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» LymeNet Flash » Questions and Discussion » Medical Questions » Frustration on all ends

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Author Topic: Frustration on all ends
lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561

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Just came back from my LLMD appt. On iv rocephin since January, test came back negative

again. Also on iv zithro and doxy. I've been positive for 9 years, and in my warped mind,it's

confirmation that I have lyme and bart. (both always positive). My doc checked again after negative test, but doing iv since Jan and

negative again. She believes it's going to a different level and not doing enough tindimax,

maybe a different infection. Did tindimax in Feb for 2/3 weeks with nothing. I thought 3 mos on

iv again would bring back the antibodies. I was off antibiotics from April till December (my

fault, thought I was "cured"). My mind feels blank, joint pain, heart stuff...Is there no

end? Anything like this happen to anyone? Thanks and wishing you good health. [bonk]

--------------------
He took u to it, He'll you through

Posts: 2837 | From NE. | Registered: Apr 2007  |  IP: Logged | Report this post to a Moderator
sixgoofykids
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My LLMD thought it was never necessary to run an additional Lyme test. He told me that all a test proves is exposure. After exposure is proven, then treatment is guided on symptoms alone.

Same with coinfections, look at symptoms.

--------------------
sixgoofykids.blogspot.com

Posts: 13449 | From Ohio | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
   

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