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»	LymeNet Flash » Questions and Discussion » Medical Questions » new new new...need help!

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Topic: new new new...need help!

stickymommy
Member
Member # 24233

posted

I sort of stumbled on to the lyme disease thing. i have been suffering forever, or at least it feels like it. read the ld symptoms list and i cried. i was beginning to get convinced that this was indeed in my head. i was diagnosed w/fibromyalgia 12 years ago. the last year has been absolutely miserable. last dr. told me i was gluten sesitive. gf since nov. no change really. i have many questions. can your kids have gotten this inutero? san you have ld without knowing you've been bitten? i was looking around the web and i saw a picture of an engorged tick and my memory flashed back to first grade when i pulled one off my head. could i have had this 30+ years? please help.

Posts: 41 | From Akron, Ohio | Registered: Jan 2010 | IP: Logged |

sixgoofykids
Moderator
Member # 11141

posted

Yes, to all your questions.

I had this over 30 years before diagnosis. The good news is, I'm fine today. Post in seeking doctor to find an LLMD (lyme-literate MD) near you.

--------------------
sixgoofykids.blogspot.com

Posts: 13449 | From Ohio | Registered: Feb 2007 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

Sixgoofy is correct!!

Welcome to Lymenet!! We can help you!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001 | IP: Logged |

joalo
Frequent Contributor (1K+ posts)
Member # 12752

posted

I was misdiagnosed with chronic fatigue syndrome and fibromyalgia for twenty years.

I'm also gluten sensitive and have been gluten free for four years.

I never saw a tick and never had a bullseye rash.

Don't be shy. We are here to help!! [group hug]

--------------------
Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006.

Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007 | IP: Logged |

julielynne4
Unregistered

posted

And another "yes." I had lyme disease and coinfections for over 25 years before diagnosis last year.

I basically "stumbled upon" the lyme thing, like you. Thank God that I did.

I agree with the others that you should get to an LLMD.

I can relate to the tears of relief, frustration, and even grief when I finally learned why my whole life had been so full of illness and pain - things noone could "figure out."

You're in the right place to find lots of information that you will need to know.

Julie

IP: Logged |

Lymetoo
Moderator
Member # 743

posted

Yup.. 42 yrs before diagnosis... am gluten intolerant also. Happens with Lyme and other infections or viruses.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001 | IP: Logged |

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