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» LymeNet Flash » Questions and Discussion » Medical Questions » new new new...need help!

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Author Topic: new new new...need help!
stickymommy
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Member # 24233

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I sort of stumbled on to the lyme disease thing. i have been suffering forever, or at least it feels like it. read the ld symptoms list and i cried. i was beginning to get convinced that this was indeed in my head. i was diagnosed w/fibromyalgia 12 years ago. the last year has been absolutely miserable. last dr. told me i was gluten sesitive. gf since nov. no change really. i have many questions. can your kids have gotten this inutero? san you have ld without knowing you've been bitten? i was looking around the web and i saw a picture of an engorged tick and my memory flashed back to first grade when i pulled one off my head. could i have had this 30+ years? please help.
Posts: 41 | From Akron, Ohio | Registered: Jan 2010  |  IP: Logged | Report this post to a Moderator
sixgoofykids
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Yes, to all your questions.

I had this over 30 years before diagnosis. The good news is, I'm fine today. Post in seeking doctor to find an LLMD (lyme-literate MD) near you.

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sixgoofykids.blogspot.com

Posts: 13449 | From Ohio | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
Lymetoo
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Sixgoofy is correct!!

Welcome to Lymenet!! We can help you!

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--Lymetutu--
Opinions, not medical advice!

Posts: 96063 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
joalo
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I was misdiagnosed with chronic fatigue syndrome and fibromyalgia for twenty years.

I'm also gluten sensitive and have been gluten free for four years.

I never saw a tick and never had a bullseye rash.

Don't be shy. We are here to help!! [group hug]

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Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006.

Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007  |  IP: Logged | Report this post to a Moderator
julielynne4
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And another "yes." I had lyme disease and coinfections for over 25 years before diagnosis last year.

I basically "stumbled upon" the lyme thing, like you. Thank God that I did.

I agree with the others that you should get to an LLMD.

I can relate to the tears of relief, frustration, and even grief when I finally learned why my whole life had been so full of illness and pain - things noone could "figure out."

You're in the right place to find lots of information that you will need to know.

Julie

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Lymetoo
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Yup.. 42 yrs before diagnosis... am gluten intolerant also. Happens with Lyme and other infections or viruses.

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--Lymetutu--
Opinions, not medical advice!

Posts: 96063 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
   

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