i would like to know with wich treatment you had steady improvement when you treat against the 3 bugs?!
I would like to treat Borrelia, Bartonella and Babesia at once but dont know which protocol would be good?!
3 Months ago i started with Levaquin+BactrimDS+Minocycline+Artemisin
Now I'm on Rifampin+BactrimDS+Artemisin.
I dont know if the Bactrim + Artemisin is enough to treat Babs?! 1-2 weeks before I started the 3 months treatment appeared a new symptom: vivid dreams (rarely violent). i dream every night and many people here say its babesia. since that symptom appeared, nothing really changes.. i am maybe a little bit clearer in my head the on way, but the other way is that there are new symptoms.
i dont think that my LLMD will give me mepron because its very expensive and my blood tests were negative for babs (bart and borrelia pos)
so i would like to try clindamycin and quinin.. but with which meds i could combinate this 2?? rifampin? artemisin? azi???
thx 4 your great help here Posts: 371 | From velocity of light | Registered: Sep 2009
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posted
I just asked this question a couple of weeks ago if you search ...i think the title was " can you treat Lyme Babs and Bart all at the same time"......or if you go on my name look at recent posts for me then there was responses on there if that would help.......
-------------------- Oct 09 Positive CDC Western Blot Jan 10 Positive Babesia Duncani Jan 10 Cd57 28 Mar 10 EBV, IgM, IgG HHV-6 IgG Posts: 739 | From NC | Registered: Oct 2009
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I'm currently on Minocycline 100mg and Zithromax 600mg. I'm adding in Plaquenil 200mg tomorrow. And, possibly Mepron or Bactrim DS in a few weeks.
I am already feeling better, so it seems like a good combination thus far.
I must add that I'm pulsing Minocycline and Zithromax every other day from each other. But, I will be taking Plaquenil daily (2x daily in a week).
I'm trying Artemisinin tonight... I think I might be in for a long ride!!!
Posts: 829 | From MD | Registered: Dec 2009
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
Derek - thanks for the cliff notes version!
I don't know how you can take it, though. When I was on abx - they made me too ill to continue... I wasn't even taking 1/2 the stuff you mentioned.
Just taking the artemesia is making me ill... I'm also taking Resveratrol, noni, crytoplepsis, quina & some other stuff. I found artemesia to be very strong.
Don't mean to divert the thread. I'm just saying I don't know how people tolerate all of those drugs at one time.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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springshowers
Frequent Contributor (1K+ posts)
Member # 19863
posted
Sparkle
I just posted a story on the rife thread that talks about just exactly your question.
I think there is a group of people how Can Not Tolerate meds and dosages and mulitple meds and supplements etc because they get so much worse and herx so hard.
That group I feel I used to be in. I no longer am. SO it can change.
What it took for me was to go the IV abx route and to do a lot of detox modalities and get things MOVING> More than how much I did I think finding the right things that got things MOVING was key for me.
Also there seems to be something in the gut or something that makes Oral abx so difficult. But that might not be true or what it is because after months of IV abx and detox I was then put on orals again and I was afraid. But it is like taking candy now. The worst of the worst meds for me that I would not even be able to take a sliver of I can take and feel no response at all.
The Loads are down. The loads of bugs and the loads or neurotoxins and things are moving along.
I was stuck for years and years with my doctor rotating meds and trying different things. I even did add a lot of detox supports that did not help that much. But I think I was so loaded that I was herxing from the detox stuff too.
When I did the full integrative IV approach I was able to tolerate the abx via the IV and then all the other supports and detox things just started to work.
I can not treat this disease. I am so glad about it. I am able to put in supplements and combine abx and do detox and feel like I think I should be feeling> I respond to them appropriately meaning I do not just feel sicker or worse on EVERYTHING>
I think there is a group of people on this site and others who have Lyme and co infections who are feeling stuck and frustrated and I used to be one of them.
I no longer am. SO I can change. It is the state of our bodies and we get so off balance with the amounts of disease and toxins and then the organs also getting stuck and not working correctly.
I hope this helps some people in just thinking about the state of their bodies and why they may not be responding or having such negative responses and or not tolerating treatments.
IT Can Change!!!
Posts: 2747 | From Unites States Of America | Registered: Apr 2009
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MariaA
Frequent Contributor (1K+ posts)
Member # 9128
posted
I do 'fine' with oral antibiotics as far as liver enzymes, kidney function, etc- but I do feel like I have an exaggerated immune response every single time I start a new antibiotic or change my protocol. Considering how long I've been treating (since spring 08 this time around) it seems like something is very wrong there.
My approach to dealing with that is to go to acupuncture when I can.
I recently found a community acupuncture place that is only $15/session (community acupuncture is sliding scale, usually $15-25/sesssion, and you get treated in a group setting where everyone is in recliner chairs in one room, getting just their arms and legs needled- it's still very effective in terms of system-wide effects, but it's very inexpensive to administer such a clinic compared to one with individual rooms).
The place I found was in the middle of no-where in a rural county that barely has a city at all- so community acupuncture is starting to crop up in all kinds of areas. Most cities probably have a community acupuncture place at this point- it's worth Googling for it.
This fall I was having my exaggerated immune response problem while on my meds, and was having a lot of brainfog and other issues if I stayed on the meds consistently, so I went to a lot of acupuncture for about 2 months.
We focused on, basically, immune system regulation sort of stuff (they don't call it that but they'll 'translate' if you tell them that's what you want to focus on). I think it was very helpful in correcting my difficulties with the meds I was taking at the time.
-------------------- Symptom Free!!! Thank you all!!!!
SUCCESS STORIES -
Posts: 48021 | From Tree House | Registered: Jul 2007
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
In my case, I wasn't herxing alot. I just became very ill from the abx side effects. I didn't feel any better - just worse from side effects.
I don't think I was on the correct abx for what my main issues were. My doctor didn't suspect babesia since I didn't have any typical symptoms. I think this is what was missing - babesia treatment.
I probably took the Bb treatment as far as it was going. I'm just a bit skeptical of mepron & malerone at this point. From what one unmentionable doctor says - malerone doesn't really work & you have to take mega doses of mepron... Even then, it can relapse in 18 months.
Kind of alot to spend to not know whether babs is going to relapse or not. There has to be some alternatives. Out of all the drugs & supplements in the world - there has to be something better than this.
I figured I'd try some herbs & I feel pretty awful - maybe it's a good sign... I don't know. I don't know how I could tolerate any further abx at this point since I'm feeling pretty bad just from the herbs.
I have tried accupuncture. I went to a local school when I was in NJ. It didn't help me much. My experience with accupuncture is up & down. Sometimes it really helps & other times it doesn't.
The only time it really helped me was when I saw an old doctor in Chinatown, NYC. He really knew what he was doing. I'm a bit suspect of younger people doing it. It takes a long time to learn to do it properly.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
Springshowers - What is "the full integrative IV approach"...?
Did you have a PICC or did you get IVs? Which things did you get via IV?
I was going to the Fibromyalgia & Fatigue Center & I got alot of IVs but they didn't help... Not abx, just their typical protocol. It was quite expensive.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
djf2005 wrote: Mepron+Zithromax+Plaquenil+Mino or Doxy
Doxy reduces mepron and malarone effectiveness by as much as 40% according to the manufacturer. I'm not positive but I think it is the same with mino.
I would not want to hit all 3 at the same time. We treat borrelia and babesia OR borrelia and bartonella but not all 3 at the same time. While treating bart and borrelia we kept babs at bay with low dose malarone.
I found mepron to be very helpful. It helped my symptoms a great deal but didn't get rid of the infection. I'm not sure what will at this point since I've had it for 5 decades and I think many of my red blood cells are affected.
edited to add: Levaquin helped with bart and doxy seems to help me with bart. I had major tissue changes with levaquin but I still have bart.
That said, I've been infected for 50 years and by the time I got treatment I was very very sick so I think it may take a very long time for me.
posted
Yeah, 2 of my favorite posters stated they had great success with Bactrim DS and pulsing Artemisinin. For a duration ranging between 4-8 months.
I'm excited to get the headache from that one. Not saying it causes a headache for everyone, but I got a headache from it when I tried it back in September 09. I just didn't know I was using it to treat Babesia or Bartonella...
I had a sinus infection. Hmmph. =\
Posts: 829 | From MD | Registered: Dec 2009
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