posted
Has anybody else had this problem or is this normal with treatment? I have lyme, bart, babs, and mycoplasms. My LLMD is treating me for bart now and while I am being treated the bart symptoms are horrible. In fact the symptoms are the strongest they have ever been. I have more foot burning, headaches, and chills than ever. Does this normally happen with die off?
Posts: 140 | From Illinois | Registered: Jul 2009
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Good question. I have had worse symptoms too that take a long time to resolve. But my headaches which were every day when I started treatment are now pretty much gone. My shins became more painful when I started and that is diminishing. I still have a lot of hot flashes and my brain is pretty much fried. And my eyes are much more dry and irritated than before I started treatment. Some of these symptoms can be side effects - it is hard to tell. I am taking Rifampin which can cause similar side effects to bartonella, like uveitis or conjuctivitis because it affects your membranes. It can also affect your cognition making you confused and it can make your muscles and bones hurt. It can cause emotional problems as well rarely causing psychosis so who knows how much of this is drug related, how much is herxing and what is just the disease.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
Thanks for your reply. I guess it is hard to tell what is causing the symptoms. I take 750 of Levaquin five times a week and colestid two times a week. The colestid is what can really make the bart symptoms come on strong.
Posts: 140 | From Illinois | Registered: Jul 2009
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posted
Heleneh, what do you mean when you say "burning feet"?
Mine are uncomfortably hot when I try to sleep and the achilles tendons are tender, but the soles aren't sore.
On another note, what's "colestid" ?
Thanks
Posts: 98 | From Maine | Registered: Jul 2009
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lymebytes
Frequent Contributor (1K+ posts)
Member # 11830
posted
I have beat Bart (specifically B. Henselae) twice. The first time, herxing wasn't too noticeable for me, probably because I was so maxed out in pain as it was. But I seemed to slowly get a little better over about 10 months. Even though Lyme was still a huge issue, I could tell something had changed when it was gone.
Second round (after a cat bite) was awful...the herx was horrible. Mostly psych symptoms, shakiness, brain fog, nerve pain, shin pain, heel pain in one foot, anxiety, feeling of insanity.
I realized after it was gone the second time what a big step it is..thank God!
posted
Dave Miller, the burning feet feel like somebody literally lit a match to the bottom of my feet. Colestid helps remove toxins, it seems to help me, but makes me sick.
Posts: 140 | From Illinois | Registered: Jul 2009
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