posted
I've searched on here and noticed that many are sensitive to fluorescent lights..especially in big chain stores. When i'm having good days this symptom still persists (some days worse than others).
I was thinking about getting lavender/rose tinted prescription glasses since i'm due for an eye exam anyway. I don't want to pay extra though if they aren't of much help. I see NOIR glasses recommended in other threads but i'd rather pay someone to shop for me than be caught with those hideous things on.
I think some of it can be attributed to /worsened on the minocycline but I know its a lyme thing since it happened before tx and during abx breaks.
Thanks for any input
Posts: 42 | From Niger | Registered: Oct 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Yes, minocycline can affect the inner ear (vestibular system) which has an enormous amount to do with our vision.
You might hold off on expense lenses until after lyme treatment - and get some polarized sunglasses in the meantime.
Be sure your liver support is top notch as that can help protect ears during mino treatment. Milk Thistle is the basic liver support.
Irlen Institute, Colored Lenses, Colored Overlays, Diagnosticians ...
The Irlen Method uses color overlays and filters to help people with autism, reading problems, light sensitivity, migraine headaches, dyslexia and head ...
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- It's late even in my time zone. My neighbor is snoring so loud it is breaking through my earplugs - and ear muffs, too. So, just strolling through.
After watching a cool video about Irlen lenses, came back to post a bit more. The lenses can be a big help but, really, it's really best to avoid fluorescent lights if you can. Shop at smaller independent stores if you can where, presumably, they don't have so many lights as to attract space ships from all known galaxies. You might also ask the store manager to consider turning them down. Many stores ARE just way too bright.
Energy-saving light bulbs could trigger migraines, say campaigners.
The Migraine Action Association says members have told them how fluorescent bulbs have led to attacks. . . .
. . . Last year the charity Epilepsy Action reported that a small number of people with the illness could have seizures triggered by low-energy bulbs. . . .
`` . . .But getting us to change out our incandescent light bulbs for some irritating fluorescent ones isn't going to save the world. All it's going to do is make us more agitated and jumpy and feeling like once we get home we haven't really left the office. . . .''
Vision: Natural Ways to Maintain Eye Health - By Jim English
Excerpt: . . .
A number of nutrients have been extensively studied for their ability to treat a wide variety of vision-related conditions by preventing the damage caused by free radical activity and by enhancing the delivery of blood and oxygen to the retina to help repair tissues . . . . -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- You can see here that problems with lights can be connected to inner ear stress (among other things, including lyme itself).
Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links - including HYPERACUSIS -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
"It's late even in my time zone. My neighbor is snoring so loud it is breaking through my earplugs - and ear muffs, too."
OH MY GOSH! Poor thing! That's awful!
And I don't know a thing that can stop it.
Others snoring kept me awake too many nights. Hope it gets fixed somehow?
And thanks for the links. This topic has always interested me.
BTW- I used the Glutathione several times and noticed my light sensitivity wasn't as bad. After seeing your connection to liver and lights.. now it makes sense.
posted
Yes, those Fluo. use to be the worst for me.
I would always have to wear my polarized sun glasses in the stores or else I would start to get flashing lights in my peripherial vision.
It has gotten much better with treatment. In fact I can go into stores without the sun glasses!
It is the flicker rate of Fluor, lights that is a problem.
People with sezuire disorders also have a problem with this.
When Lyme inflam.'s things in the eye, optic nerve and brain pathways it causes the brain to become more sensitive to these lights and the flicker rate.
Problem with computer moniters as well. Keep the refresh rate as high as possible as the higher the refresh rate the less likely the brain can percieve it. Anti-glare screens are a must!
Posts: 376 | From New Jersey | Registered: Jun 2009
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MichaelTampa
Frequent Contributor (1K+ posts)
Member # 24868
posted
I have problems with the fluorescent lights too. Just about to begin treatment and certainly hope it helps.
About a year ago I got irlen glasses, and they did help a little, but, really, just a little. So, if you are looking for every little bit of help, maybe try it, but they are costly ($400 for lenses, plus then frames, $200 for testing, is what I paid), so would wonder if you could do better things for your money, or look for just cheap glasses for a color that feels better for you.
I do think some of the problem is the blinking, because sometimes camera flashes or computer lights blinking on and off at a certain rate have put me in a state of rage, ready to kill somebody (for a second, before I realized that probably wasn't the thing to do).
I also have severe problems with wireless devices (cellphones, networks, ...). Is this related ... anyone else with fluorescent light issues that also have wireless issues? How has treatment helped? What particular coinfection do you think?
Michael
Posts: 1927 | From se usa | Registered: Mar 2010
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posted
Michael; That is so very common for people with sezuire d/o's and migraines to be ultra sensitive to refresh rates and camera flashes etc..
Those of us with Neuro. lyme seem to fall into the same category - probably due to the inflammation and disruption in blood flow which can also effect the electrical impulses in the brain - especially the visual cortex area(which is why Topamax worked/s so well for me).
Fluor. lighting, flickering of sun between trees, low refresh rate on computer moniters, can all disrupt the eletrical impulses in the brain and can cause a cascade of problems.
Same thing with those new energy effiecnt lights.
Prior to my current treatment with Biaxin I could not even look at a computer screen longer then a few minutes without getting chronic flashing lights in my perph. vision.
I could not go into stores without being triggered..My life was one big flashing light!
I have not been officially diagnosed with a co. but think I have Babs and recently added ART on a pulsing schedule along with the Biaxin.
No wireless issues for me. TG
Posts: 376 | From New Jersey | Registered: Jun 2009
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I think just talking an a cell phone (or long converstations to people in general) can cause sympathetic overstimulation.
All these things bother my CNS, but I think it's a case of overstimulation. I have it to a severe degree, and have trouble in department stores for any length of time. At first I wondered if it's really the lights, but after the neurologist shoved a strobe light in front of my face during a routine EEG, certain frequencies caused EXTREME agitation and caused my whole face to twitch as well. It was the same feeling as in the stores (but so much worse) and I yelled at the technician to turn the light off.
Somehow all this was interpreted as "normal". When things feel so obviously abnormal, you know your doctors interpretation is wrong.
I wear very dark glasses outside because the sun is now a stressor. They help a lot. It usually keeps my CNS from freaking out.
Posts: 967 | From A deserted island without internet access | Registered: Sep 2009
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posted
Michaeltampa, im not sure if its related. Before I was in treatment 2 years ago, my house phone used to really bother me..I thought I had a brain tumor or something. I havent had a problem with any other electronics.
I think its over stimulation on the CNS because on "worse days" driving causes symptoms. I think its all the cars/trees etc. going by at such a fast rate.
Thanks for the price estimate on the irlens lens. I read about them in an old post on here.
Posts: 42 | From Niger | Registered: Oct 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Most places that make eye glasses can offer a few tints on any glass eyeglasses you have. I have my reading glasses tinted blue. It may have cost me $20 or a bit more. It's not as scientific (or rather a full trial and error testing of all the range of colors as Irlen lenses) but if it does not help, you can also have the coating removed - or darkened even more.
Bottom line with me, though is that I can't even stand the glasses frames unless I am just sitting. If home alot, one might consider painting the wall with a no-VOC, eco-safe paint as this would be the time to paint so that it could air out. Even no-VOC paints knock me out, though. So be aware of that. --
Michael,
I also have severe problems with wireless devices (cellphones, networks. I even get seizures from incoming calls on cell phones or fancy network digital phone systems.
And, yes, that often goes along with lyme and the neurotoxicity and over excitability of the nerves when explosed to all the lyme toxins.
Magnesium, Fish oil and (for me, andrographis) help the most. Drugs that are toxic to the liver, even if sedating, can make things worse.
What you describe with camera flashes, etc., also sounds like part of what I deal with regarding seizures. I don't feel rage but seizure activity can cover a broad range.
Your ADRENAL support may be lacking and that can also create mood flares.
Certain meds may be contributing to the rage feelings (especially if they are hard on the liver).
And, besides lyme, Bartonella can also cause more problems with mood extremes.
I could go on and on but my hands just can't - nor my energy.
Bottom line: Do you have a good ILADS-educated LLMD? Have you read some of the books and articles posted above? That is where to start. Especially, read this Tinnitus thread - it relates to you in many ways:
Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links - including HYPERACUSIS -
Posts: 48021 | From Tree House | Registered: Jul 2007
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MichaelTampa
Frequent Contributor (1K+ posts)
Member # 24868
posted
Really appreciate everybody's thoughts here. Nice to be in a place where I'm not totally crazy. Yesterday was just starting to read "Healing Lyme" by Buhner, noticed the dedication was "for all those people whose doctors told them it was all in their heads", wondered if this was almost everyone with lyme...
Keebler--I am taking andrographis too, and notice it is a good one for me. I am taking as a combination formula, and am pondering getting it straight so the other herbs don't limit how much I get. Curious if you'd tell me how much of it you take.
Yes, my adrenals are in overwork mode. They are slowly improving, but still are underwater, so to speak.
I actually came to considering lyme from a PANDAS forum, which is an autoimmune disorder primarily in kids related to strep infection, but for some it is mycoplasma pneumonia. The symptom list of PANDAS has a lot of similarity to that of lyme with bartonella, and I have heard one lyme doc feels like 2/3 of their lyme patients have PANDAS as well. I actually have my first appointment with a well reputed ILADS MD on Monday next week, but by now from all the reading and test results, am convinced I have it with bartonella.
Thanks for all the information and the link. Anything in particular on the thread, it's pretty long with all the links, or do you think all good reading?
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