Six.5 years? Six.5 years I was left suffering from this damn government (Canada)?
My co-ordination is improving. I experienced a seizure as mild as I haven't experienced since early 2003 - definitely late 2002.
My handwriting is improving.
How does this go ON???????????
-------------------- For medical advice related to Lyme disease, please see an ILADS physician. Posts: 1494 | From Getting there... | Registered: Aug 2006
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posted
canbravelyme and six goofy kids, What bart treatment did you do? I have done zith, omnicef and tindamax and got immediate improvement. But after 8 months I went off of them to detox and the symptoms returned quickly.
I finally got my doctor to prescribe Bactrim DS for my Bart. Several people say it's what really helped kick it.
What did you two use?
Posts: 123 | From Montana | Registered: May 2009
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I am glad you are seeing relief. Even though your government might not provide the best care - we don't get it either because the CDC does not recognize chronic lyme - and more than likely it is our CDC recommendations that your government is following!
I feel MUCH better since I started Bactrim DS. The rifampin was making me just as sick as the bart with the same symptoms. Now all I have to do is clear up these hot flashes!
What is helping you?
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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Nefferdun- It's your Montana Neighbor--Robbie--try bio identical hormones for your hot flashes. The naturapath in Bozeman can do this. Glad Bactrim DS helped you too. Rifampin made me sick as well.
Robbie
Posts: 123 | From Montana | Registered: May 2009
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posted
nefferdun, So good to hear that Bactrim DS works for you. How much do you take and do you take other ABs with it? I've been taking Rifampin with Doxy and Azihro for more than 5 weeks with no imrovements...
-------------------- having LD since 2005 Posts: 45 | From Eu | Registered: Sep 2009
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canbravelyme
Frequent Contributor (1K+ posts)
Member # 9785
posted
Thank you all for your input! I so appreciate that I know you.
I'm on Levaquin and Omeprazole (it's a proton pump inhibitor - it's purpose is to heighten the effect of the Levaquin).
I will say that the most important focus has to be on finding a doctor. We've all been infected in various places, and what works for one may not work for another.
-------------------- For medical advice related to Lyme disease, please see an ILADS physician. Posts: 1494 | From Getting there... | Registered: Aug 2006
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canbravelyme
Frequent Contributor (1K+ posts)
Member # 9785
posted
Update: Today no seizures so far. I did pretty well everything I wanted to do within the house. Two little lie downs....
-------------------- For medical advice related to Lyme disease, please see an ILADS physician. Posts: 1494 | From Getting there... | Registered: Aug 2006
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
That is great that you are doing so well - finally found out what was standing in your way of recovery and hopefully will knock it down.
imaginit, I do take bio-identical hormones. My doctor wanted to up the dose and maybe I will do that but it seems more related to the bart because it is improving since I started the Bactrim DS. I plan to see the doctor in Bozeman. I just have to arrange for my daughter to "babysit" all the animals. So good to know I don't have to drive out of state again.
I take 500mg zithro once a day and Bactrim DS twice a day.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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Six - You said you treated for 6 weeks for Bart. Did you take the Levaquin for 6 weeks? What dosage were you on? Did you take it in a combo with anything else?
Thanks
Posts: 86 | From California | Registered: Oct 2009
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