posted
The in vitro research at Hopkins last year showed success in killing both the spirochete, round body and biofilm form of Borrelia with a new combination of drugs. All of the drugs tested were FDA approved, so I am wondering if anyone has had experience with the group of drugs, specifically with Daptomycin. It is normally used for people with MRSA in a hospital setting. It is a strong drug with potentially nasty side effects. I've not seen anyone doing clinical trials with it, and am wondering if anyone has used it for lyme.
Posts: 3 | From NC | Registered: May 2016
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desertwind
Frequent Contributor (1K+ posts)
Member # 25256
posted
Dr.H. is using Dap for persistent lyme. I took Dap. + but had no effect on my rate of relapse. If you go on his website he talks about results of his in house study on Dap for patients with persistent lyme.
Posts: 1671 | From Tick Infested New Jersey | Registered: Apr 2010
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posted
I've been on Dr. H's Dapsone protocol for several months and have had good results. First thing that's actually worked in the 6 years I've been treating this.
-------------------- I'm not a doctor, I just play one on google. Posts: 1 | From NEPA | Registered: May 2016
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Lymedin2010
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cottonbrain
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Member # 13769
posted
enleveb, can you describe how long it took for improvements, and which symptoms improved? any side effects?
I have been in treatment for eight years and my LLMD recently rx'd this.
anyone else?
Would love to know about side effects too.
Posts: 1173 | From USA | Registered: Nov 2007
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
Daptomycin is an IV medication. Also known as Cubicin. Is used for life threatening bacterial infections.
Dapsone (used by Dr.H) is an oral med that is known for its use for treating leprosy.
I've been told that it is nearly impossible to get Daptomycin (Cubicin) without an Infectious Disease doc prescribing it. They want to protect its use.
A few people here have used the Daptomycin IV but stopped following up on their progress. As far as we could tell, they hexed but no one shared any progress made.
One more thought, the persister abx combo study you are referring to is interesting but one must remember that you want a combo to cover all forms of Lyme ideally.
Posts: 5237 | From here | Registered: Nov 2007
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