posted
So periodically my hands or feet will go numb when sleeping or sitting too long, but usually it goes away after I get up and move around.
I have neuro lyme plus bart and babs.
I woke up in the middle of the night last night to find the entire left side of my face completely numb on the inside - I could still feel sensation on the outside but it felt swollen (even though by sight it wasn't)
It went from the top of my scalp down to the bottom of my neck. I could not breathe at all out of the left side of my nose.
It also felt like it was spreading over to the right side a bit too.
I was scared, very anxious. I was afraid it would get so bad I wouldn't be able to breathe at all. Getting up didn't really help much. So after two hours I took an ativan and tried to go back to sleep.
I slept for about an hour. This morning it is a little better but very noticable still.
What in the world is this? How do I get it to go away?
Since starting Biaxin/Bactrim/Mepron I have been having alot of CNS flares - they scare me.
I also have autoimmune issues complicating things as well.
Do you think I need to back off treatment a little or think about IV instead?
I don't see my LLMD till the 11th.
Posts: 239 | From Virginia | Registered: Jun 2009
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Aimee, I remember so well how frigntened I was with numbness on my face. I also had periods where one side or the other would be completely numb.
Don't remember any of them lasting anymore than a couple hours, but enough and repetitive enough to worry. It sounds like neuro lyme to me.
I don't think that IVs will stop this. You are on a pretty strong combo of abx. I wouldn't of survived that combo, but that was my reaction to abx.
I think it probably can wait until your appt. Some really scarey stuff can happen with treating lyme & company, that's for sure. Not treating is even scarier.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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MDW005
Frequent Contributor (1K+ posts)
Member # 22706
posted
Hi Aimee, I to have the body parts that will fall
asleep. If I sit too long in one place 25-30 min.
I have to get up. and get the blood circulating
again. Befor I was dx. with lyme, I went to ER
thinking I was having a stroke. We have a crazy
disease.
-------------------- God's promises mean you always have something wonderful to look forward to. Posts: 2150 | From Georgia | Registered: Oct 2009
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