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» LymeNet Flash » Questions and Discussion » Medical Questions » Remission From Dr. B's

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Author Topic: Remission From Dr. B's
canefan17
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Who all on this board is in remission from Dr. B's protocol?

No rife, no HBO, no MP

Just Dr. B's

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seekhelp
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Hopefully everyone!!
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Lauralyme
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TF where are you?

--------------------
Fall down seven times, get up eight
~Japanese proverb

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seekhelp
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Everyone TF knew was cured including herself w/this protocol. Only one wasn't and he/she had alcohol issues.
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canefan17
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Cool. Thanks
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sickpuppy
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what's this protocol specifically? Can you PM a link or something.
I might know what this is but wanna be sure. Thx!

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Keebler
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-
Sick Puppy:


http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf

Dr. Burrascano's Treatment Guidelines (2008) - 37 pages

Sections regarding self-care:

Go to page 27 for SUPPORTIVE THERAPY & the CERTAIN ABSOLUTE RULES

and also pages 31-32 for advice on a safe, non-aerobic exercise plan and physical rehabilitation.

----

http://www.lymepa.org/html/dr__j__burrascano_september_20_15.html


Burrascano's Powerpoint presentation 9-20-08

-------

This is included in Burrascano's Guidelines, but you may want to be able to refer to it separately, too:

http://www.lymepa.org/Nutritional_Supplements.pdf

Nutritional Supplements in Disseminated Lyme Disease

J.J. Burrascano, Jr., MD (2008)

Four pages

-

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Keebler
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-
Working primarily with Dr. B, the park ranger in this film (Jordan) saw wonderful progress after the 3 year point. It is really encouraging to see his success.

While treatment may have varied, others also got much better either with that protocol or a similar one. There really is no ONE exact protocol for everyone. Each patient will have it tailored for their needs at each step.

A "distinct abx w/ complementary supplement" protocol (such as here) may not work for everyone but it certainly has worked for many.

I think the key is not so much a protocol on a piece of paper but an intelligent and experienced LLMD - along with the patient taking excellent care, as best they can. I don't think any "recipe" can just be followed. The eyes, ears, and insight of a seasoned LL doctor means so very much -- partly because lyme rarely travels alone and a good LLMD can identify other infections and deficiencies, too.


A expert LLMD and all the protective, adjunct and self-care is very expensive so I'd sure hate to see anyone give up who is unable to obtain that . There is always a way. We learn more each day. And, yes, others have gotten better in other ways, too.

----------

FILM:

http://www.underourskin.com

UNDER OUR SKIN

This can be purchased at the site. Excellent and very encouraging.

-----

This is Jordan's update as of Jan. '09 - with some replies to posters beyond that (Oct. being his last entry - but the replies are not specific to any treatment. He's just living his life):

http://underourskin.com/blog/?p=109

==================


The book "Cure Unknown" also details how the author (and even Dr. B himself) finally conquered lyme.


http://tinyurl.com/5crsjv


Cure Unknown: Inside the Lyme Epidemic (2008) - by Pamela Weintraub

This details what an entire family went through. Having this knowledge of their journey will help others to get better, faster treatment.

http://www.cureunknown.com

-

[ 01-15-2010, 02:14 PM: Message edited by: Keebler ]

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elley0531
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Yes my fiance and I just watched Under Our Skin a week ago. So powerful.
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JR
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quote:
Originally posted by canefan17:
Who all on this board is in remission from Dr. B's protocol?

No rife, no HBO, no MP

Just Dr. B's

ME ME ME [hi]
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canefan17
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Congrats.

Do you do any continuing treatment?

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cactus
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I'm not on abx any longer, and still doing well - so I think I can wave my hand here, too!

--------------------
Did you ever stop to think, and forget to start again? - A.A. Milne

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sickpuppy
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Are you saying Dr.B's supplements and self care stuff cures on its own or maintains AFTER abx???
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JR
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quote:
Originally posted by canefan17:
Congrats.

Do you do any continuing treatment?

Are you talking to me?
If so- I continue with an Endocrinologist and a urologist and a cardiologist-for problems exacerbated by Lyme but probably not caused by Lyme. All under control now.

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canefan17
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JR

What kind of stuff does your endo have you on?


Sorry... im so nosy

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JR
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quote:
Originally posted by canefan17:
JR

What kind of stuff does your endo have you on?


Sorry... im so nosy

Synthroid and for a while prescription D- now just supplemental D with Calcium.
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WildCondor
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Remission, yes. You guys have to follow the protocol correctly with doses and duration. If it is not followed correctly, don't expect cures. Most of you are on too low doses and for not a long enough time...be careful and follow the guidelines.

It took me 5 years of this protocol but it did and does work. The maintenance, diet, exercise, supplements and supportive measures are all crucial components to getting well. You do not want a piece of the Lyme treatment puzzle to be missing. Keep educating yourselves, ask questions and be determined as ever and you will make it.

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canefan17
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Wild Condor,

Did you ever go the Cowden protocol route?

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WildCondor
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Yes I did towards the end of my treatment and it worked well for me. Zhang's herbs too. I followed the Limited Cowden on a rotation with Banderol, Quina, Mora, Samento and Cumanda along with Parsley and Burbur for detox. [Wink]
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canefan17
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Cool. Thanks

I'm gonna be diving into the world of Cowden after I'm done with this Babs abx protocol.

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migs
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Question for all in remission: How did you do your cyst busting?

Do you recall doses? pulsed or daily? Treated throughout or just some cyst busting intermittent or...?

I'd love to get some insight.

Thanks

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WildCondor
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For cysts...Flagyl...at first it was for 3 months straight at 500 mg 4x per day, then pulsed 4 days on 3 days off for 2 weeks on 2 weeks off. The pulsed doses were 750 mg Flagyl 4x per day. It worked awesome! All of it combined with other antibiotics.
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TF
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A previous lyme doc had me on high-dose amoxy for 2 years. Then I switched to the Burrascano doc.

He had me stop all antibiotics for one week, then put me on flagyl 250 mg 3 times per day plus the high dose amoxy with probinecid.

I did that for 30 days. Then, just the flagyl as above for 30 more days. He also treated me for bart during the second 30 days. Levaquin 500 mg once per day.

So, in 2 months, I was done with lyme treatment and bart treatment.

I need to say that my doc wanted me on flagyl and zith. But, I am unable to take zith or biaxin, so the flagyl had to be combined with the amoxy.

That's how my Burrascano doc did it for me.

In a couple of months, it will be 5 years since I completed my lyme treatment (including bart and babs) and I am still symptom-free, enjoying my life--the same life I had before lyme disease.

I do nothing to maintain my cure/remission.

I have had epidural injections of steroids and been under 2 years of severe stress since compeleting treatment, and I still have not relapsed. So, I consider myself cured.

I also got bitten again with a bulls eye rash in late August. Same Burrascano doc put me on combination antibiotics for that bite--treated me for lyme, babs, and bart. I was on meds for 30 days, had a herx at about day 3-4, and that was the end of the treatment. I am fine. Never had any symptoms from that bite. I got to the doc within a week of the bite.

I give all the credit to the Burrascano protocol. It has gotten me and a number of my friends well (meaning cured).

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canefan17
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Condor,

Wow that's some high flagyl dosing.

My Doc mentioned something about "the LLMD in Florida uses insanely high doses."

haha


I take 500mg/day and my doc says that's enough.

I would like to make a 2 week run at 750mg and maybe even 1000mg just to make sure.

But my doc knows more about this stuff than me.

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migs
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quote:
Originally posted by WildCondor:
For cysts...Flagyl...at first it was for 3 months straight at 500 mg 4x per day, then pulsed 4 days on 3 days off for 2 weeks on 2 weeks off. The pulsed doses were 750 mg Flagyl 4x per day. It worked awesome! All of it combined with other antibiotics.

That is 3000mg of Flagyl daily!? Orally I presume...?

Holy cow...did you get symptoms of headache on the 2 weeks off? I can't seem to stay off the stuff for more than a few days and I get a headache til I start again.

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seekhelp
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WildCondor is made of titanium!

quote:
Originally posted by migs:
quote:
Originally posted by WildCondor:
For cysts...Flagyl...at first it was for 3 months straight at 500 mg 4x per day, then pulsed 4 days on 3 days off for 2 weeks on 2 weeks off. The pulsed doses were 750 mg Flagyl 4x per day. It worked awesome! All of it combined with other antibiotics.

That is 3000mg of Flagyl daily!? Orally I presume...?

Holy cow...did you get symptoms of headache on the 2 weeks off? I can't seem to stay off the stuff for more than a few days and I get a headache til I start again.


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JOLA
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Wild Condor: I was recently put on flagyl along

mino/mepron/diflucan but

the flagyl was a no go.

definitely an alergic reaction-not a herx so now

I'm taking GSE. Expelling awful things. Is it

the GSE?

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WildCondor
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It's actually standard dosing. The 500 mg 4x per day is the normal Flagyl dose. When I was on 750 mg Flagyl ER 4x per day it was 4 days on 3 days off pulsed 2 weeks on 2 weeks off.

I was on other stuff with this like Bicillin, Biaxin, Rocephin, etc plus HBOT.

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CD57
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The problem is finding a doc who will treat like this. Not many will. My won't. Why can't we get Dr B back?

I do 500x2 of Flagyl on my on days -- maybe I'll try jacking it up but it makes me so depressed its awful.

WC, how much do you credit HBOT for helping you? How could you distinguish it from the meds?

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MariaA
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CD57- have you been on Tindamax? I just asked LLMD to try me out on it, but I havne't read much about it and didn't have a chance to really talk to the LLMD about it in depth. I have a lot of joint pain problems when I'm on Flagyl but I have made progress on it, so I feel like it's important. However, I'd like to try other alternatives in case they're more effective. My rationale on the Tindamax is that it supposedly works on cystic forms in the brain- I think I got that info from the Lymemd blog- but I haven't heard much else about what is known about it. I have read here that it's easier to tolerate - maybe that's something you may want to consider for various reasons?

--------------------
Symptom Free!!! Thank you all!!!!

Find me at Lymefriends, I post under the same name.
diet: http://lymefriends.ning.com/group/healthylowcarbrecipes
Homemade Probiotics thread
Herbal Links Thread

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WildCondor
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Hey!

The HBOT made all the antibiotics work better and made my protocol more powerful overall.

I could tell the HBOT was working because I had breaks from it for months at a time and when I would start it up again, it was like BAM!! Herx time! Strong stuff, and I would do it all over again!

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migs
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TF - I forgot to ask...you were on Amoxicillin for 2 years and then were cured with 2 months of Flagyl and Amoxicillin.

What dose was the Amoxicillin the 2nd time? Also, did you start the Flagyl before the Amoxicillin...to prevent any cyst formation?

5 years to me spells cure.

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