posted
I have been taing ABs for half year. I took Biaxin, Cipro, Tinidazol, Rifampin, Doxy, Azithromycin, Plaquenil And I am not better, I am suffering very much.
Now I went to a doctor who thinks I have lymphoma:( I have to wait for an all body CT.
Do you think if I have lyme I should have improved after taking these ABs?
-------------------- having LD since 2005 Posts: 45 | From Eu | Registered: Sep 2009
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
I am sorry that you are going through such worry.
I hope your CT results are normal.
I was told that there is too much herxing in the first 6 months to even think about improving.
It takes time, alot of time.
I will say a prayer for you.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
If everyone were 6 mths of abx and done. Healed, cured, bad memory? That would be easy street. aaaahhhhhhhhh
I hope everything is negative for this other test. I'm not wishing lyme on you, just want the 'oma" question eliminated.
Take care, Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
It is important to rule out everything before considering infectious pathogens as a cause of your illness. So, let your doctor run as many of those kinds of tests as he can think of. If they all come back normal, then consider infectious pathogens as a possibility for your illness. Lyme should be considered, as well as EBV, HHV-6, enterovirus, Cpn and others.
Best, Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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karenl
Frequent Contributor (1K+ posts)
Member # 17753
posted
Could the lymphoma follow after lyme? There are posts here about swollen lymph nodes from bartonella. I have no medical knowledge, just a simple question.
Posts: 1834 | From US | Registered: Oct 2008
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
6 months is a very short time!
I was on antibioitcs a whole year before I even got slight improvement. Even that was barely enough to notice.
In the DVD...Under Our Skin, the ranger said it was after 3 years of treatment before he saw any improvement.
It doesn't hurt to check out other causes though. Ruling out other illness helps us to figure out if we have LD, and accept the lyme diagnosis.
I hope you find out what you have! The hardest part is not knowing for sure.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Have you ever tested via Igenex for Lyme disease?
There are certain bands that are Lyme specific.
Hoping and praying for you and for negative testing.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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posted
Don't let the docs jump to conclusions if the CT scan shows something. Hubby has pulmonary nodules and one lesion on his liver and another lesion on his colon I think -- all showed on his full-body CT or PET -- forget which. The doc at the time tried to say hubby had sarcoidosis, but the pulmonologist disagreed.
It is our opinion that all of hubby's findings point to bartonella or mycoplasma or BLO or the mystery pathogen whatever that is.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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joalo
Frequent Contributor (1K+ posts)
Member # 12752
posted
As the others have said six months is a very short time to have been treating lyme. Especially if you've had it for five years.
My husband was diagnosed with non-Hodgkins lymphoma in January 2009. After five months of chemo therapy he is now in remission.
The oncologist told us if ya gotta get cancer...lymphoma is one of the most treatable kinds to get .
Please let us know how things for for you.
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Hope I agree it could be lymphoma. But it could also be the lymph nodes loaded with dead and dying
borrelia. Which may not be able to be determined until biopsy. Remember most labs cant find them
unless they know what to look for. You can research lymph massage for
lyme and get some clues to help. I do know a man who was told by his doctor they thought he had
lung cancer from nodules on scan. It was lyme and they are now gone with IV treatment.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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