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» LymeNet Flash » Questions and Discussion » Medical Questions » Do people ever get cured from Lyme, or is it a lifelong battle??

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Author Topic: Do people ever get cured from Lyme, or is it a lifelong battle??
BackinStOlaf
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Is it possible to tell if all the bacteria has been killed off?

--------------------
First Symptom 9/09
Multiple docs, negative Labcorp test
LLMD: 1/10
Positive Igenex/CDC test
Treatment 2/10
2/10-8/10 Amox, ceftin, zith, flagyl
Currently: Bicillin, Minocycline, still dealing with severe breathing issues

 -

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DaveNJ
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No real scientifc test ...but yes people beat this. i have meet a few folks personaly who were deathly ill and are now leading normal lives....it takes time though.

i hope to be joining that crowd soon.

Dave

--------------------
On my journey to wellness - One day at a time.

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steelbone
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You can be 100% again for sure

You can feel better then you did before you got lyme if you continue to practice the good habbits you will need to get well

--------------------
All The Best,
Paul
[email protected]

The harder you work the luckier you get!

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sixgoofykids
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I'm 100% and was deathly ill.

--------------------
sixgoofykids.blogspot.com

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BackinStOlaf
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sixgoofykids: that is great to hear! happy for you [Smile]

--------------------
First Symptom 9/09
Multiple docs, negative Labcorp test
LLMD: 1/10
Positive Igenex/CDC test
Treatment 2/10
2/10-8/10 Amox, ceftin, zith, flagyl
Currently: Bicillin, Minocycline, still dealing with severe breathing issues

 -

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f13girl
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hi sixgoofy kids- I know you are an inspiration for all of us. Did you have any scary neuro autoimmune type problems or were they all muscle skeletal?
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Michael_Venice
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yes, sixgoofy..

I'd actually really like to hear your story a bit more. I picked up here when you were near recovery--just had done the bionic, and I often wonder about your symptoms, how long you were ill, etc. Your 'origin' story. We can't go back far enough in search to see that far back.

You've mentioned or alluded to different aspects over time, and I could relate to some of them, and it always wanted made me want to know more.

At the same time, you're well and living a life day to day...and dealing with being a moderator here....so I realize requesting MORE might be too much.

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sixgoofykids
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Actually, it's pretty easy to post here as I'll just cut and paste my first blog post before I went to Germany. I had Lyme pretty much affect every bodily system. I had neuro-cognitive symptoms to the extreme ... my husband would not let me leave the house alone because I could be doing okay and all of a sudden would be scary disoriented. I at least needed one of the kids with me to remind me where I was or to call my husband.

Here's my original post -

My goofy kids are not looking forward to my being gone for three whole weeks .... neither is Mr. Sixgoofy! It's not that I'm looking forward to going or am excited to leave, it's that I'm excited to be well ... okay, I'll be honest, I'm excited to spend three weeks in another country, too.

I have most likely had Lyme for 35 years. I have a great immune system so was healthy most of the time though I had random symptoms for as long as I can remember. I was disabled by the illness in 1982, 1986, and 1991.

Through my healthy years I would have weird issues .... like in the fall my shoulders would ache. I thought I was just in bad shape and the heavy sweaters caused pain. I would have terrible fatigue and wondered why everyone else wasn't as tired as me. They were all problems that could be considered somewhat normal.

Then in 1982 when I was in college, I was so tired all the time that I just got up for class. My roommate was very worried and took me to the emergency room where the doctor told me not to drink so much alcohol. This lasted several months, then self-resolved with a lot of rest, exercise and sunshine. Ironically, I had terrible insomnia despite the debilitating fatigue.

A repeat happened in 1986.

In 1991, all of a sudden one day I had severe abdominal pain. My sister and her husband were visiting during spring break (they were college students) and we were at the Children's Museum. I had to go sit down for a while ... then I told them I needed to go home. The pains were so severe I couldn't even drive. By that night I was at the emergency room, but the doctors could find no problem with me. They gave me IV fluids to help my low blood pressure, then released me.

Six months later I was still experiencing extreme fatigue, but my doctor could find nothing wrong. I was seeing a mercury free dentist (www.mercuryfreedentists.com) and he told me about the possibility of mercury being at the root of my health problems. I had my amalgam fillings removed and replaced with white fillings. I had flu-like symptoms after the removal and took many supplements to help remove the metals from my system. After this my symptoms resolved for 12 years.

I would have flare ups during pregnancy but other than that was very healthy and energetic. People would ask how I did all that I did. I ate a good diet, exercised, and took supplements.

About five years ago, I became very ill with what we suspect may have been psittacosis (I had all the symptoms, and the bird that died did, too). I took 21 days worth of doxycycline at 300 mg. per day. I had severe breathing issues, pain across my back, extreme fatigue, extreme weakness, fever, etc. After the 21 days, I still felt bad, though the respiratory part of the illness had gone except for shortness of breath. The shortness of breath would get so bad I would hyperventilate.

I slowly started working out again, got a lot of rest, ate right, and tried to get better. We moved, and when we were moving our bed, we discovered it was full of mold. We got a new bed, and I started getting better. A short time later my knee started hurting so badly I had trouble bending it. Stairs were difficult, and when I sat I had to keep it out straight.

I eventually went to the doctor for the air hunger and tested negative for asthma. The doctor said I was just hyperventilating like it was no big deal.

More symptoms started coming up, symptoms that all seemed unrelated. One of the more severe were GI problems. I all of a sudden dropped 15 pounds in three months. I had constant, severe diarrhea ... also stomach pains when I ate. I eventually became weak and fatigued.

I had testing done for celiac disease. The tests were negative, but I found that I felt better on the gluten-free diet so ate 100% gluten free for two years. I continued to have symptoms and continued to get worse .... I eventually cut out other foods, but it didn't help.

My doctor diagnosed me with Somatization Disorder, so I started researching on my own to figure out what I really had. I can't really blame her entirely for the psych diagnosis .... the symptoms are even incredible to me!

Here's the list - fatigue, night sweats, air hunger, heart palpitations, diarrhea, lack of appetite, weight loss, disorientation, mental confusion, getting lost driving, trouble reading, trouble writing, trouble talking, word recall problems, trouble falling asleep, trouble staying asleep, rashes, hair loss, bruising, TMJ disorder, weakness, joint pain, muscle aches, ringing in the ears, food intolerances, floaters in eyes, light sensitivity, sound sensitivity, touch sensitivity, mood swings, rage, rib pain, allergies, alcohol intolerance, etc.

Eventually through my research I discovered Lyme Disease. I sent away for a test kit from IGeneX labs (www.igenex.com) and took the kit to my doctor so she could run the test. The test came back with 8 positive IgG bands. She told me that I previously had Lyme but that now it was Somatization Disorder.

I went to an LLMD (lyme-literate MD) in NY for treatment. He's a wonderful doctor and has gotten me on my feet again. I have good days and bad days, but many of my symptoms have resolved. What remains is fatigue, air hunger, insomnia, fibromyalgia pain, and GI distress.

Recently, I heard about a treatment by a doctor in Germany with an instrument called the Bionic 880. It's a new technology using infrared light. There have been promising studies done on it's use with cancer and Parkinson's patients. The doctor who treats Lyme claims higher than a 90% success rate, so I thought that I'd rather spend the money to give it a try and find out that it does not work rather than wait and find out it does.

ILADS treatment (www.ilads.org) is the best we have right now, but it's not a cure, the most we can hope for is remission. I am hoping for better and am willing to give something new a try.

Recently I discovered our new (now five year old) bed also has mold. It seems that the mold exposure has been a big trigger for my Lyme symptoms and I have had trouble with the mold detoxification since we got rid of the bed. I am hoping that the Bionic 880 treatment will help with the mold detox as well as with the Lyme.

Thanks for reading, I can't wait to tell you about my experience in Germany!

--------------------
sixgoofykids.blogspot.com

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sickpuppy
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Others say you're now 100 percent so when you said this above:

I have good days and bad days, but many of my symptoms have resolved. What remains is fatigue, air hunger, insomnia, fibromyalgia pain, and GI distress.

Is that in the past, where you were before Germany, or do these symptoms persist today?

Do you still think we can only hope for remission?

thanks for sharing the story [Smile]

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Marie1959
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Several years ago, my uncle (then in his late 50s) became deathly ill and was hospitalized with platelet counts that kept falling. He had never found a tick nor did he develop any rash, just started feeling sickly and had night sweats until my aunt dragged him to the ER in a nyc hosp.

Days went by as his MD tried various abx infusions. Unfortunately, he required transfusions by the time they finally found that he was positive for Erlich, Babs, and most likely LD.

Within a year or two, he ran the nyc marathon. He is in excellent health today.

That's the story I'm holding onto. (Just not the tranfusions part!)

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Michael_Venice
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Thanks so much for posting all of that, sixgk..

My symptoms and the downhill progression have been very close to yours.

In an odd way, that gives me some more hope.

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sickpuppy
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I LOVE that story Marie1959!!!!
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Marie1959
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Sickpuppy, he was really proud when he passed PDiddy! [Smile]
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sixgoofykids
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quote:
Originally posted by sickpuppy:
Others say you're now 100 percent so when you said this above:

I have good days and bad days, but many of my symptoms have resolved. What remains is fatigue, air hunger, insomnia, fibromyalgia pain, and GI distress.

Is that in the past, where you were before Germany, or do these symptoms persist today?

Do you still think we can only hope for remission?

thanks for sharing the story [Smile]

I quoted my blog from Oct. 2008 because that has my whole story. Today I am 100%.

When I went to Germany I fluctuated from 45-70%. Previously, while on abx, I had better days than that, but I went downhill when I got off abx to go to Germany. The fatigue, fibromylagia, GI problems, air hunger and insomnia were the worst symptoms at the time I went.

If I had been as sick as I was previously, I would not have been well enough to make the trip over by myself.

Anyway, that was over a year ago ... before I left for Germany.

--------------------
sixgoofykids.blogspot.com

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nefferdun
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I was re-reading Cure Unknown today. There is a paragraph in there where Burrascano says that 17 percent of people are cured with a short course of abx. 67 percent are cured with up to six months of abx. 20 percent require long term care and after six months of oral abx when there is treatment failure he prefers to do IV rocephan. The longer you have it the harder it is to completely get rid of but it can be done. Very few people require lifetime abx and they usually have a compromised immune system. Co infections always make treatment more difficult as tests are so unreliable and we do not always know everything that we are infected with.

He and the author of the book were both cured, I think with ceftin (I have't gotten that far yet). Many other people in the book were also cured and some of the cures were miraculous as the people were so sick, but the sickest ones were given IV.

The spirrochete takes longer to reproduce than most bacteria, 8 hours. As most abx only kills the bacteria when they are dividing, you must keep the concentration of the drugs very high at all times in your blood. It usually takes a combination of drugs to attack the disease(s) simultaneously in all its forms. It is often hit and miss which drugs are going to work for which people as there are so many different strains of borrelia, over 100 in the US that we know of, and over 200 strains of BLO.

I have spent many hours searching for other people's cures hoping perhaps what helped them would also help me. Sometimes it did.
Anyway, don't give up hope. There is a cure and hopefully you will find yours.

--------------------
old joke: idiopathic means the patient is pathological and the the doctor is an idiot

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Brussels
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I'm also well, better than my pre-lyme time even. I can't say 100% well, but I don't have lyme anymore.

I'm 100% well from lyme, but I still have disregulations that came muuuch before lyme (I still have cold hands and feet here and then). I had suffered from candida infections more than a decade before I caught lyme.

So I'm treating heavy metals (to avoid candida coming back and borrelia to come back), but no symptoms from lyme. Really, I got zero symptoms.

Every time I got a relapse in the past, I got downhill VERY FAST.

So is my daughter, lyme free, lyme treatment free. We're both treating heavy metals though, through the KPU.

When I see people around me that never got lyme, most seem to have more problems than me and my daughter. They fall more often sick , complain they feel tired, have back aches, problems to sleep, allergies, constipation, bloating after eating, some suffer from headaches, rashes on and off etc.

I feel that we're doing better than the average 'healthy' people then!

So it is very possible to get well again. I relate a lot with Six in her progress. Of course, I still fear I'll relapse one day. But so far, life is good. My aim is to reach one year lyme treatment free, symptom free.

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seekhelp
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There may be a lot of stories here, but I say lifelong battle. Anything else is not true based on relapses here. Let's be realistic. There ALWAYS is a mentality that 'I cured Lyme', but.....it's yeast, metals, adrenals, parasites and 50 other issues still lingering. Healthy people just get over an illness and all is normal again. I used to be one of them. [Frown]
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sickpuppy
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Well I appreciate the 'success' stories. It can be daunting to read about so many people making no progress and being broke.

I can get periods when the brain juice doesn't work and a big dark cloud rolls in bringing thoughts of doom, ruin, and calamity. I don't think fear helps me. And I don't mind all the healthy lifestyle changes--I wish I'd made them sooner and will keep them in place forever.

So thank you for tilting the scales to balance out the tales of perpetual disease and financial destitution. I NEED them to combat my overwhelming fears: will I ever work again? will I be able to support myself? will I be able to afford my treatment if it takes a long time? will I be able to continue to endure all the symptoms? etc etc.

I hope none of you EVER has a relapse!

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sixgoofykids
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Seek, I don't have lingering issues. I am taking supps, yes. I have taken iron for over 20 years. Now I also take zinc/b6 and some others.

I still work on toxins, but not because of symptoms, rather because I think that we are exposed to way too many toxins every day. My healthy husband also does the same toxin detoxes I do (saunas, coffee enemas, etc.).

I also am taking some nutrients to rebuild what was lost while I was sick since I had such severe malabsorption issues. I notice my sleep is becoming deeper and my hormones better (symptoms I attributed to being 46, not Lyme, not health symptoms at all, just menstrual symptoms that any normal person could have). This won't continue forever, only until I replenish what was lost.

I think any "healthy" person who eats unhealthy or doesn't do anything to take care off all the bad stuff we're exposed to won't be healthy forever so I don't see my healthy diet, detoxing, exercise, and sleep to be because of Lyme.

I did have the "50 other issues" you mentioned, but I did not consider myself to be in remission until those were gone, too. Someone asked me yesterday if I thought I'd ever relapse. I said I didn't think so because I have a different body than the one that got sick. Parasites gone, not toxic, in better shape, eating healthy, sleeping better/more, etc.

I think it can be beat. I know it can. It just takes longer than we'd like it to.

--------------------
sixgoofykids.blogspot.com

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seekhelp
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No, I know Six. My point is you're 1 of 15,000+ who has not failed in achieving a 100% cure here. Odds are better to win $500 on an instant lottery ticket. [Frown] Also, from the stories of success on Lymenet, those who went into remission had serious financial resources (i.e., Germany trip, 200 hyperbaric O2 dives, endless IV for 12+ months, etc.). Those w/o the resources seem doomed to struggle. Gael's Salt/C protocol is the only realistic one financially for those w/limited resources. Oh, rife too.

This of course does not take into account people's individual health statuses and habits which are extremely important no doubt.

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TF
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I got rid of lyme, babs, and bart. I went to a local doctor (follows Burrascano protocol) and took only oral meds.

I now have the same life I had before lyme disease. It is nearly 5 years since I completed my treatment. I had these diseases undiagnosed for 10 years before beginning treatment.

I don't do anything to maintain my cure/remission.

I also have a number of friends who have gotten rid of these diseases.

Everyone is different. But, I believe the doc is the key to getting rid of this horrendous disease.

I went to 2 other lyme docs before I found the one who cured me. So, in total, I was treated for lyme for 3 years.

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sixgoofykids
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You are absolutely right, seek. I feel very blessed to have gotten where I am. I really thought it would be a lifelong battle .... and it still may, but at least now I own the tool to keep me healthy. Maybe I should go buy a lottery ticket .....

--------------------
sixgoofykids.blogspot.com

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Tincup
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To give you an idea....

For every Lyme patient I've worked with in one way or another... and I am estimating the numbers here... and I am talking over 20 plus years and too many people to count...

Those who are able to diagnose the Lyme within a year and even up to two years in many cases .... and who are treated properly by a good LLMD ... about 98% get better and go on to live regular lives. No looking back.

Of those who have had it for over 2 or 3 years before being treated properly... and who have coinfections... my guess is about 85% get to good levels and move on. They may relapse and need re-treatment, but they don't live Lyme every day and every night.

Where I see the biggest problem is in those who have had it for many many years, and have multiple coinfections and other complicating factors (steroids, genetics, age, reinfections, other health problems, etc)...

My guess is about 85% of them can get much better too... not "cured" per say.. but much much better. Some return to work, have families, etc.

The "deal" for success is to find the right doctor and for you to determine the right protocols for you as an individual.

Those are my estimates and I am not a doctor.

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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seekhelp
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Hey now, only if you use a biotensor to predict the winning numbers. [Smile] That's a very encouraging outlook TinCup. I hope you're right!


quote:
Originally posted by sixgoofykids:
You are absolutely right, seek. I feel very blessed to have gotten where I am. I really thought it would be a lifelong battle .... and it still may, but at least now I own the tool to keep me healthy. Maybe I should go buy a lottery ticket .....


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sixgoofykids
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quote:
Originally posted by seekhelp:
Hey now, only if you use a biotensor to predict the winning numbers. [Smile]

I don't have a biotensor!

--------------------
sixgoofykids.blogspot.com

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nefferdun
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It is very easy to feel this is a hopeless battle when we read the posts of people that have been sick for years but I had a wake up call on another forum. Several old lymers responded to a post about smoking and I was startled to find out that these extremely sick people had never given up smoking! There are others that feel drinking cannot be avoided or sugar is just beyond their capacity to ignore. I have found when I fall to the temptations around us, mine being too many carbs, that I get sicker. We have wake up moments piece by piece until we are fully conscious that we have to make a complete lifestyle change which includes thinking positively.

Think of your lawn infested with weeds. The abx are like the herbicides that kill the weeds but whenever weeds have taken over there are always going to be millions of seeds left in the soil. The only way to prevent them from sprouting again is to nourish the soil to promote optimum vigor of what you want to grow.
I just can't give up on the thought of curing myself. Even in my extreme mental fog I can see that the entire planet is affected by our unhealthy lifestyles and lyme is just one of the wake up calls.

--------------------
old joke: idiopathic means the patient is pathological and the the doctor is an idiot

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ping
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quote:
Originally posted by Tincup:
..Those who are able to diagnose the Lyme within a year and even up to two years in many cases .... and who are treated properly by a good LLMD ... about 98% get better and go on to live regular lives. No looking back.

Of those who have had it for over 2 or 3 years before being treated properly... and who have coinfections... my guess is about 85% get to good levels and move on. They may relapse and need re-treatment, but they don't live Lyme every day and every night.

Where I see the biggest problem is in those who have had it for many many years, and have multiple coinfections and other complicating factors (steroids, genetics, age, reinfections, other health problems, etc)...

My guess is about 85% of them can get much better too... not "cured" per say.. but much much better. Some return to work, have families, etc.

[Big Grin]

Wow, Tincup, that's a pretty dang good assessment, IMO!

seekhelp - I completely understand your viewpoint and for the most part, agree with you. The word "cure" is a very precarious one when used to describe the level of health of someone who's suffered TBI's.

In my case, I would not say that I'm cured. There's not a doubt in my mind that I was born with TBI's (Lyme & either Babs or other protozoan). It was almost 50 years before I was diagnosed and began tx. After 5 yrs on full abx tx and about a yr. off-and-on to stabilize, I'm now in remission & abx free for almost 3 yrs. Had I been treated as a child, I think the outcome would have been much better. Do I believe that it's possible that the TBI's may never show themselves again? Yes, it's possible, but I'm very, very careful and on alert all times.

The reality for someone like me who was born with the illnesses is that we're damaged in utero. I was born with slight scoliosis, lordosis, severe strabismus (weak eye muscles, which I had surgery to correct) and other damage to various systems, GI tract, etc. Even though I'm in remission, or if I were "cured", it doesn't heal all the deficits that I was born with. However, I've seen great improvements in some systems which I wouldn't have thought possible.

After the tx of TBI's is done, then, there's "clean-up", food sensitivites, biologicals, metals; this is every bit as difficult as the abx tx itself. It's a lifetime of cleaning up and staying clean. I don't smoke, but do drink red wine and eat the bad carbs and sweet stuff a few times per week and seem to tolerate it well (esp. now that appendix is gone bye-bye). I have no intention of living a life of complete denial.

Do I have my "old life" back? Well, No! I'm quite a bit older now, damaged from the tx and other things listed above. I don't know what normal is, I was born with these diseases, but I'm doing very well. It took a long, long time to get to this point.

I can't help but repeat as my mantra what Barry Corbin said in the movie No Country For Old Men. He was the disabled Deputy Sheriff, living in the trailer with all the feral cats..."People make a lot of effort trying to get back what was took from 'em. Meanwhile, more time is going out the door. Somehow, you gotta get a tourniquet on it." Truer words were never spoken!

P. S. I don't own a biotensor either, but if it helps others make it through the day, so be it.

[ 01-26-2010, 04:36 PM: Message edited by: ping ]

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ping
"We are more than containers for Lyme"

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randibear
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i'm wondering how many cannot take abx for one reason or another and have to revert to other alternative methods.

wonder how many of them get better.

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do not look back when the only course is forward

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TF
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The two lyme docs I know both say you MUST give up smoking permanently to get rid of lyme and stay rid of it.
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Brussels
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Seek, as I told before, people that never got better despite years of treatment can't believe others can get fully better.

I'm no longer in lyme treatment since last May.

My preventative treatment, I started BEFORE I knew lyme disease even existed. I tried then to eat healthy, have a healthy life style, much before I caught lyme.

This is prevention. Not only for lyme, but for any other disease.

Smoking, heavy drinking, heavy eating of junk food and sugars in excess is not going to help anyone, with or without lyme.

I suffered from candida before I moved to tick land in Europe. Candida and heavy metals are problems that are 'independent' of lyme and many people suffer from them with or without lyme.

If I then knew that heavy metals contributed to my candida infection, I would have started heavy metal detox BEFORE I caught lyme. I just didn't know. So I'm doing it now. This is not lyme treatment. The KPU was initially a treatment for mental diseases !!

Of which I might need too!

If I had done that before I caught lyme, I probably would have got rid of lyme after my initial couple of weeks abx like MANY people still do.

Every person around me has a health issue (or many health issues). I don't know if I know a real healthy person, to tell you the truth.

Most people around me should be on heavy metal detox, in my opinion. They aren't, not because they are healthier, in my view. It's just lack of knowledge.

As someone said, the only healthy person is someone like Buddha, philosophically speaking. All the rest struggle in a way or another.

My sister in law got over breast cancer after heavy operation and radiotherapy. She was a 'healthy' person before she discovered her cancer (the type that rarely falls sick).

What is really health then? Is it healthy someone that get over infections easily? So my sister in law was healthy. She really rarely fell sick and had big energy. She still doens't fall 'sick', even though she feels much more tired than before the operation.

Is she going to wait to be 'healthy' again (in her case = not to have a relapse) to live her life back? Was she really healthy then, before her breast cancer episode??!

Whatever the answer, time is ticking.

Would you rather prefer to live a life when you have energy, all the energy you need (physical, sexual, mental), and you feel good, and are 100 % free of any anti-lyme treatment, BUT still be thinking

"Oh poor me, I can get sick again one day in the future, I still carry my pills with me here just in case, maybe I can't walk too much or I may feel tired again, maybe I won't do sex because I can infect my partner with my lyme dormant cysts (!)"...

or...

simply accept your energy back, your life back (or a new life, whatever), your health back (or a new state of health) and live your life fully NOW?

I try my best to choose the second option.

I'm going for another ski season now in February, 3 day on a roll skiing with a big group of friends.

I'm learning my 7th language and continuing my course of naturopathy, practicing my pilates once a week, walking in the local mountains at least twice a week for a minimum of 3 hours, working once a week in the local school library.

I'm living probably thousands of miles away from the closest lyme doctor because I chose to. No one knows about lyme around me.

My house is a mess NOT because I have no energy to clean it, but because there's little time left!

As Ping said above, 'time is going out of your door'.

And as Tincup said, 'much better' means that! She feels 85% can get much better and have their lives back! This is a pretty positive statement!

I'm grateful to be free of lyme treatment and free of lyme symptoms. If it lasts one year, I'll think it's possible that it lasts 2 years. And so on.

My sister in law has two small children to raise, and one bigger child to manage (harder than the smaller ones!!).

She cannot let her life beside her and abandon her children just because in the statistics, she may die in the next couple of years.

And even a perfect healthy person like Buddha may cross the road and get anyway killed in a car accident.

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lightparfait
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Excellent post Selma.(Brussels)

I am lyme free as well...just doing the detox...to clear the residual that if not gone, could set me up for other conditins down the road.

it is not just lyme....it is the terrain...what we have in our body...that allows lyme, et al to flourish. Clear your house of all the debris and you will live most healthy and free.

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lymeinhell
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I call it peaceful coexistence.

--------------------
Julie
_ _ ___ _ _
lymeinhell

Blessed are those who expect nothing, for they shall not be disappointed.

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sutherngrl
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Thanks to all of those that posted these wonderful positive post!

I believe that ppl can get well and stay well from LD. I think there are a lot of ppl that got well, and just never posted here, and some posted and left because they have their lives to live.

I do believe that for many of us, we are looking at years of treatment, but if that is what it takes then we must push forward to get to the end.

I have been treating for 20 months. I think I am slightly better than when I started; but then its hard to say for sure since I don't live the same lifestyle that I lived before getting sick. Sometimes its hard to tell and I think thats the part that can make ppl feel discouraged.

Even so, all we can do is keep treating and try to stay positive and "believe" we can get better. I don't see another alternative.

You can't wallow in misery every given moment and expect that to help in your healing.

You have to live the best you can live even when you are ill. I am just thankful each and every day that I am still here today, to have another day to fight for my life.

These are just my words of wisdom, things I am learning from being ill. And I am learning a lot from LD every single day.

Man am I gonna be smart by the time I get better! HA!

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