mexico. Now I have major anxiety without the depression for no reason 99.9% of the time, and I hadn't had anxiety until this sudden illness. Anybody who is trained can see my ADD right away. I've always been different, though I didn't like accepting accomodations.
I really don't care what I'm dealing with to be honest as long as there is a way to feel better. I don't care what my label is, but I need a doctor that can get me well from chronic illness starting from the foundation. I like the doctor I have, he just doesn't know what to do with me since I can't tolerate antibiotics. I tried, but after a bout of hypothermia, severe confusion, and intense fear that lasted for weeks, I decided that I could not continue. My initial herxes came with fevers, so what else could it be than a spirochetal infection wreaking havoc? I'm not married to Lyme as I know the testing has many false positives and negatives. I may be one of the more skeptical ones on this board.
However that being said, I slowly feel like I am losing hope, and I know how important hope is for healing. I wonder what's the point of living. I find myself becoming more negative. I am not depressed, but I feel a bit agitated and angry.
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sparkle7
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posted
re: dry brushing - you need a special natural vegetable bristle brush & you brush towards your heart. Don't use the brush for washing - just use it dry. You can usually find them at health food stores.
kday - have you tried doing a parasite cleanse. It's not complicated or expensive but it can make you feel really ill if you do have parasites. Look up Dr. Hulda Clark & parasites.
You basically take 3 herbs (wormwood, cloves, & green, black walnut hulls) for about 2 weeks. It's not fun if you have parasites, though. It's good to get rid of them whatever your health issues may be.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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quote:Originally posted by sparkle7: re: dry brushing - you need a special natural vegetable bristle brush & you brush towards your heart. Don't use the brush for washing - just use it dry. You can usually find them at health food stores.
kday - have you tried doing a parasite cleanse. It's not complicated or expensive but it can make you feel really ill if you do have parasites. Look up Dr. Hulda Clark & parasites.
You basically take 3 herbs (wormwood, cloves, & green, black walnut hulls) for about 2 weeks. It's not fun if you have parasites, though. It's good to get rid of them whatever your health issues may be.
I did buy Humaworm because my GI issues were overwhelming at one point. I haven't used it yet, although the GI stuff ranges from somewhat tolerable to intolerable. Primarily Upper GI, but I do get constipated frequently. Occasionally I get a horrible stabbing pain right in the center of my belly. It doesn't last long, but hurts bad and is disturbing. The pain is deep.
I really think I am about to become a mad scientist, take things into my own hands, and figure out what works. Yes, I have OCD, but it's because after a year, this illness is driving me nuts. It would drive anyone nuts.
I would really like to see someone like Dr. K in Washington. My older sister lives in Portland, so it would only be a few hour drive I think from there. Though I hear the waiting list is huge. Can someone refer me to someone who specializes in the human body please? I'm trying my best not to be bitter. Posts: 967 | From A deserted island without internet access | Registered: Sep 2009
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CD57
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Member # 11749
posted
Also try Niacin before sauna....it brings out flushing. It has to be the flushing kind should say so on the bottle. LLND told me to jump on a rebounder, take the niacin, wait 15 minutes and get in the sauna.
Posts: 3528 | From US | Registered: Apr 2007
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posted
Hmmm, interesting note about Niacin. My health food store has a good return policy so I guess I could give it a try since I have nothing to lose.
Only thing I wonder is if it will make my autonomic nervous system more wacky. I don't have low blood pressure (in fact I had orthostatic hypertension according to my endocrinologist). My blood pressure is much more stable now, but I suffer from tachycardia some days. Maybe Niacin could make these symptoms better and make it so I am not cold all the time? I'll be back to the sauna in a day or two.
posted
For years and years I would never sweat a drop. I would run 15 miles up and down hills in 96 degree heat, no sweat. Now I sweat like crazy in 96 degrees just walking out to the mailbox.
Posts: 649 | From United States | Registered: Dec 2003
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