posted
If you look at my signature, it shows the other Lyme test I had. It showed 93, 23 and 41 positive on the IGM/IGG and I had a positive Elisa.
Ehrlichia [POSITIVE] IGG/IGM AB [H] 1.49 indexLyme AB interp. EIA [A] POSITIVE IGG P93 AB [PRESENT] IGG P41 AB [PRESENT] IGM P41 AB [PRESENT] IGM P23 AB [PRESENT] Lyme IGM WB interp. [A] [PRESENT]
I got my western blot back from the infectious disease doc, and only band 41 came back positive. She did a test on Ehrlichia again and now it is negative instead of postive like it was almost a month ago.
She was saying since the western blot came back with only one band (41) that I do not have lyme.... Despite my other tests showing OTHER bands.
Help?
Thanks.
ALSO My spinal tap results showed no lyme in my spinal fluid. It ruled out Syphillis (I am a virgin) and it ruled out other diseases. I dont have a dental disease, my teeth are good. (I just had a dental appointment last week).
Help?
-------------------- Stephanie, University Student.
Ehrlichia [POSITIVE] IGG/IGM AB [H] 1.49 indexLyme AB interp. EIA [A] POSITIVE IGG P93 AB [PRESENT] IGG P41 AB [PRESENT] IGM P41 AB [PRESENT] IGM P23 AB [PRESENT] Lyme IGM WB interp. [A] [PRESENT] Posts: 145 | From Idaho | Registered: Feb 2010
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
Lyme Disease is a "clinical" diagnosis. Test are used by LLMD's(lyme literate medical doctors) to back up that diagnosis.
Go to "seeking a doctor" section or to support group section and find a LLMD.
Your doctor obviously does not know how to make a clinical diagnosis and is relying on test alone for a diagnosis. Your doctor is a dummy!
Posts: 4035 | From Mississippi | Registered: Jul 2008
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posted
Do a search under "medical" for Band 41. Lots of info posted by Lymetoo. It's enough if you have symptoms... I did-treated with 4 months of doxy & glad I did!
Posts: 249 | From finger lakes, ny | Registered: Jul 2006
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
The antigen test is so variable, did you take antibiotics before testing? Did you go off
antibiotics before testing? What were the circumstances with previous test? Did it get
shipped out immediately or did it sit over the weekend and clot to the point of no return?
Check your dates on when you had it drawn to when it was processed. My daughters had a 6 day deficit.
How do you feel?
Have you done a Neuro eye test with your LLMD, that was a clincher for me?
What other tests were preformed?
There are so many possibles with Bb you will have to make up your own mind but know I would
not want you to be like I was on first test and then be me now 3 years later.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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posted
To be complete why not have the hematologist do a peripheral smear of your blood to look for Bartonella/BLO and Babesia. Your blood is not supposed to have either of these organisms or any others either.
When/where i.e. which state did you get your tick bite, Did you have rash?
Throwing out the +++ western blot because of another - test does not make sense if you are having symptoms of Lyme and coinfections.
All you need is tick bite or high risk for same, rash or western blot positive 1 time, and symptoms. See Dr B's symptom list.
Your Dr is definitely feeding your desire to deny eg desire to not have this nasty disease. That's all.
Don't deny, just get help eg LLMD.
Beachinit.
-------------------- Ideas not advice. Posts: 448 | From Downeast Maine | Registered: Jul 2009
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posted
I'll say it again.. Dump the Inf Disease "doctor."
============
VITAL INFORMATION ON BAND 41!!!!
From a seasoned poster:
The number of people exposed is in the millions. The reason you can't get treated is they have decided that only early disease merits diagnosis and treatment. The bacterium itself is the most bizarre human bacterial pathogen known, and is poorly understood.
They don't know how many people are carrying a permanent relapsing brain infection. you can't get diagnosis or treatment because they have to pretend it doesn't exist and use labels like 'post lyme' and 'CFS' etc. for those who manifest illness.
Look at what Steere did in his 1992 study which is the foundation for the CDC serodiagnostic standard. He and others often look back on this and refer to a 'normal' control, but in fact the control was taken from sick people...MS sufferers, CFS sufferers, in sum, conditions which could have been caused or complicated by late Bb infection. Moreover, he threw in 25 syphilitic patients which constituted 20% of the control. Hoever, syphilis itself has an annual US incidence of 3 per 100,000.
This statistical chicanery, which fudged the result at 41 kDa on Bb blot by many multiples, is significant, because syph serum will cross react at 41 kDa to Bb western blots. It allowed them to 'swift boat' the importance of the reaction to 41 kDa, which is the earliest and most consistent human ab response to Bb infection, being present in all stages as opposed to the rest of the proteins which are variably expressed according to stage, tissue type, even temperature.
Flagellin {41kDa} is necessary for Bb to survive under all conditions, and is constantly expressed, including in late CNS infection. Yet they chose to swift-boat this response.
Why? It's for political and economic reasons. telling the truth about diagnosis and treatment results in mass panic and probable economic collapse/political revolution. it's likely a bioweapon. North American disease is different from European disease...lack of CSF antibodies, for instance.
A much larger range of serum resistance to host species in wild{allows Bb to infect a much wider range of species, important in disease spread and maintenance in wild}. The CDC has found that Bb 31 goes intracellular in CNS cells.
Telling the truth threatens the careers and livelihoods of the very individuals who control this issue and who have actively lied and deceived and otherwise operated a scientific propaganda campaign for the past 15+ years, profitting from the campaign as they went.
Lyme disease, which in the US also perhaps includes other pathogens notably a bioweaponized bartonella, threatens the entire establishment. If late disease was rare, we'd be able to get treatment. Unfortunately, the EIS/CDC,DOD totally screwed this up and tried to make money off of the disease, making profitability their first priority as opposed to protecting the health of americans.
Think about this...Allen Steere wouldn't listen to Polly Murray in early 90's when she reported a big incidence of neuropsychiatric disease in lyme. She had to call Fallon. Now, Fallon has overwhelming evidence of a serious disabling relapsing brain condition which is not easily treated.
Global hypoperfusion on spect/pet ain't normal folks. Don't you think the CDC etc. should be breaking their balls trying to figure it out? Instead, we see nothing at all, only continued attempts to deny illness and obstruct treatment.
Obviously, they know what is going on, and have determined that the best course is to do nothing, to cover up, knowing that in doing so, they are condemning large numbers of people to perpetual diagnostic and treatment hell.
Think about it. It's a horrific scandal and I'm not sure how much longer these *******s can keep control of it.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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quote:Originally posted by mcg08002: [QB] If you look at my signature, it shows the other Lyme test I had. It showed 93, 23 and 41 positive on the IGM/IGG and I had a positive Elisa.
Run with it. You're wasting valuable time here. The longer you wait to get treated, the more entrenched it will become.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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posted
I agree with Lymetoo.... you had those positive antibodies show up in a previous test, positive erichiliosis test a month ago... assuming symptoms or you wouldn't be here...just run with it
GET TREATMENT..... NOW!!!!!! forget about more testing and instead focus on treatment.
Posts: 871 | From NJ | Registered: Mar 2007
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posted
I see an LLND in Montana on May 14. My fiance is excited to get this ball rolling. We all know i have lyme. I had a postive test in the begining. My Ehrlichia test went from Postive last month to now a past infection this month lol. So who knows. The ID wanted to do a western blot to see if it would back up the first test that showed 3 postive bands, but the western blot only came back with one band, which was 41. I cannot wait to see this LLND. I think I am going to by her a card when I go.
-------------------- Stephanie, University Student.
Ehrlichia [POSITIVE] IGG/IGM AB [H] 1.49 indexLyme AB interp. EIA [A] POSITIVE IGG P93 AB [PRESENT] IGG P41 AB [PRESENT] IGM P41 AB [PRESENT] IGM P23 AB [PRESENT] Lyme IGM WB interp. [A] [PRESENT] Posts: 145 | From Idaho | Registered: Feb 2010
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posted
I am sorry for my ignorance, I am sure it has been discussed before and may have been mentioned here. I had my blood drawn last week and have gotten prelim results of NEG on my Western blot. After reviewing the list of symptoms for Lymes...I have nearly 90 % of them sans the swollen joints ( so far )and a few others. putting two and two together I feel I have it since a year ago a bean shaped (oval) "pigmented" lesion was seen but dismissed as a pigmented lesion by the Dr. followed by flu like sypmptoms. We are waiting for the ELISA but he feels it may say the same. I am afraid that Dr.s will think I dont have it...I am not sure what to think now!Just standing by starting Doxy though per M.D. "just in case"!
Posts: 2 | From MD | Registered: Apr 2010
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karenl
Frequent Contributor (1K+ posts)
Member # 17753
posted
With band 41 only I would recommend the biofilm test at frylabs.com. This was the only one what showed something for me, I have 41 only.
But you also have been tested by a lab which is known for not testing all bands.
Posts: 1834 | From US | Registered: Oct 2008
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