posted
Anyone else experience this when on mino? It's not unbearable but just happens off/on throughout the day. I am supposed to take 2 capsules (100mg each) twice per day but it made me so dizzy I cut back to one/day to get used to it.
I'm hoping my body will adjust and I will be less dizzy and can then take the full dose. Has anyone else had this problem and if so how long did it take to resolve?
Also I am on day 6 of taking mino and starting to experience a herx. One weird thing is I woke up this a.m. with a bad pain in my left heel. I've never had that before. Isn't that a symptom of bart?
-------------------- TxLymie IgG-Negative IgM - Postive bands 23 and 41
Other dx: 2000: Endometriosis 2009: Chronic EBV, Mycoplasma infection, HHV6, H.pylori Posts: 297 | From Houston | Registered: Jun 2009
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posted
I have been on and off of Mino for almost 3 weeks now. I am not getting the dizziness
anymore, so it might go away for you like it did for me. I do feel like my cns is going
crazy. I feel this buzzing feeling throughout my body. I am almost getting strange head sensations. I really hope I see some good
improvement with this drug. We should keep notes for eachother since we are both on it! Good Luck and feel better soon, Marcie
Posts: 323 | From Michigan | Registered: Sep 2006
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ping
Frequent Contributor (1K+ posts)
Member # 6974
posted
Yes, dizziness is the "trademark" of mino and it usually means it's "hitting the spot". I was on it for over 3 years and it sure did the trick.
Did I read your dosage info right? Are you rx'd a total of 400 mg. per day? If so...lucky, lucky, lucky! 200 mg. will help neuro sx's, but won't get rid of them. 400 mg., you have a good chance of kicking them.
As you said, you will have to work up to the 400. I used to increase the doses at night, before bed. (Bed spin, big time!) Couldn't increase during the day because of work, driving, etc.
Oh, you might already know, but just in case, don't take the mino anywhere close to a calcium or magnesium substance. Need to take the mino AT LEAST 2 hours before or 6 hours after any such foods or supps.
Best to you!
PS - Heel pain is also a sx of Lyme, according to some assessment lists I've seen... It's all so convoluted, with Co-infects, etc.
-------------------- ping "We are more than containers for Lyme" Posts: 1302 | From Back in TX again | Registered: Mar 2005
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Mino can be ototoxic, affecting the ears and balance system in a variety of ways. Vertigo is the most common of those. That is why liver support is essential before and during.
But, as lyme is also often toxic to the ears, lyme still has to be treated. Liver support can help but some people just can't take mino, zith or biaxin due to vestibular reactions. Again, first, be sure liver support is the very best it can be - not pushing with "detox" events but daily, on-going support supplements.
Warm baths in epson salts, sweating in low-heat, lymph movement with gentle bouncing or walking, massage . . . all these also are important but just don't force too much at once.
In the thread below are abstracts about mino and vestibular reactions - and what can help. Some have to stop it but others seem to manage with the suggested support methods to protect the ears. Milk Thistle, Magnesium, NAC and B-6 are the major points.
For some reason, there are some people who can take this with absolutely no problems. Others can get seriously turned upside down with it. No one has ever surveyed those who do so well (with no vestibular effects) to see if there is a special key to their tolerance. I'd love to know more as this is one I can't take at all.
Specific for LYME patients - lots of details about ears and what can help:
3/4 of the way down page one, there are lots of LIVER LINKS:
Minocycline has been associated with central nervous system side effects, included lightheadedness, dizziness, or vertigo. . . vestibular reactions such as dizziness and vertigo. . . .
. . . Patients should be cautioned against driving or performing hazardous tasks requiring coordination and mental alertness until they know how the drug affects them. . . . -
[ 03-19-2010, 02:56 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
I tried mino in the fall of last year. It gave me the dizziness, increase in anxiety, weakness, etc., but it did begin to take away my rash.
I lost more weight with it which was something I couldn't afford to do, so I was switched to doxy. I have not had the same issues with the doxy. Interestingly, my son has no problem with that or Zitro, but I had issues from the first dose of each.
I have been able to handle Biaxin and doxy though for 4 months. We are each our own petri dish and will react differently to things. Women seem to have more of a problem with this drug then men since a large percentage of them need to discontinue the drug for these side effects.
It could be that the smaller molecular structure of the mino was responsible for a higher kill rate, I don't know. Or maybe it was hitting Bart harder. I just knew that I needed to get off of it at that point. If my LLMD suggests it in the future, I may revisit it.
posted
Funny I found this post...but really not so funny. My daughter called me today from school and said she was having alot of dizziness and head pressure. The head pressure is an old symptom, but the dizziness is totally new.
My daughter is only on 50mg of Mino, but is also taking Zithro, Zoloft and Magnesium.
She takes the zoloft in the morning because it gives her insomnia, but takes everything else at night before bed. Why can't she take the Mino and magnesium at the same time?
Doxy didn't seem to do it for her. While she was on the Doxy her numbers for lyme and bart went way up so they switched her to all the other medications.
She was also having horrible anxiety.
Posts: 107 | From New Jersey | Registered: Nov 2009
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Magnesium has binding properties, and therefore can render antibiotics much less effective.
Ping's advice is the standard recommendation for avoiding this conflict.
Posts: 829 | From MD | Registered: Dec 2009
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IckyTicky
Frequent Contributor (1K+ posts)
Member # 21466
posted
I just started Minocycline 6 days ago.. 100 mg twice a day.
Boy, does it hit the CNS! I have dizzy spells, bed spinning/falling sensation, trouble walking straight (been running into more walls lately!) but I can feel it "hitting" the bad guys.
My teenager also just started mino, although only 50mg twice a day. She told me she got up to turn her fan on and "zig zagged" all over the room until she got to the switch lol.
I'm liking the Mino a lot better than Doxy. But having ear issues for sure. Blurry vision this morning as well, but that cleared up.
My "herx" hasn't been too bad yet besides what I've already said. Usually my herx involves muscle and joint pain and so far this has not occurred for me or for my daughter. More "humming" in the body though.
-------------------- IGM: 18+, 23+, 30+, 31+++, 34+, 39IND, 41++, 58+++, 66+, 83-93IND IGG: 31+, 39IND, 41+ Also positive for Mycoplasma Pneumoniae and RMSF. Whole family of 5 dx with Lyme. Posts: 1014 | From Texas | Registered: Jul 2009
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