OPINIONS? I had a panic attack at work when i got the results and had to leave.
I have horrible yeast issues, afraid to do antibiotics:/
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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posted
The good news regarding your results is that your insurance company cannot deny you treatment (which happens a lot). If I were you, I would pursue IV antibiotics right away.
For yeast, my LLMD recommends "Healthy Trinity" probiotics (at health food stores). It's very expensive, but it works. You can also be prescribed Nystatin liquid to take every day while you're on anibiotics. When the yeast becomes too much, you can take Diflucan, of course.
Do you see a LLMD Monday?
Try not to think too much about your results...you'll drive yourself crazy (I did). Plan lots of things to do this weekend to keep your mind off of them...even if it's loading up on movies to watch at home. Let us know how your appt. goes on Mon.
-------------------- Misdiagnosed with CFS for 7 yrs. Diagnosed by LLMD in 2009. Aggressive treatment for 3 years with minimum improvement. Posts: 120 | From FL | Registered: Jun 2009
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posted
Wow. Good test .. I mean if you HAVE to have Lyme it's great to have a good test so no one doubts you.
What are you doing to combat the yeast now?? Have you tried "everything?"
Hope it all works out!!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
I have been on the anti-candida diet for 6 months already. I use oil of oregano and other herbal supplements. I also do boric acid suppositories.
I cried at work and told some co-workers and they said "oh it's not cancer calm down, it's treatable and not that serious".
Made me so angry. People who don't know about it making comments. YOU try feeling like you are 80 years old from all the pain when you are actually only 30.
Yes, I am seeing a LLMD in nyc Dr. M. I did the WB through him
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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posted
After reading your posts, I really think you may have Bartonella as well. Is your anxiety severe? I tested positive like yourself for Lyme, but negative for Bartonella. I am now having rashes and stretch marks from Bart treatment.
A good clue that you may have bartonella is swelling of the lymph nodes upon becoming ill. I had one that was VERY swollen, and the surrounding area was painful and tender.
Take care.
Posts: 967 | From A deserted island without internet access | Registered: Sep 2009
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
Consider yourself lucky with these test results. So many of us started treatment with a negative test and a clinical diagnosis. At least you know for sure what your dealing with.
Also you might as well face the fact that people that have not walked in your shoes will NEVER understand how ill Lyme Disease makes you. You have to learn to ignore their ignorance!
Try to think of the positives....You have a positive test and therefore you know for sure its LD. You don't have to ever question your diagnosis again. And you already have a LLMD to treat you and get you well.
Everything will work out!
Posts: 4035 | From Mississippi | Registered: Jul 2008
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BackinStOlaf
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posted
kday- I never had any fevers, swollen nodes, or flu like symptoms. So I don't know. I'll see what Dr. M says and maybe he'll test me for co-infections.
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Your test is VERY close to mine, but I'm not CDC+ on either side. We have nearly all the same bands. Interesting. Yes, I'd pursue Lyme treatment aggressively. What did non-Igenex labs show on the WB? The only difference is I have a much stronger IgM response in the IgM side on 23-25 (+++). I don't think you have one positive band I don't. How strange.
What symptoms do you have?
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Back, I remember crying when I opened my highly positive lyme WB. I had been under treatment for about 3 yrs with my PCP. WB with Labcorp had been negative 2-3 times.
Igenex WB came with starting with LLMD. Even though I knew it's was lyme for years...this WB just smacked me in the face.
My husband couldn't figure out why I was crying. It felt like validation that I wasn't crazy, my body was overloaded with anti-bodies fighting lyme.
Positive tests results should help, but you will still have to fight lyme ignorance with medical establishment.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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ping
Frequent Contributor (1K+ posts)
Member # 6974
posted
quote:Originally posted by BackinStOlaf: I have been on the anti-candida diet for 6 months already. I use oil of oregano and other herbal supplements. I also do boric acid suppositories.
B..Olaf - In my not so humble opinion... If I remember correctly, you have about 17 amalgams in your mouth and were about to start having them removed, yes? Please don't have them removed yet! You need to get your yeast under control and the diet, oil and acid are not doing it for you. You need to discuss this with your LLMD and get on a stronger program right away, before starting abx. Once you begin abx, you MUST continue the stronger program, until such time as you and LLMD determine otherwise.
Yes, your test is surely positive, but thankfully, you don't have any "4-plusers", as I and a number of posters here did; believe it or not, that's some good news. Now the bad news: Don't believe for one minute that an insurance company can't deny you treatment; they can limit your treatment, which is essentially the same animal. (You can thank the IDSA Guidelines for that.)
If I knew then what I know now and I were in your position, I'd get my LLMD to start me on hard-core, prescription anti-yeast meds and quit depending on herbals. You're not in a position to wait any longer for them to work, if they ever will work for you. As soon as you get the yeast controlled, start the abx and continue the strong anti-yeast meds and diet.
Should your LLMD put you on IV Rocephin, you must take Actigall or some other support in order to keep your gallbladder, else you might have to kiss it goodbye.
Somewhere down the road, once you're in remission, then you can think about your amalgam removal. I still have 9 of them myself and don't plan to get any of them removed until I'm further along in PSP treatment.
Regarding your interactions with others that dis you because it's "just yeast", your only recourse is to shut up. They don't understand and will never understand, until it's their turn... And each and every one of them will get their turn.
Consider all you've heard from all the sources here and make a decision soon and do it. Keep in touch with us. We all hope for the best for you.
-------------------- ping "We are more than containers for Lyme" Posts: 1302 | From Back in TX again | Registered: Mar 2005
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
WOW Great Showing!!! How'd you do that? I wish it would work like that for everyone.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
seekhelp: my labcorp wb showed Equivocal Elisa and wb has positive for band 41 and 66. That's all. It was considered negative.
Ping: I am afraid to do too many more rounds with strong anti-fungals (which I have in the past) because I am afraid to grow resistant and get hospital grade yeast. If the lyme doesn't kill me, the yeast will!
Also, Ping- why is a 4-pluser so much worse?
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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ping
Frequent Contributor (1K+ posts)
Member # 6974
posted
quote:Originally posted by BackinStOlaf: Ping: I am afraid to do too many more rounds with strong anti-fungals (which I have in the past) because I am afraid to grow resistant and get hospital grade yeast. If the lyme doesn't kill me, the yeast will!
Also, Ping- why is a 4-pluser so much worse?
Response to yeast issue: I completely understand. You know yourself best. It's you're decision.
Response to 4-pluser question: Depends, on how many you have and if on both G or M, etc. Was just thinking of a lady who used to post here that could have mirrored your results on both M and G, but had no less than 2++ on anything and most were 3+++ and at least one was a 4++++... I think it's good news that you don't have any of those.
Best to you, as I know how sick you must be.
-------------------- ping "We are more than containers for Lyme" Posts: 1302 | From Back in TX again | Registered: Mar 2005
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
I am so glad you did not go another something years with another misdiagnosis of whatever...Is is well
known some borrelia species have different OSP's and if they aren't included in the test they won't
be found for sure. I think it is another way to keep us sick... Prayers for the easy road to
wellness. And I agree with ping. You need to address the yeast with something beside herbals.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
I actually think more ++++'s would be a good thing. It seems that it would show that your body is producing more antibodies in reaction to the infection.
In that case it would mean your body is actually putting forth an effort to fight the infection, whereas, with less +'s of no +'s, the body is not responding to the infection at all.
Isn't this the reason that sometimes the most ill people have the most negative test???
Posts: 4035 | From Mississippi | Registered: Jul 2008
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ping
Frequent Contributor (1K+ posts)
Member # 6974
posted
sutherngrl - My best guess is there's no absolute answer to this question. All I know is I met the lady, as she lived a couple of hours from me at the time. She was bedridden for a couple of years and died about a year later. We had the same LLMD and all he said about it was, "For some, it's was just too late". That's all I know.
I had a 4-plus on one of my bands and was told by the same LLMD that, in his opinion, I was just a few months away from being "unrecoverable"...(Whatever that actually means.)
-------------------- ping "We are more than containers for Lyme" Posts: 1302 | From Back in TX again | Registered: Mar 2005
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