posted
so i went to the ER for my chest pain and fatigue... and they gave me some doxycycline and said they think my heart is fine
did ekg, and then bloodwork to check cardiac enzymes...
my question is- does taking cardiac enzymes tell you enough about the hearts condition? i mean should i still do another echo?
My doc wants me to talk to my cardiologist about the NHM...and i'm not looking forward to that, but is there anything else they can do besides a tilt table test to determine what i need for my strange blood pressure?
When i went to the ER my pressure was supposedly fine-though i didnt' see the numbers but she said it was 117/70- didn't feel that way at all.
well, any advice/comments are appreciated.
Posts: 116 | From Texas | Registered: Dec 2009
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
up for help
Posts: 3905 | From USA | Registered: May 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- So, after your first appt. with an LLMD four hours away last week, you had your first appt. with your local LLMD today.
You should soon be able to decide on which doctor to go with.
I'm amazed the ER gave you doxy. Did you tell them you were/did (?) just start on Zithro from advice from you distant LLMD?
Be sure one of your LLMDs (whichever one will be treating you) knows all that you are taking, including the Samento.
I hope you were able to describe the chest pain to your LLMD today so that she could tutor you on signs that are emergency and those that may not be and what can be done to help in that case.
Self-care is such a steep curve with lyme and co. She might suggest a book or two so that you know what kinds of things just go with this and what can help lessen the rough rife.
Good luck with finalizing your treatment plan. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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WildCondor
Unregistered
posted
You need a tilt table test...with part 2 challenge done on it.
The ER should have measured your orthostatic hypotension...the difference between sitting and standing blood pressure. With NMH it usually drops upon standing.
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posted
Sorry it took a while to get back, keebler, the appt with this local llmd went okay. She i not as thorough as the distant LLMD though
The distant LLMD said it is okay for me to start with doxy (i decided to drop the samento for now until later on) but i will not be starting zithromax just yet- he was okay with me starting with the doxy and then adding in a few others with time
It seems my blood pressure is gradually raising- the trip to the ER helped me realize this- but i will be following up with my cardio doc again soon- the chest pain the ER doc thought is due to inflammation
Yes i was very surprised that he gave me the doxy too. It was only 10 days worth but still very nice. My LLMD will give me the full course since this was only for 10 days
Thanks Wild Condor- I will be looking into that and see if it is necessary for me.
Thank you Keebler for checking on me. I feel better now that i am starting treatment.
Posts: 116 | From Texas | Registered: Dec 2009
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
I need a tilt table test, and my LLD is adamant I go to Stonybrook for this. It is about 4 hours away, and I am bedridden. This is going to be torture for me.
Does anyone know enough about this to understand why he would want me to go there, vs any local cardiologist? Is it really worth the inconvenience and invariable setback it will cause me?
I should add this is only one of about ten tests I need to get, but the rest are no more than an hour or two away. This one is the hardest; I don't know if I can travel that far in one day, but don't have the finances to stay in a hotel nor child care readily available.
Any insight as to what magic powers Stonybrook has over Lymies and tilt table tests?
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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gackedo
Unregistered
posted
I went to a regular cardiologist when I first started having problems with my heart and he misdiagnosed me. My problems were fast heart (150s) rate when I was standing up with shortnes of breath and fatigue. Five years later I was sent to a cardiologist who secialized in autonomic dysfunctions and got a correct diagnosis-and therefore correct treatment. The equipement that is used to diagnose these types of conditions is very costly and specialized and regular cardiologists do not have it in their offices. In addition, autonomic dysfunctitons and their treatments are like a whole different specialty and it is best to see a cardiologist with a lot of experience with this specialty.
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