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» LymeNet Flash » Questions and Discussion » Medical Questions » ALS questions

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Author Topic: ALS questions
learning721
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Has anyone been told they have this or think some of their lyme symptoms are like it?

I posted a couple of days ago about my nerve/ tendon twitching and muscle twitching and how it is increasing, well i also notice that i'm getting pain now in my arms and hands

I am also getting cramping in one arm. THis is something i have been worried about. I'm on doxycycline right now and maybe it's flaring b/c of that but i guess i'm concerned about not being able to use my arms

Do people with ALS symptoms typically lose function of their arms first? I think i can handle lyme and pain and occasional cramping but the way this little "popping and spasming keeps going and going really gets me

I noticed the last few mornings my fingers and ankles will feel a little stiff too. This will usually go away but i guess i thought at some point on the doxy i should see improvement.

Posts: 116 | From Texas | Registered: Dec 2009  |  IP: Logged | Report this post to a Moderator
sixgoofykids
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How long have you been on the doxy? Lyme can have very weird symptoms that come and go throughout treatment.

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sixgoofykids.blogspot.com

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learning721
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I have been on for three weeks now. But i noticed the popping a while back- it went away for a little while and then came back like two months ago and hasn't left- its in my fingers and arms all the time now and i'm starting to get a little pain which i'm guessing is nerve pain

I notice this in my elbows too and think it's odd. my bicep on my left arm is cramping and tightening a little bit today too.

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Lymetoo
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Read this:

http://flash.lymenet.org/ubb/ultimatebb.php/topic/3/23845

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--Lymetutu--
Opinions, not medical advice!

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Keebler
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-
There are like four other ASL threads going right now, be sure to search and read them all - and past ones, too.

You can search current and past threads here:

http://flash.lymenet.org/scripts/ultimatebb.cgi/ubb/search/search_forum/1

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learning721
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Thank you for the links i did read the one in mercury news and i am so glad this is becoming known to people.

I talked with my Lyme doc today and he wants me to add zithromax and plaquenil to my doxy. (Plus up my doxy dose to 400mg a day) I'm nervious!

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IckyTicky
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You'll find that most of us with the muscle twitching have had the "ALS scare".
I've been told that those with ALS only get the muscle twitching AFTER losing their muscle strength. Something about the nerves fighting at the end for the muscles to work or something like that.

I was scared to death that I had ALS because my twitching was constant, everywhere and I had arm weakness really bad. It's been two years of treatment and the weakness is barely noticable, as well as the twitching.

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IGM: 18+, 23+, 30+, 31+++, 34+, 39IND, 41++, 58+++, 66+, 83-93IND
IGG: 31+, 39IND, 41+
Also positive for Mycoplasma Pneumoniae and RMSF.
Whole family of 5 dx with Lyme.

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learning721
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Thanks IckyTicky- I can see how its easy for everyone to get scared about ALS and i'm so sorry you had this scare too- it's not an easy thing to get over at all.

I had noticed some minor muscle weakness here and there and sometimes i wonder if my nerve twitching is the "fighting" you were talking about but my arms still work ok i guess

I think i am wearing them out a bit b/c i carry two babies around a lot- a 21 lb girl and a 26 lb boy. I still can carry them okay but my twitching is worse in my arms and hands than anywhere else

Are there muscles surrounding the elbow that could twith? I figured this spot had to either be a nerve or tendon b/c it feels like its along the elbow itself. Just thought id see if anyone knows b/c i never took anatomy classes!

Posts: 116 | From Texas | Registered: Dec 2009  |  IP: Logged | Report this post to a Moderator
   

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