posted
Hi jy, All the time. My hands,fingers, feet, and legs. It's been going on for months and months. Dr is treating me for Lyme, bar and babs. I feel like it is more from the co-infections rather than the lyme
Karen (:
Posts: 423 | From Virginia | Registered: Nov 2009
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janice victorov
Frequent Contributor (1K+ posts)
Member # 22937
posted
Karen, does the numbness impair your ability to work? So far it's right foot.
Have the meds helped? Janice
-------------------- jkv44 Posts: 1247 | From virginia | Registered: Oct 2009
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posted
For me it was more like a disconnection from my limbs, rather than an actual numbness. Same thing but different "sensory" routing. Treating bart cleared this up, specifically Rifampin.
Posts: 501 | From Cleveland Ohio | Registered: Apr 2009
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posted
Heay janice, Yes unfortuantly it has gotten worse--I think because I took so long to get treated (I just saw this post but I left you a message on your other post) .
I have had to cut back at work to only 3 days (but Im still thankful to at least beable to work 3 days-some people cant).
It so hard at work as I walk and use my hands the ENTIRE time but I just try to forge through as I need some money to pay Dr and house--lol. After working 3 days in a row Im pretty wiped out for the next couple of days.
Mine has progressed to both feet, legs and fingers and arms. It orginally started out just on my left arm...thus making me think possible stroke. Plus I remember years ago having muscle pains in my calves.
It has gotten worse but I am actually for the first time in a week having a good day so far---Praise the Lord and am even getting ready to surrreder the computer to my son and take a ride to my local drug store (to get ANOTHER rx) yepee (:
Take care, keep in touch and let me knwo if I can help
God Bless, Karen (:
P.S. I have actually had other symptoms get some better though..my balance is better...I no longer run into walls etc (SCAREY) and brain fog seems to be better.. I can actually sometimes get enough energy to fix a meal...it really seems to come and go but at least it "goes" alittle (:
Posts: 423 | From Virginia | Registered: Nov 2009
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Yes. It usually goes from numbness/tingling to that with pain to actual muscle impairment, MS like. It
can be very sneaky and I suspect a lot of
misdiagnosis of carpel tunnel etc. from the inflamed nerves. It can disappear with treatment.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Yes. It usually goes from numbness/tingling to that with pain to actual muscle impairment, MS like. It
can be very sneaky and I suspect a lot of
misdiagnosis of carpel tunnel etc. from the inflamed nerves. It can disappear with treatment.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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karenl
Frequent Contributor (1K+ posts)
Member # 17753
posted
My vibrating stopped after 4 days on minocyclin, unfortunately I did not tolerate it.
Also tipping over the left leg,running into doorframes, swallowing problems and hair loss stopped. Was already better on flagyl. I am sure it was the " Fry " protozoan. ( There is a blood test available).
Posts: 1834 | From US | Registered: Oct 2008
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Mine seemed to start by my hips locking up if I exerted too much and then my legs wouldn't work. Feet were alway numb and tingly and I always had foot drop. All of it was horrible.
They (the ducks) kept thinking I had MS.
Stick with a good LLMD and treat longterm.
I am finally back to work after 5 years of treatment and 17 months out of work.
I don't have the numbness & tingling any more.
-------------------- Margaret Posts: 103 | From CT | Registered: Feb 2007
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janice victorov
Frequent Contributor (1K+ posts)
Member # 22937
posted
Margaret, thanks for all your help and encouragement. I really needed to hear that especially today as I'm trying to find a new LLMD who is more aggressive and doesn't charge me for everything.
-------------------- jkv44 Posts: 1247 | From virginia | Registered: Oct 2009
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BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
Yes, it was my first Lyme symptom
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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