Bugg
Frequent Contributor (1K+ posts)
Member # 8095
posted
Hey Guys-
Has anyone tried Cosamin DS? I am in physical therapy and my PT says everyone in the clinic uses it. They also work with a professional football team and everyone on the team takes it. It's supposed to be a very effective glucosamin/chondrointin supplement (where many don't work).
I've started taking it and have noticed a "flare-up" in the pulsating pain that constantly runs through my body. I'm not too surprised by this as I think my body often wants to "attack" when something it doesn't recognize is introduced...
Anyway, I'm trying to hang in there with it for at least 2-3 weeks as I know it can take some time to work....
Anyone else try this? Anyone else experience an initial flare-up of pain?
Thanks!
Posts: 1155 | From Southeast | Registered: Oct 2005
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joalo
Frequent Contributor (1K+ posts)
Member # 12752
posted
Up for replies. ^^^
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Personally, I would stop it immediately since you are seeing bad effects.
Lyme patients simply cannot take what everyone else does. Lyme changes everything, it seems. What does your LLMD say?
Others who are not LL often mean well but are simply not well enough educated regarding the body of a patient with lyme.
BTW, electronic stimulation is also to be avoided for all lyme patients (as per Dr. B in his P.T. section of guidelines. "No electrical stim " )
Back to what can help, though. Have you tried increasing magnesium or changing forms, calcium, zinc . . . fish oil - curcurmin -and maybe adding corydalis at night ( In HerbSom from www.hepapro.com ) ? MSM ?
- But I see can't find a complete list of ingredients. And, if I can't find EXACTLY all that is in something, I don't take it. We need to know everything, in detail, that crosses our lips.
=========================
I avoid all forms of glucosamine after reading this - that could be making lyme worse.
BIOCHEMISTRY OF LYME DISEASE: BORRELIA BURGDORFERI SPIROCHETE / CYST
by Prof. Robert W. Bradford and Henry W. Allen
Excerpt:
. . .
[section] Carbohydrates Consumed by Lyme Spirochete
An effort to determine which carbohydrates Bb consumes revealed that the organism utilizes the monosaccharides glucose, mannose and N-acetylglucosamine, as well as the disaccharides maltose and chitobiose.
A popular treatment for arthritis includes the administration of chondroitin sulfate and N-acetylglucosamine.
If the arthritis is Lyme-induced, N-acetylglucosamine is contraindicated. 22 (See Chart 14.)
Clearly, it illustrates that Chondroitin Sulfate + N-Acetylgucosamine is food for borrelia and that the use of these by lyme patients can contribute to worsening of the disease. The article footnote #22 is where he gathered the detail.
Now, I'm not sure what exactly the difference is in the N-Acetylgucosamine and regular glucosamine - but, what if, whatever other things we take or other body processes turn a form of glucosamine into a form not good for us.
We could be doing tremendous damage.
I learned a time ago that a lot of things that helped other people were like poison to me (things ingested; things undertaken). It's never a surprise to hear others have similar experiences and something backfires on them when a PT says it works for everyone.
If I were you, I would return the bottle for full refund and advise whoever gave you that that it might not be good for others who have lyme or who may be dealing with undiagnosed lyme.
-
[ 01-16-2010, 11:20 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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