littlebit27
Frequent Contributor (1K+ posts)
Member # 24477
posted
I'm going to get my blood drawn on Monday for the Igenex tests. I was on doxy for one month and have been off for 16 days now. I really want a positive result so I can show my cynical RN mother but I'm so nervous.
I'm also nervous about spending $470 and it be negative.
Has anyone done the antibiotic test, and did it work? When I had my first WB through a mainstream lab I only have 41 positive.
I'm doing the IgG and IgM WB and babesia, and bartonella. I'm pretty sure I at least have bartonella because of the symptoms I am experiencing.
And how long does it usually take to get the results back. I'm getting the blood drawn on Monday and then going straight to fedex from the docs office and mailing it. So when should I expect the results? And who do I contact for the results Igenex or my LLMD? And do they get mailed to me at all or do I need to specifically ask for that and who do I ask, Igenex or LLMD?
Sorry for all the questions I am just extremely nervous.
I can't wait to get back on abx because I'm getting new symptoms and old symptoms showing up everyday. Some had disappeared on the abx.
posted
You will gat results in 2-3 Weeks they send them to your DR. Smart sending them in by your self my LLMD charged me 2000$ for the same tests you are sending.
Posts: 482 | From Nebraska | Registered: Feb 2010
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kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
$2000?? You've got to be kidding me? That is ridiculous!!
Good luck littlebit! I know how you feel about cynical people. I just prayed that if my daughter really did have lyme that it would come back CDC positive.
I knew that some people in my life would not believe it if it didn't come back totally positive and I would have to deal with it.
Fortunately for us(whoo hooo lucky us..lol) it did come back CDC positive.
Christie
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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littlebit27
Frequent Contributor (1K+ posts)
Member # 24477
posted
My LLMD insisted I do it myself. He wanted me to go to a doctor and lab my insurance would cover.
I can't believe your LLMD charged you that much. That is ridiculous. Those are the doctors that are out to make money that make other's look back and make us look crazy!
sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
Lyme Disease is a "clinical" diagnosis! Everyone needs to stop being so obsessed over the test! It only serves to drive you nuts.
The most important thing is getting to a LLMD and getting the proper treatment.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
You will have to go to doc who drew the blood for the results.
They will fax them to them after they have
confirmation that they are yours and it is the doc calling.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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littlebit27
Frequent Contributor (1K+ posts)
Member # 24477
posted
Thank you for all the information. I guess I'll give it 14 days or so and call the LLMD's office and see what happens.
But has anyone tried the antibiotic test, does it work.
I am obsessed over blood results. i would love to have a positive to show my mother and anyone who doesn't believe me. I would love to have proof myself so I'm not being treated when it is not needed. I would love to have proof so that I can be sure it is Lyme and not some other horrible disease or death sentence.
I know it may not be possible but I want to up my chances wherever I can. I do want proof and I know it might not come but I can hope and pray it does.
seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Unfortunately, most regular/mainstream people will give little to no credit for an Igenex positive anyway. They say the lab puts out endless positive tests so I wouldn't worry so much about impressing the non-believers.
Second, Lyme IS a horrible disease.
I wish you the best.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Everyone is different littlebit, but it helped me.
And it was colloidal silver I used to get it.
So hopefully you will get a better response.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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posted
Like you, I am obsessed with test results. Mine was IGeneX positive, but CDC negative.
I want to get a CDC positive, or I won't completely believe it. My son doubts the test results, and that doesn't help my own skepticism.
On another note, have you done any reading on the various mycoplasma infections? Sounds like they have some of the same symptoms as Bb and co-infections.
I think a lot of people who don't truly have Lyme get well on the Lyme protocol of long-term antibiotics because it's killing different bacteria (such as mycoplasma). In fact, the mycoplasma or c pneumoniae protocol is nearly the same as Lyme.
The bottom line is that we are sick, based on many symptoms, but much of the time outwardly we look "fine," so few people believe it.
If you saw me working in the yard for a couple hours (and didn't get close enough to see my bright red, flushed, feverish face with spreading rash), you might think I was in perfect health. But, come into my house later in the evening or the next day when I am near death, and you'll see a completely different person.
Maradona, get a different doctor!!! This is why we should be posting right on this forum a list of good bad LLMD doctors. Posting the fees, too. Those who are out to make a buck on the suffering of the patient need to be identified.
Posts: 277 | From Pennsylvania | Registered: Apr 2010
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
Why is it so hard for ppl to accept a clinical diagnosis for other illnesses, such as a sinus infection, depression, and many others; yet when it comes to LD which truly is a clinical diagnosis, ppl freak out.
Not that I didn't feel the same in the beginning. Wanted a pos test more than anything. Took one year of treatment to get an IGM CDC postive. Still have no IGG positive bands after 2 years of treatment.
Don't expend too much energy on worrying about the test. LD is indeed a clinical diagnosis, no matter how much you wish for it to be different.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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littlebit27
Frequent Contributor (1K+ posts)
Member # 24477
posted
I understand it is a clinical diagnosis, I get it, but it doesn't make me want proof any less. I can tell myself all the time, symptoms, symptoms, symptoms but I was proof.
I think a sinus infection and depression are a bit different. The symptoms that they have are not specific to hundreds of other illnesses. I could have Lyme or MS or ALS or Fibromyalgia, or RA. And really there isn't much proof for any of those either. We've ruled out stuff yet, but how can you know you've completely ruled it out when there's no proof either way.
posted
Everyone here probably wants to know exactly what they have, so I can understand wanting positive tests.
As for Igenex, it is certainly possible your WB will come back positive. I had a WB through sunrise, no bands positive, 4 weeks doxy, retested through Igenex WB, and it came back Igenex IGM positive (although not CDC positive).
Thing is though, it didn't really matter. My doc would have treated regardless. And several positive co-infection tests from local labs really was all the proof I needed for having tick borne illnesses.
Only other tests I can suggest is (if you haven't had them already), are viral things + spotted fever, and ehrlichia. You can get those through local labs that your insurance will pay for.
Posts: 584 | From NY | Registered: Feb 2009
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littlebit27
Frequent Contributor (1K+ posts)
Member # 24477
posted
I have ehrlichia, tested positive, but for a past infection...so I know I got bit. Was also tested for spotted fever-negative. That is why I only wanted the babs and bart tests through the Igenex because I didn't need the other ones.
I would just like to see something so I know I'm not taking all these abx and other pills for nothing ya know. They charged my card last night so we shall see. I hate waiting!
posted
A positive ehrlichia is enough to begin treatment with, according to my ILADS doc. Even though a past infection, it can possibly cause some chronic problems, like Lyme and friends.
But it is easier to treat than other co-infections, so a couple of months of Doxy should knock it out.
My own results were somewhat similar. I started off with a positive ehrlichia (past infection)... then went to ILADS doc, tested for other things (positive spotted fever/typhus -- past infection), then after 4 weeks of Doxy, positive Igenex IGM WB, then after several months more, positive for two species of Bartonella. So you may not test positive for everything right away.
But sickly tick exposure + Lyme symptoms should probably be treated regardless of the WB, at least in my opinion.
Posts: 584 | From NY | Registered: Feb 2009
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