posted
My doc only does meds M,W, F's, 3weeks out of the month. Im concerned that the meds wont get up to the right level in my blood . Any thoughts on this?
-------------------- Severe neurological problems. Probably sick for years. Became chronically sick in Aug 2007. Undiagnosed for another 15 months. Started treatment for lyme and bart Sept. 2008. Improving, but very slowly. Posts: 515 | From washington dc | Registered: Aug 2008
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
It sounds like he is using the Marshall Protocol.
You can read about it on the Internet. Here is one site:
When choosing a doctor, a person must first find out what protocol the doctor uses for lyme disease. A doctor will generally stick to one particular protocol that he/she believes in and will not change that protocol to suit a patient.
So, if you decide you don't agree with the Marshall protocol, you will likely have to change doctors.
You can call a lyme doc's office and ask what protocol they follow. Then, decide if you want to make an appt or not.
Posts: 9931 | From Maryland | Registered: Dec 2007
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lpkayak
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posted
me
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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seekhelp
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posted
I believe one of the best, or the best, LLMDs in the country (Dr. J in WA) promotes it.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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CD57
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posted
yep I'm on that too Brandi (same LLMD). I need to talk to him at next appt about that issue....his explanation to me was that he found the same effectiveness treating w/VERY high doses 3 days/week as 5...esp when you consider the lovely Flagyl bomb at the end.
Posts: 3528 | From US | Registered: Apr 2007
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sutherngrl
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posted
It seems that more LLMDs are starting to either pulse or use lower doses..... with the same outcome as those taking huge constant doses.
My doc says your tissues can only absorb a certain amount of the antibiotics anyway. No need to take large doses that only get squeezed out, (not used), and then it over taxes the liver.
I actually like the idea of pusling. Some antibiotics have a very long half life, like Zith, so you can maintain a high levels in the blood even when pusling.
Doxy which has a much shorter half life, might not be a good choice, unless its the "attack and retreat" mode that makes pulsing work with these type antibiotics.
Still not convinced that pusling would be a good choice with Doxy.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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CD57
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posted
seems like it would work no problem for Lyme.
what about the co's, though?
Posts: 3528 | From US | Registered: Apr 2007
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lymednva
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posted
I'm also pulsing, have been for quite a while now. My doc picked up on it from Dr. J in DC.
It's working for my Babs, so yes, it works on co's.
-------------------- Lymednva Posts: 2407 | From over the river and through the woods | Registered: Apr 2006
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tick battler
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Member # 21113
posted
lymednva,
Can you tell me what your protocol is and how often you pulse? I would be interested in hearing what you are pusling for babs, as well as the other things you are taking.
CD57 and Brandi - which LLMD are you seeing and where is he located?
Thanks! tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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posted
Jadin has a 85-95% cure rate with her protocol. It is specifically for Rickettsia and intracellular pathogens like Mycoplasma and Cpn, which I think is the bulk of our problem.
She pulses 7 -12 days per month of various tetracyclines, combining them with Azith or Biaxin, next month with a quinolone, next month with Tini or Flagyl and then back to the beginning.
She also changes up the tetras: Doxy one month, Mino the next.
See's a cure rate for most by 8-15 months. I think she is very smart. Google and read up on it.
These are slow growing bugs.
Posts: 770 | From USA | Registered: Jul 2006
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tick battler
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posted
Myco - Thanks for the info...does she practice in South Africa? Do any LLMD's use her protocol? Thanks, tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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posted
I'm not sure, but I find my LLMD is always interested in hearing/reading about success rates like hers.
Posts: 770 | From USA | Registered: Jul 2006
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tick battler
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It is from 1999 so I'm not sure if it is her current approach...but there is a lot of interesting info in it.
tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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CD57
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posted
7-12 days, is this all together or spread throughout the month?
Posts: 3528 | From US | Registered: Apr 2007
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CD57
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posted
This woman is VERY smart. Doesnt talk about doses though.
So it would be: doxy+Zith mino + Biaxin Doxy + Levaquin mino +tindi....etc
I also like her comment that her patients are her own private daily lessons. I'm gonna say that to my LLMD next time! Posts: 3528 | From US | Registered: Apr 2007
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posted
Yes CD-57, correct. It would be 7-12 day of these rotations per month. She studied the bug cycle and knows it well. She has an excellent recovery rate.
The dosages are common lyme dosages:
300-400mgs of Doxy. 500mgs of Zith or Biaxin 500mgs of Levaquin, Cipro or Factive 200mgs of Mino + standard Tini dose.
She also commented that a period of antimalarials have worked for the more difficult patients.
She stands by the 85-95% recovery rate. Most to all within 6-16 months.
Google and you will find her presentations.
Posts: 770 | From USA | Registered: Jul 2006
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CD57
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posted
is there anything that our docs can learn from her and apply?
Posts: 3528 | From US | Registered: Apr 2007
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posted
I would think so? You would think 7-12 Days a month would create resistant bugs but I guess that's why she changes the tetracycline up. She did study the bugs life cycle so I suppose she knows what she's doing and has been treating patients for a long time.
Dr H in NY is pulsing factive in a similar fashion and getting very good results. If this kind of pulsing works it would certainly be a lighter load on the body and would also give the body time to repair.
I believe you do have train your immune system to recognize these bugs because you will never sterilize yourself of them, only lighten the load and then let your immune system take over.
Seems to be her approach.
Posts: 770 | From USA | Registered: Jul 2006
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