The ones for the thighs. I have heard with my type of dysautonomia, that the blood can stay in the lower portion of my body and not move upwards. Supposedly shapewear or compression stockings help some of these people feel better overall.
I can't visually see blood pooling down there, but I always feel the need to massage my thighs. They just feel stagnant, like nothing is moving in that area. Sometimes I'll want to move around just to get rid of the stagnant feeling there.
I was thinking these might help. They are supposed to help cellulite. They even claim to help energy. But based on hearing this kind of product recommended by MD's for dysautonomia, I am inclined to believe some of these claims that sound crazy that the companies are making.
I am having a hard time pulling the trigger and spending $40 though. But I really do feel it'll help my stupid legs. Thoughts?
Posts: 4590 | From Midwest | Registered: Jun 2008
| IP: Logged |
posted
My doctor recommended compression stockings and they have helped. We just purchase them from the grocery store.
My doctor recommended the thigh high kind, but I have only been able to find knee high. Wearing these and drinking a tiny bit of sea salt in my water has helped, even though I can tell something is still wrong.
I trust that someday (maybe even very soon) that I will be healed on this and not have to wear the stockings.
Posts: 515 | From In His Loving Care | Registered: Apr 2009
| IP: Logged |
Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
I thought these would be nice because I can just tell most of my problems are in the thigh area, and I think having the compression all the way down to the calves would annoy me.
So I want to get the ones that are like biking shorts.
I have seen the stockings at large pharmacies, but they always looked too intense (too tight) when I felt them, so I figure I'll start with something with more of a medium firmness.
The only thing I'm worried about with the shorts is that it'll annoy me in the waist. Hmmmm...we'll see. I am 90% sure I'm just gonna order them.
Trying to decide if I should get the ones that are almost $70 that go right below the knee, or the ones that are almost $40 that go mid-thigh. Hmmmmm.
Thanks for responding.
Posts: 4590 | From Midwest | Registered: Jun 2008
| IP: Logged |
TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
I have the same kind of dysautonomia as you do hoos. My feet and the bottom of my legs turn purple or purple splotchy at times because the blood pools and doesn't get pushed back up to the heart like it's supposed to. Even sitting on the couch, my feet are purple.
My doctor prescribed jobst stockings. They were covered by insurance. They have to be medically fitted. Those suckers are very hard to get on. They are made of fairly stiff material though, probably stiffer than what you are looking at. I really hated them because they were very uncomfortable and as soon as I took them off I could barely stand because it did something to my body's ability to deal with the problem on it's own.
The ones that you are thinking of trying might be a lot better if they aren't as stiff.
You might want to check with your doctor about getting the ones for the thighs only because I think that might keep the blood in the bottom of the legs/feet which might not be so good. My understanding is that with the pooling syndrome, the sphincters don't push the blood back up so I would think you want something further down the leg. Feet and ankles would be good.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- In theory, my body might like this but the practicality is that I nearly suffocate in any fabric that is not 100% cotton - even on small areas of my body like an ankle brace.
So, for those considering this, if that also describes you, be sure before a big investment that you would be able to actually wear synthetic banding of large areas. Another way to work around that might be ordering it much larger so as to wear some sort of cotton clothing underneath. I do that with wrist braces at night and it helps - some.
But, even 95% cotton with just 5% lyrca anywhere near me and I nearly pass out, even if a cotton tee shirt is next to my skin. So, it seems not just the be the fabric content but also the breathability and heat factor. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
when i sit my feet get purple too.
i tried the compression stockings but my doc said with circulation problems you don't want to cut off the circulation so don't me to quit.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/