posted
Does anyone get tendon/ligament twitches in their arms and hands? Mine are not visible but i can feel this happening internally- daily right now- does anyone else get this sensation- like internal popping- sometimes stress aggrivates it and sometimes it happens when i use my arm or hand a certain way- it doesn't feel like the other muscle twitches i get- this is more like a ligament or tendon thing... anyone else?
Posts: 116 | From Texas | Registered: Dec 2009
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posted
yep, try rubbing your forearm (backside) on a flat surface and listen for the pops and crunches.....I had NONE of this before Lyme....
Posts: 208 | From Hudson Valley, New York | Registered: Mar 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Yes, all that generally goes with lyme & co.
But first - be absolutely certain you are not ingesting even a trace of any artificial sweetener. They can cause this as they are toxic to the nervous system. Aspartame/Nutrasweet/Equal - all the same with different names - is in so much stuff, even gums, cough syrups and MEDICINES! check all your labels, even toothpaste. Just a trace can cause twitching.
MSG, too, can do that as it's also toxic. You'll have to google for all the names that hides under.
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Most likely, the twitching caused by over excited nervous system and overwhelmed liver / detox system from the toxic infections. Magnesium is the normal route to decrease the twitches.
It can be caused by a magnesium deficiency which is common for lyme patients.
Ask your kidney specialist tomorrow if it's okay to take magnesium and, if so, what the best form is for you. Ask about taking a warm bath in Epson Salts as you can absorb magnesium from that. Not a HOT bath, though, just nice and warm.
Your LLMD on Wednesday will also help - be sure to put that question on your list. Magnesium is one the the top supplements for lyme patients as it helps so much.
In the meantime, if you have FISH OIL, that should help some to decrease the twitches.
And some TURMERIC from your kitchen spice cabinet can help, too, unless you have some stronger turmeric extract, CURCUMIN, in stock. About a tsp. of turmeric in a half cup of water, mixed, drink and follow with lots of clear water.
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Thank you all so much for the help! Fordace i am so sorry you are going through these sensations- they are quite frightening- i rubbed my arm on a flat surface like you said and did get some mild responses-our poor tendons- has your doctor said if anything helps with this? Has any of your meds helped? Do your tendons hurt from all the action they get? do you get this "invisible" spasming in your fingers? Sorry for all the questions (i'm on 3 boards and i don't get many hits on this-b/c the way i describe doesn't line up with a lot of other people but i'm so glad to get both of your responses. I had been doing some milk thistle for my liver but stopped most things till i find out about my kidneys- I have been taking half a pill of magnesium-gee didn't think that would be bad for my kidneys but i will definitely ask about it tomarrow. Only had about 150mg in it. thanks for reminding me about the fish oil-i do have that to be taking- i also have the turmeric/curcumin in capsules. I had stopped my epsom salt baths too b/c of the kidney issues- nothing lines up really b/c my bloodwork doesn't show kidney problems- just the urine- but i hope that means i've caught it early.
Posts: 116 | From Texas | Registered: Dec 2009
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posted
oh and good tip on the artificial stuff too- cut that mess out a long time ago thank god- i do worry i've irritated my central nervious system with others things- i was doing the oil of oregano but not heavily or anything- is there repair for toxicity to the CNS? will i have to live with these twitches? I do worry about my tendons tearing or something...
Posts: 116 | From Texas | Registered: Dec 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- learning,
Many here have trouble reading text all typed in one fell swoop. I'll break this up for others to read so you'll get more replies.
In future postings, if you can break up your text into shorter paragraphs, that will be best for most to read.
-----------
Thank you all so much for the help!
Fordace i am so sorry you are going through these sensations- they are quite frightening- i rubbed my arm on a flat surface like you said and did get some mild responses-our poor tendons- has your doctor said if anything helps with this?
Has any of your meds helped?
Do your tendons hurt from all the action they get?
do you get this "invisible" spasming in your fingers?
Sorry for all the questions (i'm on 3 boards and i don't get many hits on this-b/c the way i describe doesn't line up with a lot of other people but i'm so glad to get both of your responses.
I had been doing some milk thistle for my liver but stopped most things till i find out about my kidneys- I have been taking half a pill of magnesium-gee didn't think that would be bad for my kidneys but i will definitely ask about it tomarrow.
Only had about 150mg in it. thanks for reminding me about the fish oil-i do have that to be taking- i also have the turmeric/curcumin in capsules. I had stopped my epsom salt baths too b/c of the kidney issues-
nothing lines up really b/c my bloodwork doesn't show kidney problems- just the urine- but i hope that means i've caught it early.
learning721 -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- learning,
yes, all that you describe is very common to the majority of lyme patients. And, yes, it can get better with attention to the infection and nutritional deficiencies that trouble lyme patients.
I do not know if magnesium is good, bad or neutral for the kidneys. Since I do not know, I simply suggested to ask your doctor.
I do think I recall having read that too much magnesium may stress the kidneys but remember that many lyme patients are actually deficient and the KIND of magnesium can make a huge difference in the safety.
It may be possible to get all the magnesium you need from food sources.
You can search online for credible places to study that but since your kidney specialist appt is tomorrow, it's best to ask the specialist - and then your new LLMD.
I assume you had the urine tests done 2 or 3 times to see if the results match up. Any test can be off kilter once, especially if not enough water consumption or an infection is brewing.
Be sure to drink lots of water. Especially if you are to have another urine test tomorrow, you want the most accurate reading possible.
I had a scare like this once and the second test - after a week of increased water consumption - showed correction.
Good luck with your appts the next two days. Be sure to rest up before, in between and afterward. Over exertion can increase symptoms, as you are probably aware. So, take care. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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I will do my best to remember to split up my posts- i really should remember that knowing the neuro damage lyme can cause.
I have upped my water intake- apparently i was close to dehydration when i went it- trying to drink plenty now without overdoing it.
gee- i used to do those epsom salt baths a lot- good thing i slowed down on the magnesium-
i was doing 2 capsules in the evening on advice from my son's doc- that was about 450mg.
better leave it alone for now till i find out more about my kidneys.
The 1st specimen was done during a bad time of the month- silly me, the second 1 was done a few days later but i had not increased my water consumption yet-
this advice was given by a cardiologist upon reveiwing my bloodwork and noticing i am close to dehydration.
I went in to him with very low blood pressure- comination of things really- garlic, xanax, magnesium, lyme, not enough water...
following strict no carb/sugar diet- didn't work and just caused more problems i'm hoping whatever my kidneys are going through is reversable.
Posts: 116 | From Texas | Registered: Dec 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- You might search Google for: xanax, kidneys
Let your healthcare provider know if you have liver or kidney disease, as your body may not handle Xanax as well as it should. . . .
Xanax can be dangerous for people with lung problems or breathing problems. . . .
=======================
Also, your body requires carbs. Trying for NO carbs can really set you up.
It's low to moderate carbs or low glycemic index that you want. It's COMPLEX carbs that are good for you. No simple sugars or simple carbs, though.
You need lots of vegetables, moderate non-gluten grains and legumes help carry you through. Those are all complex carbs.
Good fats are vital (olive oil, nuts . . . )
and for protein requirements, consult the kidney specialist. Those with kidney challenges often have to change the amount or the way they get animal proteins.
But also know that people with infections require more protein then usual. You just need to know the safest way to do that.
If you have enough protein (and that is combined with good veggies and other complex carbs - and good fats) your body will not crave simple carbs.
Protein helps our bodies make glutathione and that helps the liver detox . . . protein's amino acids help our brain, our hearts, our muscles, etc., etc., etc.,
Taurine (found mostly in muscle meats) is vital, too. Vegetarians and vegans should consider supplementing taurine, as well as B-12 and L-Carnitine.
THE REQUIREMENTS OF PROTEIN & AMINO ACID DURING ACUTE & CHRONIC INFECTION . . .
Anura V. Kurpad - Institute of Population Health & Clinical Research, Bangalore, India 129. Indian J Med Res 124, August 2006, pp 129-148.
Excerpt:
" . . . In general, the amount of EXTRA protein that would appear to be needed is of the order of 20-25 per cent of the recommended intake, for most infections. . . ."
- Full article at link (or google the title if it does not go through).
-
[ 12-29-2009, 05:06 AM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
B12 is good for the nerves. Many do it IM.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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posted
thank you pinelady- i have the methyl kind that i take under my tongue- until that stops absorbing anyway- guess i should ask about the shots at some point
Posts: 116 | From Texas | Registered: Dec 2009
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