cfs, hhv6, mycobacterium, hsv1, cmv, pirovirus, and Epstein Barr virus.... digestive system
GOD GIVE IT, AND GOD CAN TAKE IT AWAY Posts: 655 | From new york | Registered: Dec 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- How is you got this without having your doctor give it to you?
We cannot tell you by this test if you do or do not have lyme. However, your doctor - looking at the test along with your history and symptoms - will have a better idea of what to tell you. You are seeing a very good LL PA.
When is your next appointment? I still can't believe you got the test results without having your doctor give them to you and discuss it. Very unusual. Did they mail it to you from their office?
As you've often stated, you have other chronic stealth infections that can certainly explain your symptoms. No need to be alarmed but, yes, other viruses do cause chronic symptoms, too.
Your LL PA should be able to advise you will all that - or refer you to another specialist.
We could give you all sorts of suggestions but you really need to wait for your LL PA's interpretation and advice.
For now, are you following the self-care set in Burrascano's guidelines? Just do the best you can and this will work out.
With #41, and the INDs, there is still a chance that you could have lyme. Again, more information is needed and only your LL PA has your full picture. Whatever is going on, you are getting closer to figuring it out. Self-care now matters so just do the best you can.
Whatever is going on - and that will soon become clearer - your body will heal better the more relaxed you can be - and also with some enjoyment. Music, art, whatever gives you a healthy outlet . . . . be sure to add enjoyment to the list of things that brings benefit. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
My LLMD thought that an IND on band 34 plus a + on band 41 plus the symptoms my daughter was having was enough to warrant a trial of abx. The reaction (herx) to the abx confirmed diagnosis so he continued to treat her until she was symptom-free.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
ok, i fax the finding on the other lab work that was positive on friday, dr.M. was back up with patients today.
he couldnt fit me in.. the least they can do was to gave me my report..they are sweet...i love them.
the young lady at the front desk called me yesterday, but i wasnt home. she left a message,
today..saturday, i called back this morning, and told them about getting a copy since dr. M. cannot
see me....they got the ok from dr.M.
they worked on the 2nd saturday of every month,
they love me, they get excited whenever i come in.. they would alway say....hi miss________
they are so careing, im not accoustom to the kindnest, in my area, people are not that kind.....they make me feel special..like a movie star...im very serious about this too.
also i did dress well for the weather, and it didnt snow that, that bad...i was out yesterday to my
dr's office, and every one went to work in new york city. people was out and about.
cfs, hhv6, mycobacterium, hsv1, cmv, pirovirus, and Epstein Barr virus.... digestive system
GOD GIVE IT, AND GOD CAN TAKE IT AWAY Posts: 655 | From new york | Registered: Dec 2009
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Tough call Street129. I'm not sure what I'd do. There is very little there.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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cfs, hhv6, mycobacterium, hsv1, cmv, pirovirus, and Epstein Barr virus.... digestive system
GOD GIVE IT, AND GOD CAN TAKE IT AWAY Posts: 655 | From new york | Registered: Dec 2009
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IckyTicky
Frequent Contributor (1K+ posts)
Member # 21466
posted
That is why it's a clinical diagnosis. It could be that your body isn't making antibodies to the Lyme bacteria. I would see if your Dr will treat and see if you have a herxheimer reaction from it. Then retest through IgeneX again later and see what pops up then.
-------------------- IGM: 18+, 23+, 30+, 31+++, 34+, 39IND, 41++, 58+++, 66+, 83-93IND IGG: 31+, 39IND, 41+ Also positive for Mycoplasma Pneumoniae and RMSF. Whole family of 5 dx with Lyme. Posts: 1014 | From Texas | Registered: Jul 2009
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My tests were indeterminate too. One thing you could do is call Dr. H of Igenex. He takes calls on Mondays and Tuesdays and is more than willing to explain your report and give feedback.
He recommended I do an additional test, the 31 epitope, because it was very specific for lyme. They can use the blood they already have, you just need to have your doctor sign off.
I also have CFS and many viruses, and know that they can cross react with band 31, and many bacteria/parasites can cross-react with band 41.
Posts: 964 | From san diego | Registered: Oct 2009
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