Topic: Perhaps a breakthrough...KPU/HPU issue with my son? Advice welcomed...
tick battler
Frequent Contributor (1K+ posts)
Member # 21113
posted
I have started looking at Dr. K's info on KPU/HPU for both of my boys and my husband.
One of my twin 6 year old boys tests negative now for lyme through EDS but still has overly emotional behavior and sees colored spots at night. We think the spots may be parasites, which he still tests positive for but I am not sure about the behavior.
He also bites his nails (and eats them...I know...disgusting). I just read on another forum that nail biting can be a zinc deficiency. Then I also looked and saw a couple of white spots on his nails, which I think Dr. K claims is a tell tale sign of KPU/HPU. And I read somewhere that low zinc can cause emotional behavior too!
Now I need to research this even more thoroughly. I think I have found a local doc who follows Dr. K and can help me, but would love any tips on a protocol for my son and what rough dosages you start with. Any info on your KPU protocol would be helpful, just to get an idea of what is done and how it is started. Did you use the CORE product Dr. K recommends? Can a child take this? I worry about nausea from the zinc.
Thanks for any info...
tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
| IP: Logged |
posted
I'm glad you're looking into this. Dr. K has said in talks that 80% of people with white spots have KPU. He said in the same talk that if you have Lyme and white spots, you've hit the jackpot and are very likely to have KPU. I had both.
Core wasn't out when I started, so I started with Depyrrol. It has 30 mg elemental zinc (210 mg of whatever form of zinc it contains). It also has the manganese and b6.
I also take oil of evening primrose, and after several months added some copper.
That's all I do for it. In the beginning it's tough. Have some binders on hand.
I'm glad you'll have medical oversight .... I did not, but wished I had just because it's easier when you're not doing your own guesswork.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
| IP: Logged |
posted
I too have twin boys, but mine are nearly 14.Both are on KPU treatment through our LLMD. One tested very strongly positive via ELN/Vitamin Diagnostics Lab (he had the white marks on his nails), the other more borderline. I am also borderline positive for KPU and in treatment for it. All our KPU protocols are different as they are tailored to us as individuals. We all take zinc every morning, none of us have had nausea with it. We then take trace minerals,vitamin b, biotin etc. We have been doing this now for 10 months. My boys now seem quite healthy and are managing schools and sports etc. They are still in treatment though. I have had to do lots of heavy metal detox because of it, but the boys seem to have sailed through KPU treatment so far. Have you read this article about it ? http://lymelighters.org/uploads/012610_KPU_Forsgren_explore_18-6.pdf
I think it is an aspect of Lyme treatment well worth doing.
Posts: 174 | From UK | Registered: Oct 2009
| IP: Logged |
tick battler
Frequent Contributor (1K+ posts)
Member # 21113
posted
six- thanks for your input. When you say "tough," what symptoms did you have with it? Did you feel nauseous? Did you have have testing done for it? Did you take it on an empty stomach first thing in the morning? What binders did you take with it that children can also take? What is the oil of evening primrose for and how much did you take of it? How did you know to add copper? I thought when you have low zinc you often have too much copper? What improvements did you notice from the protocol?
ticksick- thank you for sharing your protocol. When do you take the other parts of the protocol? How did you know how much to take and did you have to work up the dosages slowly? Have you or your boys noticed any symptom relief from this protocol? How did you know you needed metal detox when you started this protocol?
Thanks!
tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
| IP: Logged |
posted
I get nauseous only if I don't take the zinc with a meal. A snack is not enough.
I had increased symptoms - fatigue, aches, etc. related to toxicity. You do have detox reactions at first. Then, later, the immune system kicks in and it feels as if you're fighting off bug after bug. Google "healing reaction" or "healing crisis", it's along the lines of what I'm talking about.
I tested by ART because I did not have a doctor who could test me. I would have done the testing and have been supervised by a doctor if I could have been.
I'm not sure about kids and binders. I took bentonite clay and zeolite. I don't test well for chlorella and charcoal.
Oil of evening primrose is a supplement. I just take the normal dosage on the bottle.
After six months or so of supplementing, the zinc can deplete the copper. It's normal to have to supplement copper after some time supplementing zinc.
I started the protocol in April 2009. At that point I still ART tested positive for bart and babs. By August 2009 I was in remission. I believe it helped me get all the way to remission.
quote:Once all of the bodily systems are back online and func- tioning properly, a few months after introducing the HPU protocol, patients are essentially made invulnerable to Lyme disease, to molds, and even to heavy metals.
Their bodies are now much better equipped to deal with these conditions when they have appropriate levels of zinc, biotin, manganese, vitamin B6, and arachidonic acid to support optimal functioning of numerous bodily processes.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
| IP: Logged |
tick battler
Frequent Contributor (1K+ posts)
Member # 21113
posted
Thanks for the detail, six...
Yes, I remember that quote very well...I do hope he is right...for my family to be invulnerable to lyme would be my greatest wish right now! That is why I have to try this protocol for all of us.
tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
| IP: Logged |
posted
Yes, I really have hope from that quote, on so many levels. I must say, I was in remission for 12 years before a new bite 7 or 8 years ago. That remission was delicate. If I didn't get enough sleep or didn't eat right, I'd feel bad.
This time around, I just feel well. I do take care of myself, but I don't have symptoms if I eat the wrong food or get run down. It definitely feels different.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
| IP: Logged |
posted
Our LLMD has decided all dosages and timings of different supplements based on our symptom picture.We each have very different protocols, but we all take zinc, trace minerals and biotin as a basic.
I did have a lot of amalgam fillings (all gone now)and so I was aware of a potential heavy metal problem for me. After 5 months on the protocol, I started Nutramedix Mora, which is meant to be good for parasites. Then all sorts of new symptoms emerged including vivid dreams, inability to sleep, very bad headaches. At this point my LLMD thought mercury toxicity and I started on a heavy metal detox regime of chlorella, microsilica and zeolite. The symptoms then all calmed down again.
We went in at full dose straight away, so didn't titrate the doses up and I haven't noticed any problems at all.We haven't added copper yet. I take some of the zinc on an empty stomach in the morning, but was told to take it with food if I became nauseous.
I don't feel that symptom relief has come about from the protocol directly, the children have just steadily got better with a few hiccups along the way. I think the theory goes that it improves your immune response. So I guess that should just lead to quicker, easier treatments if the theory is correct.
Posts: 174 | From UK | Registered: Oct 2009
| IP: Logged |
tick battler
Frequent Contributor (1K+ posts)
Member # 21113
posted
Thanks ticksick...
I'm curious, did your LLMD recommend getting rid of the amalgams?
What brand of microsilica do you use and how much do you take? I think that is what Dr. K likes for detox.
Glad to hear you are all making steady progress.
tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
| IP: Logged |
posted
Yes, my LLMD said I would never get completely well with the amalgams still in place.So I just do everything she says to try and optimise my recovery. I use BioPure Microsilica, the one Dr K recommends. It is expensive, but the dose is one tiny scoop so the small vial lasts about 2 months.
Posts: 174 | From UK | Registered: Oct 2009
| IP: Logged |
GiGi
Frequent Contributor (5K+ posts)
Member # 259
Scroll down to the video and take your time to listen to it very carefully.
I would not recommend someone try heavy metal detox on their own, especially when KPU is in the picture, and of course not when amalgams are still present. It really takes someone with experience to guide you through that. A lot of experience. There are many agents Dr. K. likes to use to detox and not all are suitable for everyone.
He has developed the CORE over time, correcting it and taking into consideration that even in Europe where HPU/KPU is also being treated and for a longer time than here, the method is not flawless. He is not satisfied with the European Depyrrol as it is being sold there amd this was the reason he developed CORE gaining info from his patients who were already doing the therapy, as was he himself. Hopefully food and metal/chemical allergies are not a problem for anyone. Some more info:
When energetic testing of Lyme is no longer positive, it does not mean that it is no longer there. It simply is not testable at the time. It may be at a layer where it cannot be tested. It is a good sign, but it doesn't mean we are home for good, especially when symptoms are not totally gone. When all symptoms are gone and stay gone, all is well. It will happen!
Take care.
Posts: 9834 | From Washington State | Registered: Oct 2000
| IP: Logged |
tick battler
Frequent Contributor (1K+ posts)
Member # 21113
posted
Gigi -
Thanks SO MUCH for posting this - very informative...will watch the video..just saw a short bit of it but have to get the kids to bed right now! Dr. K just makes sense. He really researches things like a good doctor should!
By the way, do you know Dr. S. who is speaking at the next K seminar in Feb in NY? He apparently has been following Dr. K protocols for a long time and lives near us.
CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
My practitioner starts with Deppyrol, baby doses for even adults, and then works up. He does not like the Core, when I asked why he said that "it causes a lot of problems". I don't know what that means. I will be doing the Deppyrol.
Actually I sort of feel like I am doing 2/3 of the KPU treatment, I take really high doses of P5P (B6) and also the Omega 6/evening primrose oil at 2 capsules a day. The thing I am not doing is the zinc (right now) because that is the "detoxer".
Posts: 3528 | From US | Registered: Apr 2007
| IP: Logged |
linky123
Frequent Contributor (1K+ posts)
Member # 19974
posted
Dr K mentions an oral surgeon in his presentation that he says is the best at cavitation surgery. I was not able to understand his name.
If anyone caught it, would you pm me with the name? I have had some surgery, but am not healing properly and if he's not too far away, would like to consult him.
I also saw in some of Dr. K's info that KPU could cause problems with cavitation surgery not healing well.
Someone posted above that they tested borderline for KPU. What is considered borderline?
I and my son have many of the sx of KPU. If any of you could, would you pm me the name and location of the md that tx your KPU?
I am willing to travel, as we have had to do in order to be tx in all aspects of this disease.
I've asked our local mds, and they are either clueless or laughed at me. Thanks.
-------------------- 'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28 Posts: 2607 | From Hooterville | Registered: Apr 2009
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic