posted
please pm me if you are in the uk......re symptoms,treatment and drs thanks......
-------------------- Oct 09 Positive CDC Western Blot Jan 10 Positive Babesia Duncani Jan 10 Cd57 28 Mar 10 EBV, IgM, IgG HHV-6 IgG Posts: 739 | From NC | Registered: Oct 2009
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pamoisondelune
Frequent Contributor (1K+ posts)
Member # 11846
posted
There are some members from the UK. One is Rianna or something, another is suki, maybe suki444 or something.
I think what they have posted is to the effect that there are 2 lyme doctors in the UK, but they end up travelling to the US for treatment.
Maybe it's getting better now.
----Polly Polygonum ----or Nilufar Knotweed
Posts: 1226 | From USA | Registered: May 2007
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posted
Well just about 3 LLMDs in UK, one not taking on new patients at present. Not a single paediatric LLMD.
There is some support from GPs to help Lyme patients, but generally they are very Lyme unaware. Mine is covering the costs of my antibiotics on NHS, but have to see my specialist privately.
Many UK lymies post on eurolyme.
A lot of people are working hard to get Lyme recognised by our Government and Health Service. We have support from several MPs (google Hugo Swire and Lyme disease) So perhaps a change of government in May might improve the situation ?
Unfortunately our Health Protection Agency who issue guidance on treatment of Lyme to doctors now follow IDSA guidance.
However this wasn't always the case and 15 years ago , experienced consultants in the National Health Service (NHS) used to treat Lyme in my locality (Hampshire/New Forest- tick endemic area)with many months if not years of antibiotics.
I think that generation of consultants have now probably retired and the next generation do not have the same wisdom and simply follow IDSA guidance, what a backwards step.
Posts: 174 | From UK | Registered: Oct 2009
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posted
i guess its bad everywhere.....why so ignorant.....
-------------------- Oct 09 Positive CDC Western Blot Jan 10 Positive Babesia Duncani Jan 10 Cd57 28 Mar 10 EBV, IgM, IgG HHV-6 IgG Posts: 739 | From NC | Registered: Oct 2009
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